Your voice matters
Take part in the MND Insight Survey 2025—the most comprehensive study in New Zealand to date. Insights from this research, funded by the Health Research Council and supported by MND NZ. Your voice matters, and will help shape the future of MND care and support.
About MND
MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.
Find an MND Advisor
We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.
After your diagnosis
A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.
Join a group
There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.
Living with MND
Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.
MND Registry
MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.
We're here for you
Motor Neurone Disease New Zealand is a charity built on the ethos of helping people affected by motor neurone disease – and it remains the cornerstone of all that we do today.
Our vision is a world where everyone who faces motor neurone disease (MND) is empowered to live with dignity and hope. We champion a future where MND is treated, cured or prevented.
Until then, we are dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.
Funded by you
Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.
We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.
Every donation offers solace, empowerment, compassion and care.
Key supporters
Aotearoa Gaming Trust
Fulton Hogan
Jubilee Trust
Lindsay Foundation
Lottery Grants Board
Pub Charity
The Lion Foundation
News & events
Lighthouse II trial ends, but research momentum continues
We want to share an important update with our community: the Lighthouse II clinical trial has been…
David Seymour: Advocate, mentor, and friend to our MND community
We’re deeply saddened by the recent death of David Seymour, a much-loved member of our Motor Neurone…
Watch: MND Insight Survey 2025 webinar
The MND Insight Survey 2025 is the most comprehensive survey of the motor neurone disease (MND) community…
Defying limits and inspiring change
From diagnosis to determination When Phillipa MacDonald was diagnosed with motor neurone disease (MND) on her 55th…
A year at MND NZ: Reflections on 40 years of strength and action
A year as Motor Neurone Disease NZ’s Chief Executive Over the past year, Motor Neurone Disease NZ…
End-of-life doulas: Compassionate support when it matters most
Talking about death can be difficult, but planning for the end of life can bring comfort, clarity,…
MND Insight Survey 2025 – your experience matters
Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not…
MND research: answering your key questions and driving change
Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is…
Why the MND Insight Survey matters – Dr Natalie Gauld
Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…