Your MND Action Month impact: where does your money go? 

With more than 150 buckets tipped or brews poured during the first three weeks of MND Action Month, we’re so excited to be close to our fundraising target of $160,000! Now, it’s time to talk about where your money goes and the powerful impact you have made. 

Every dollar you raise for MND NZ during Action Month goes to vital personalised support for the 400+ families impacted by MND in NZ; research towards improving quality of life, treatments and finding a cure; and education and awareness sessions so more Kiwis and health professionals understand MND. 

We rely on the generosity of fundraisers, trusts, foundations and donors for the more than $1.8 million required to deliver our services every year.  

Reaching our $160,000 Action Month target means you will provide: 

• 3,000 hours of personalised support for families impacted by MND. 

• 100 education sessions for newly diagnosed families, health professionals and residential care facilities.  

• $15,000 contribution to the Scotter MND Lab at the Centre for Brain Research at the University of Auckland. 

• Two MND NZ research grants to encourage development of New Zealand MND research projects.  

MND NZ Support Team 

Our team of MND NZ Regional Support Advisors throughout New Zealand provide more than 13,000 hours of personal home visits, calls, texts and emails annually. Your fundraising efforts will fund 3,000 of these hours to that ensure no one in New Zealand has to face MND alone.  

“In the early days – [my MND NZ support advisor] was a shock absorber, a listener, someone to give answers to questions I didn't know I had. Now, she’s a listener and advocate and problem-solver.” – Person with MND 

Practical MND Education 

Through the generosity of our donors and fundraisers we recruited a specialist MND Educator in 2025. Your Action Month fundraising means our educator can continue to work with newly diagnosed families, health professionals, care agencies and residential care facilities to increase understanding, awareness and recognition of MND across Aotearoa.  

“We particularly valued your approach and appreciated your acknowledgment that while we work closely with clients living with MND, we may not always fully grasp the intricacies — from the anatomical causes to the various presentations, disease types, and progression patterns.” 

Impactful MND research 

Our 2025-2028 Research Strategy supports several MND research goals. Through this strategy your fundraising will have direct impact on: 

• Improving care for people with MND 

• Progress toward better treatments and, eventually, a cure 

• An active, collaborative MND research workforce.  

💙We are so grateful for every MND Action Month cuppa tea poured, ice bucket tipped and donation made. Together, you are creating a huge impact and making time count for people affected by MND. 

To help us exceed this goal go to our MND Action Month website.