Have you been diagnosed with motor neurone disease?

Motor Neurone Disease New Zealand is a charitable trust dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.

Have you been diagnosed with motor neurone disease?

Motor Neurone Disease New Zealand is a charitable trust dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.

A day of solidarity and support

Come for a family-friendly day out on Saturday 22 February 2025! Each year the Walk to Defeat MND sees hundreds of people dressed in their brightest, boldest blue, all walking in support and in memory of people with MND. Join us in Auckland, Wellington, or Christchurch to raise awareness and funds for research and support.

About MND

MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.

 

 

Wheelchair Control

Find an MND Advisor

We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.

 

Thank You For Showing Me That You Care
After your diagnosis

A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.

 

 

Book For Kids

Join a group

There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.

 

 

Ipad Photo Speech

Living with MND

Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.

 

 

Wheelchair Person Enjoying Friends
MND Registry

MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.

 

Brain Bank Auckland

We're here for you

Motor Neurone Disease New Zealand is a charity built on the ethos of helping people affected by motor neurone disease – and it remains the cornerstone of all that we do today.

 

Our vision is a world where everyone who faces motor neurone disease (MND) is empowered to live with dignity and hope. We champion a future where MND is treated, cured or prevented.

 

Until then, we are dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.

Funded by you

Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.

 

We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.

 

Every donation offers solace, empowerment, compassion and care.

 

Key supporters

Aotearoa Gaming Trust

Aotearoa Gaming Trust

Fulton Hogan

Fh Logo Square

Lindsay Foundation

Lindsay Foundation Logo

Lottery Grants Board

Lottery Grants Board

Pub Charity

Pub Charity

The Lion Foundation

Lion Foundation Logo

News & events

Jonatt~2
,

On a mission: the Galapagos Postman and MND

New Zealander Jon Beardmore is on a mission to reconnect the world, and at the same time…

Read More
Mia and Grandad
,

If I Could Change the World I Would Cure MND

Receiving a motor neurone disease (MND) diagnosis can be a challenging and emotional experience for families.  …

Read More
Running photo
,

Tony's Journey: Taking Steps for MND at the Auckland Marathon

When Tony Treloar read in our previous newsletter about Jodi Clouston and the ‘Team MND' she had…

Read More
General Walk Website Blog Banner
, ,

Save the Date: Walk to Defeat MND 2025

We’re excited to announce the 2025 Walk to Defeat MND will take place on Saturday, 22 February!…

Read More
Local Hero Turns 40
,

Film Night Fundraiser for MND in Memory of Ronnie  

This Thursday, 24th October, the Devonport community is hosting a special film screening at The Vic to…

Read More
investigating the MND molecular crime scene
,

“The Australia and New Zealand MND Research symposium gave me hope” 

In August, Dr Natalie Gauld, MND NZ’s Research Advisor travelled to Melbourne to attend the Australia and…

Read More
AAC Month
,

Augmentative and Alternative Communication Awareness Month

October is International AAC Awareness Month, dedicated to raising awareness of augmentative and alternative communication (AAC), celebrate…

Read More
Karuna Cuppa Tea for MND
,

Karuna of the ready smile

Meet Karuna, an inspiration with a ready smile showing us that #nothingisordinary. Despite the rapid progression of…

Read More
Heartland Championships - North Otago
, ,

Thank you, North Otago Rugby and friends!  

On Saturday 21 September our friends at North Otago Rugby Football Union (NORFU) hosted a special day…

Read More

Trek Mount Kilimanjaro for MND

Embark on an unforgettable journey while making a difference for people affected by motor neurone disease. Your adventure begins March 2025.