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The future of MND treatment in New Zealand: Best practice recommendations and beyond Wednesday 6 September, 20237pm – 8pm Comprehensive, multidisciplinary care is the current gold standard for treating MND. Motor Neurone Disease NZ recently facilitated the production of best practice guidelines for the care of people living with motor neurone disease. Developed over … Read more
Taupō retiree and former nurse Sally Sims, who was diagnosed with MND in 2022, is hosting a charity auction with residents at Summerset Taupō to raise money for MND research. 👉 1pm at Summerset by the Lake, Taupō 👉 Saturday 26 August 👉 Everyone welcome Local community members and businesses have donated items ranging from … Read more
Motor Neurone Disease NZ is the official charity partner for the NZ Masters Games, the largest and longest-running Masters multi-sport festival in New Zealand. The 35th annual Games will be hosted in Dunedin from 3-12 February 2024. Motor neurone disease (MND) is a fatal, rapidly progressing neurological disease that leaves people locked in a failing … Read more
The Government announced this week that it has removed the last remaining mandatory COVID-19 public health requirements for a 7-day isolation period for people testing positive for COVID-19, along with the mandatory wearing of face masks for visitors to healthcare and disability facilities, will be removed. This decision does not mean COVID-19 has disappeared. COVID-19 … Read more
Lighthouse II is an international clinical trial looking at whether human endogenous retroviruses (HERVs) play a role in MND, and whether the anti-retroviral therapy Triumeq might slow the progression of the disease. The clinical trial in New Zealand is jointly funded by Motor Neurone Disease NZ and the Neurological Foundation. Alan Stanley, Consultant Neurologist and Principal … Read more
Nominations for the David Oliver Beacon Award 2023 are open! The David Oliver Beacon Award is awarded annually, acknowledging, and celebrating those who have made a significant contribution to the MND community. The award is open to individuals, groups, and organisations that make positive contribution, improvement, or innovation in MND support or care. Dr David … Read more
MND NZ Board member Estelle and her husband Geoff have run an annual charity bridge tournament for many years, helping to raise money and awareness for a wide range of causes dearest to the Royle Epsom Bridge Club members. “Because of the tightknit nature of the bridge playing community, bridge tournaments are an amazing way … Read more
TV shows can be a powerful tool, helping to illustrate how various diseases and conditions impact on a person and their loved ones when woven into a storyline. When done well, the storyline can improve the public’s understanding and awareness, and in some cases may even ignite interest from researchers and medical professionals, as has … Read more
Wow, what an incredible June YOU have helped create! Your support means the world to us. Here at Motor Neurone Disease NZ, we see firsthand the cruel blows and unfairness of an MND diagnosis on both the individual and those that love them. We also see the hope and strength you offer through Motor Neurone … Read more
Join us Sunday 23 July on Waiheke Island, for a G&T for MND hosted by Waiheke Distilling Co! The team at this iconic boutique distillery have created a gorgeous blue cocktail to capture the essence of the MND cornflower blue logo and story as part of #MNDActionMonth. The unique cocktail is anchored on Waiheke Distilling … Read more
June is the international awareness month for motor neurone disease. Awareness is great – but there is currently no truly effective treatment and no known cure for MND. We need to take action to change this. Things are at an exciting point in research, and we need to keep the momentum going with funding. We … Read more
Walk 2 D’Feet MND is a volunteer organised and facilitated community event created to raise awareness and vital funds for MND. With a global pandemic overshadowing everything the future of these events being in person was uncertain at best. That is until we were joined by incredibly talented volunteers from Invercargill, the Hawke’s Bay, Palmerston … Read more