Fundraise for MND
Our work of providing personal support, advocating for better access to services, educating others, and backing vital research, is only possible thanks to donations and fundraising.
So whether you're running a marathon, hosting a quiz night, or asking for donations instead of birthday gifts, your fundraiser helps make time count for people living with MND.
About MND
MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.
Find an MND Advisor
We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.
After your diagnosis
A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.
Join a group
There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.
Living with MND
Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.
MND Registry
MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.
We're here for you
Motor Neurone Disease New Zealand is a charity built on the ethos of helping people affected by motor neurone disease – and it remains the cornerstone of all that we do today.
A world where no one faces MND alone – where people are supported to live with dignity and hope, and where, one day, MND is treated, cured or prevented.
Until then, we are dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.
Funded by you
Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.
We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.
Every donation offers solace, empowerment, compassion and care.
Key supporters
Aotearoa Gaming Trust
Fulton Hogan
Jubilee Trust
Lindsay Foundation
Lottery Grants Board
Pub Charity
The Lion Foundation
News & events
MND NZ meets with Minister of Health to advocate for change
MND NZ CE Mark Leggett and MND NZ Research Advisor Dr Natalie Gauld met with the Minister…
Introducing Cat Taylor
MND Regional Support Advisor Waikato, Taranaki, and Whanganui (North) Cat Taylor joined the MND NZ Team in…
Introducing Jenny Paine
Regional Support Advisor Northland and Waitematā Jenny Paine counts herself lucky to have escaped full time retirement…
Trek for MND – Abel Tasman 2026: A purposeful challenge for Kiwi workplaces
For many workplaces, 2026 is already shaping up to be a year where wellbeing, genuine connection, and…
Silvia Hodel turns jewellery hobby into fundraiser to honour sister
In September 2016, Shauntelle Schreuder (L), a 40-year-old mother-of-two, was diagnosed with motor neurone disease (MND). Shauntelle’s…
First MND Insight Research findings: Many Kiwis missing out on life-extending treatment
Motor Neurone Disease NZ (MND NZ) is delighted to announce the publication of the first academic paper…
Blair Cox: 14-hour extreme triathlons to MND diagnosis
Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…
Guide for Employers of People Diagnosed with MND
Supporting someone in the workplace after an MND diagnosis can feel overwhelming — but the right information…
Health Professional Lecture: Motor Neurone Disease – End of Life Care Experiences
Dr Natalie Gauld ONZM, Research Advisor and Best Practice Advocate at MND NZ, will be presenting to…