Let’s make time count.
June is MND Action Month — and we’re calling on you to take action for people living with motor neurone disease. Across Aotearoa, Kiwis are braving the Ice Bucket Challenge, hosting Cuppa Teas, sharing their stories and raising funds to help make time count. We'd love for you to be involved.
As part of the campaign, Chris Kemp shares about music, love and living 'normally' with MND. Watch the video and read the story here.
About MND
MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.
Find an MND Advisor
We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.
After your diagnosis
A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.
Join a group
There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.
Living with MND
Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.
MND Registry
MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.
News & events
Promising MND research from the University of Queensland in early stages
We congratulate University of Queensland (UQ) researchers and their international partners on the development of R8Y, a…
MND Action Month 2026: A community in action
MND Action Month 2026 brought people across Aotearoa together in a powerful show of support, awareness, and…
Motor neurone disease webinar: Perspectives, progress and positivity
As part of Motor Neurone Disease NZ’s (MND NZ) commitment to connecting the MND community with global…
Help us finish strong: the MND Action Month auction
We’re close to the finish line — and this is our final push. As MND Action Month comes…
Your MND Action Month impact: where does your money go?Â
With more than 150 buckets tipped or brews poured during the first three weeks of MND Action Month, we’re so excited to be close to our fundraising target of…
There’s a Hole in My Bucket — and a story worth sharing
This June, a powerful new documentary arrives in Aotearoa. There’s a Hole in My Bucket, directed by…
We're here for you
Motor Neurone Disease New Zealand is a charity built on the ethos of helping people affected by motor neurone disease – and it remains the cornerstone of all that we do today.
A world where no one faces MND alone – where people are supported to live with dignity and hope, and where, one day, MND is treated, cured or prevented.
Until then, we are dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.
Funded by you
Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.
We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.
Every donation offers solace, empowerment, compassion and care.
Key supporters
Aotearoa Gaming Trust
Fulton Hogan
Jubilee Trust
Lindsay Foundation
Lottery Grants Board
Pub Charity
The Lion Foundation
