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Supporting someone in the workplace after an MND diagnosis can feel overwhelming — but the right information helps employers respond with confidence and care. One employer who recently worked with our Support Advisor shared: “I appreciate the clear direction on next steps for supporting our colleague — it’s incredibly helpful.” Our Guide for Employers of … Read more
Dr Natalie Gauld ONZM, Research Advisor and Best Practice Advocate at MND NZ, will be presenting to health professionals as part of the Hospice NZ Palliative Care Lecture Series on Thursday 05 February. The webinar will explore the end of life care experiences of people with MND, drawing on data and anonymous insights from the … Read more
The New Year is here, and with it comes that familiar moment—the chance to reset, reconnect, and choose how you want the year ahead to feel. If you’ve been searching for something meaningful to anchor your 2026 to—something that gets you outdoors, brings purpose and challenge, and lets you soak up the beauty of nature—the … Read more
At Motor Neurone Disease NZ, our greatest strength is you – our MND community. Thanks to your support, we walked alongside more than 480 families in 2025. This year, 134 Kiwis received the life-changing diagnosis of motor neurone disease (MND). Each person and their whānau faced a new and challenging reality. Our mission is clear: … Read more
The latest edition of MND News is here, packed with stories illustrating the power of connection, advocacy, education, research and support. On the front cover you’ll find Kevin Norton and his shiny Harley Davidson motorbike. He’s working on getting the bike running again, using the tools he carries in his walking frame. Delve inside the … Read more
Meet Hope — a soft, 13cm-tall plush puppy with a big heart and an even bigger mission. As the official mascot of Motor Neurone Disease NZ, Hope offers comfort, connection, and a message of resilience to anyone impacted by motor neurone disease (MND). Can you give a Hope Pup a home these holidays, to help … Read more
Research is essential for improving the lives of people with motor neurone disease (MND) and their whānau. It shows us what works, what doesn’t, and where changes are needed in care, services, and support. That’s why Motor Neurone Disease NZ is committed to ensuring that research continues to be a priority — not just for … Read more
We’re thrilled to launch the Trek for MND: Abel Tasman Adventure — five days, 55 km of golden beaches, native forest, and rugged coastline, all to raise vital funds for Motor Neurone Disease NZ. Early bird registration is open now: sign up before 16 November 2025 to save $150. About the trek In October 2026, … Read more
On 02 November, Tony Treloar will attempt a 5km walk – one of the 2025 Barfoot & Thomson Marathon events. For Tony, a 5km walk is a true marathon effort – he lives with both limited mobility and ‘ability’ (for example, his abdomen now takes in less than half of the oxygen his peer group … Read more
We’re proud to share that Motor Neurone Disease NZ has once again been named the official charity partner for the 2026 New Zealand Masters Games, taking place in Ōtepoti Dunedin from 31 January to 9 February 2026. The NZ Masters Games is the largest and longest-running multi-sport festival for Masters athletes in Aotearoa, and this renewed partnership … Read more
Minister Louise Upston has announced major changes to the Disability Support System (DSS), restoring flexibility and control to disabled people and carers. These updates, taking effect in early 2026, mark a significant shift towards recognising the wellbeing of carers and ensuring fairer access to support across Aotearoa. What’s changing Why this matters for the MND … Read more
A research initiative led by Associate Professor Emma Scotter (Centre for Brain Research, The University of Auckland), Dr Richard Roxburgh (Neurogenetics Clinic, Auckland City Hospital), and collaborators are recruiting for a study of the genetics of motor neurone disease in New Zealand. Recruitment update They are no longer recruiting people with sporadic MND (without a … Read more