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At Motor Neurone Disease NZ, our greatest strength is you – our MND community. Thanks to your support, we walked alongside more than 480 families in 2025. This year, 134 Kiwis received the life-changing diagnosis of motor neurone disease (MND). Each person and their whānau faced a new and challenging reality. Our mission is clear: … Read more
The latest edition of MND News is here, packed with stories illustrating the power of connection, advocacy, education, research and support. On the front cover you’ll find Kevin Norton and his shiny Harley Davidson motorbike. He’s working on getting the bike running again, using the tools he carries in his walking frame. Delve inside the … Read more
Meet Hope — a soft, 13cm-tall plush puppy with a big heart and an even bigger mission. As the official mascot of Motor Neurone Disease NZ, Hope offers comfort, connection, and a message of resilience to anyone impacted by motor neurone disease (MND). Can you give a Hope Pup a home these holidays, to help … Read more
Research is essential for improving the lives of people with motor neurone disease (MND) and their whānau. It shows us what works, what doesn’t, and where changes are needed in care, services, and support. That’s why Motor Neurone Disease NZ is committed to ensuring that research continues to be a priority — not just for … Read more
We’re thrilled to launch the Trek for MND: Abel Tasman Adventure — five days, 55 km of golden beaches, native forest, and rugged coastline, all to raise vital funds for Motor Neurone Disease NZ. Early bird registration is open now: sign up before 16 November 2025 to save $150. About the trek In October 2026, … Read more
On 02 November, Tony Treloar will attempt a 5km walk – one of the 2025 Barfoot & Thomson Marathon events. For Tony, a 5km walk is a true marathon effort – he lives with both limited mobility and ‘ability’ (for example, his abdomen now takes in less than half of the oxygen his peer group … Read more
We’re proud to share that Motor Neurone Disease NZ has once again been named the official charity partner for the 2026 New Zealand Masters Games, taking place in Ōtepoti Dunedin from 31 January to 9 February 2026. The NZ Masters Games is the largest and longest-running multi-sport festival for Masters athletes in Aotearoa, and this renewed partnership … Read more
Minister Louise Upston has announced major changes to the Disability Support System (DSS), restoring flexibility and control to disabled people and carers. These updates, taking effect in early 2026, mark a significant shift towards recognising the wellbeing of carers and ensuring fairer access to support across Aotearoa. What’s changing Why this matters for the MND … Read more
A research initiative led by Associate Professor Emma Scotter (Centre for Brain Research, The University of Auckland), Dr Richard Roxburgh (Neurogenetics Clinic, Auckland City Hospital), and collaborators are recruiting for a study of the genetics of motor neurone disease in New Zealand. Recruitment update They are no longer recruiting people with sporadic MND (without a … Read more
The 2025 MND Insight Research study — formerly known as the MND Insight Survey — has reached a major milestone, thanks to the dedication of our MND community. This collaborative research effort has produced a rich dataset that sheds light on the lived experience of motor neurone disease in Aotearoa New Zealand. Led by Dr … Read more
The Hurricanes Alumni Foundation Trust recently came together for a special fundraising dinner — a night of connection, reflection, and heartfelt giving. Held on 31 May, the event brought together past and present Hurricanes and Hurricanes Poua players, supporters, and community leaders, raising an incredible $8,000 for Motor Neurone Disease NZ. “For us, this cause is … Read more
Motor neurone disease (MND) is a devastating, incurable illness that slowly robs people of their ability to move, speak, eat—and eventually, breathe. Every week, at least two New Zealanders are diagnosed, and two more lose their lives to MND. This June, you can help make time count for those affected. Motor Neurone Disease NZ is proud to … Read more