About MND
MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.
Find an MND Advisor
We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.
After your diagnosis
A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.
Join a group
There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.
Living with MND
Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.
MND Registry
MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.
News & events
Save the Date: Walk to Defeat MND returns on Saturday 07 November 2026 💙
Mark your calendars. Walk to Defeat MND is returning nationwide on Saturday 07 November 2026. Each year,…
Introducing Tamsin Gallie, MND NZ Regional Support Advisor
While Tamsin Gallie is excited to blend her love of the lower South Island with her love…
Making Time Count: Save the Date for the MND Charity Cricket Match
We’re bringing the community together for a special day of cricket — in support of people affected…
Promising MND research from the University of Queensland in early stages
We congratulate University of Queensland (UQ) researchers and their international partners on the development of R8Y, a…
Funded by you
Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.
We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.
Every donation offers solace, empowerment, compassion and care.
Key supporters
Aotearoa Gaming Trust
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Jubilee Trust
Lindsay Foundation
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Pub Charity
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