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Motor neurone disease (MND) is a devastating, incurable illness that slowly robs people of their ability to move, speak, eat—and eventually, breathe. Every week, at least two New Zealanders are diagnosed, and two more lose their lives to MND. This June, you can help make time count for those affected. Motor Neurone Disease NZ is proud to … Read more
Join us Wednesday 2 July, 12.30pm to 2pm, for a special Cuppa Tea for MND at the Motor Neurone Disease NZ office in Royal Oak, Auckland. This event will be combined with the usual monthly support group meeting. This kōrero is an opportunity for people affected by MND to meet in an informal environment to … Read more
Motor neurone disease (MND) research is advancing at pace, with new discoveries bringing hope to those affected. The team at the University of Auckland’s MND Research Lab is working to uncover the genetic causes of MND in New Zealanders, develop targeted therapies, and improve support for families. Thanks to the generosity of MND NZ and … Read more
Join us for one of two MND Insight Survey webinars, where we’ll introduce the MND Insight Survey 2025, explain why it matters, and answer any questions you have. These sessions are not the survey itself but an opportunity to learn more before it launches. The MND Insight Survey 2025 is led by Dr Natalie Gauld, … Read more
The Hewitt whānau is proud to announce two special golf fundraisers, organised in memory of Norm Hewitt, a beloved All Black and rugby stalwart, who passed away in 2024 after living with motor neurone disease (MND). These events are dedicated to supporting Motor Neurone Disease New Zealand (MND NZ), raising vital funds for research, advocacy, … Read more
We’re thrilled to announce that registrations are now open for the 2025 Walk to Defeat MND! This is always our biggest fundraising event of the year and crucial for ensuring we can continue our work. But it’s about far more than just money: it’s an opportunity for us to come together as a community of … Read more
At Motor Neurone Disease New Zealand (MND NZ), we are proud to reflect on a year marked by progress, resilience, and unwavering commitment to our community. The release of our 2023/24 Annual Impact Report offers a snapshot of the strides we’ve made, the challenges we’ve faced, and our vision for a brighter future. A New … Read more
Start off your year on a positive note by volunteering on Saturday 22 February 2025 in Auckland, Wellington, or Christchurch. Walk to Defeat MND brings communities together to walk in honour, memory, and in support of people affected by MND and raise awareness and much needed funds for research and support. Walks vary between 2-3km, … Read more
Canterbury’s Brent Thompson was diagnosed with MND in August 2013, which he describes as “a wrecking ball through our whole world!” He and his wife Jess had a nine-month old baby girl, and were in the final stages of designing their dream home in Rangiora. Brent also ran his own business, designing and manufacturing aircraft … Read more
We are delighted to share the Summer issue of MND News with you, a twice-yearly publication by Motor Neurone Disease New Zealand designed to inform and inspire. In this edition, read about Pamela Glading, who has been living with MND for 17 years, who shares how she continues to live a happy life but albeit … Read more
New Zealander Jon Beardmore is on a mission to reconnect the world, and at the same time raise funds and awareness of motor neurone disease (MND) in memory of his dad, Eric, who died in 2022 after living with MND for eight years. While on a trip to the Galapagos Islands in 2023, Jon spotted … Read more
Receiving a motor neurone disease (MND) diagnosis can be a challenging and emotional experience for families. At just 13 years old, Mia Peters captured her experience with MND through a deeply moving piece of writing. Her mother shared, “With my daughter’s permission, I wanted to share a story Mia wrote last year for the … Read more