Have you been diagnosed with motor neurone disease?

Motor Neurone Disease New Zealand is a charitable trust dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.

Have you been diagnosed with motor neurone disease?

Motor Neurone Disease New Zealand is a charitable trust dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.

Fundraise for MND

Our work of providing personal support, advocating for better access to services, educating others, and backing vital research, is only possible thanks to donations and fundraising.

 

So whether you're running a marathon, hosting a quiz night, or asking for donations instead of birthday gifts, your fundraiser helps make time count for people living with MND.

About MND

MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.

 

 

Wheelchair Control

Find an MND Advisor

We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.

 

Thank You For Showing Me That You Care
After your diagnosis

A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.

 

 

Book For Kids

Join a group

There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.

 

 

Ipad Photo Speech

Living with MND

Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.

 

 

Wheelchair Person Enjoying Friends
MND Registry

MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.

 

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News & events

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Making Time Count: Save the Date for the MND Charity Cricket Match

We’re bringing the community together for a special day of cricket — in support of people affected…

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Al with his bikepacking bike On Tour Divide
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One more road to ride: Al Rynn's mission for MND

Adventure has always been at the heart of Al Rynn's life. In 2024, the 60-year-old set out…

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Promising MND research from the University of Queensland in early stages

We congratulate University of Queensland (UQ) researchers and their international partners on the development of R8Y, a…

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MND Action Month 2026: A community in action

MND Action Month 2026 brought people across Aotearoa together in a powerful show of support, awareness, and…

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Photo of Dr Richard Bedlack on blue banner advertising an ALS/MND webinar
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Motor neurone disease webinar: Perspectives, progress and positivity

As part of Motor Neurone Disease NZ’s (MND NZ) commitment to connecting the MND community with global…

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Help us finish strong: the MND Action Month auction

We’re close to the finish line — and this is our final push.  As MND Action Month comes…

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We're here for you

Motor Neurone Disease New Zealand is a charity built on the ethos of helping people affected by motor neurone disease – and it remains the cornerstone of all that we do today.

 

A world where no one faces MND alone – where people are supported to live with dignity and hope, and where, one day, MND is treated, cured or prevented.

 

Until then, we are dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.

Funded by you

Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.

 

We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.

 

Every donation offers solace, empowerment, compassion and care.

 

Key supporters

Aotearoa Gaming Trust

Aotearoa Gaming Trust

Fulton Hogan

Fh Logo Square

Jubilee Trust

Lindsay Foundation

Lindsay Foundation Logo

Lottery Grants Board

Lottery Grants Board

Pub Charity

Pub Charity

The Lion Foundation

Lion Foundation Logo