"It was 18 years ago that my dad was diagnosed with motor neurone disease" – Brett McGregor
"We have to support the people doing the hard yards looking for treatments and a cure" – Bernadine Oliver-Kerby
"A close friend's wife was diagnosed with MND some years ago. It just came out of the blue" – Richard Hadlee
MND New Zealand’s support service helps people with MND live better for longer. All over New Zealand, our support team members help people with MND access the right health services at the right time, provide up-to-date information, and offer both practical and emotional support.
Motor neurone disease (MND) is the name given to a group of diseases in which the nerve cells – neurones – controlling the muscles that enable us to move, speak, breathe and swallow degenerate and die.
With no nerves to activate them, muscles gradually weaken and waste away, causing increasing loss of mobility in the limbs, and difficulties with speech, swallowing and breathing. The patterns of weakness vary from person to person.
ALS (amyotrophic lateral sclerosis) is the most common type of MND. MND is known as ALS in some countries.
In 2011, one in every 200 deaths in New Zealand was due to MND
JUMP TO CONTENTS 1. Clinical Management Golden Rules Equipment Communication Comfort Care 2. Respiratory/NIV Ventilatory assistance overnight Ventilatory assistance during the day NIV: When to start, when to stop 3. Augmentive & Assistive Communication Eye gaze Voice banking Neuronode 1. Clinical Management Simple, practical measures can make a huge difference […] READ MORE
6 March 2018 Submission on the End of Life Choice Bill From The Motor Neurone Disease Association of New Zealand Download as PDF Motor neurone disease (MND) is a fatal neurological condition that causes rapidly increasing disability and loss of independence. It frequently strikes healthy people in middle age. […] READ MORE
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DAVID OLIVER BEACON AWARD
Honour, acknowledge and celebrate individuals, groups or services providing a positive contribution to service, care, improvement, or innovation in support of people with MND.
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