Best Practice Recommendations
In November 2022, Motor Neurone Disease New Zealand published the first New Zealand-based Best Practice Recommendations (BPRs) for the management of MND.
Developed by a working group of New Zealand clinicians with expertise in MND care, the recommendations set out the standard of care that specialists agree should be available to people diagnosed with MND across Aotearoa New Zealand. The group consulted widely with clinical experts throughout New Zealand and drew on established MND care guidelines from the United Kingdom and Canada.
In 2026, a second edition was released following a focused review of selected content to ensure the recommendations remain relevant and practical. Updates include revised information on riluzole, an updated New Zealand Red Flags Tool for GPs, refreshed guidance on genetics, and verification of web links and references. This update did not include a comprehensive clinical review of the entire document. A full review is scheduled for completion by 30 June 2029.
Key facts
- The recommendations represent the first step in a broader framework developed in response to concerns raised by the MND community in New Zealand, with additional resources continuing to be developed.
- They have been tailored for Aotearoa New Zealand and recognise the important roles of Te Tiriti o Waitangi and Te Whare Tapa Whā in the delivery of healthcare services.
- They provide clinical guidance designed to support consistent, high-quality care for people with MND across New Zealand.
- They have been peer reviewed and endorsed by NANZ, TSANZ and ANZSPM Aotearoa.
- The second edition includes targeted updates to selected content and reference materials while maintaining the original recommendations and framework.
It's important to note that this is a clinical guidance document designed to assist health professionals in the management of people with MND in New Zealand. It is not prescriptive. Every person experiences MND differently, and care should always be tailored to individual needs and circumstances. If you are living with MND and have concerns about your care, please discuss them with your healthcare team.
"This is a first and a milestone for standardising and promoting world class MND holistic clinical care across Aotearoa New Zealand."
Sir Richard Faull KNZM, FRSNZ
Director, Centre for Brain Research, University of Auckland
Medical Patron, Motor Neurone Disease New Zealand
Acknowledgements
Motor Neurone Disease New Zealand acknowledges the significant time and expertise contributed by the Motor Neurone Disease Clinical Working Group (MNDCWG) in developing these Best Practice Recommendations.
The group includes 18 members from health disciplines across Aotearoa New Zealand who share a commitment to improving care and support for people living with MND and their whānau. The MNDCWG was co-chaired by Claire Reilly and Chris Drennan in 2020, and by Claire Reilly and Alan Stanley in 2021.
Last updated:
24 September 2026