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"It was 18 years ago that my dad was diagnosed with motor neurone disease" – Brett McGregor
"We have to support the people doing the hard yards looking for treatments and a cure" – Bernadine Oliver-Kerby
MND New Zealand’s support service helps people with MND live better for longer. All over New Zealand, our support team members help people with MND access the right health services at the right time, provide up-to-date information, and offer both practical and emotional support.
Motor neurone disease (MND) is the name given to a group of diseases in which the nerve cells – neurones – controlling the muscles that enable us to move, speak, breathe and swallow degenerate and die.
With no nerves to activate them, muscles gradually weaken and waste away, causing increasing loss of mobility in the limbs, and difficulties with speech, swallowing and breathing. The patterns of weakness vary from person to person.
ALS (amyotrophic lateral sclerosis) is the most common type of MND. MND is known as ALS in some countries.
In 2011, one in every 200 deaths in New Zealand was due to MND
Being outside in New Zealand’s beautiful natural environment is good for everyone. Spending time in nature is associated with lower blood pressure, lower rates of depression, and better mood. It’s ideal for someone coping with the stress of a life-limiting condition such as MND – but the limited mobility that […] READ MORE
Travelling alone, while having advanced MND, and flying long distances is perfectly possible given a bit of thought and preplanning. Obviously, it would be a great help if someone can travel with you from door-to-door, but we don’t often have the resources to finance an ideal situation. You should declare […] READ MORE
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DAVID OLIVER BEACON AWARD
Honour, acknowledge and celebrate individuals, groups or services providing a positive contribution to service, care, improvement, or innovation in support of people with MND.
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