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"It was 18 years ago that my dad was diagnosed with motor neurone disease" – Brett McGregor
"We have to support the people doing the hard yards looking for treatments and a cure" – Bernadine Oliver-Kerby
MND New Zealand’s support service helps people with MND live better for longer. All over New Zealand, our support team members help people with MND access the right health services at the right time, provide up-to-date information, and offer both practical and emotional support.
Motor neurone disease (MND) is the name given to a group of diseases in which the nerve cells – neurones – controlling the muscles that enable us to move, speak, breathe and swallow degenerate and die.
With no nerves to activate them, muscles gradually weaken and waste away, causing increasing loss of mobility in the limbs, and difficulties with speech, swallowing and breathing. The patterns of weakness vary from person to person.
ALS (amyotrophic lateral sclerosis) is the most common type of MND. MND is known as ALS in some countries.
In 2011, one in every 200 deaths in New Zealand was due to MND
For an easier to read format, please click here for a PDF of the text below. Palliative Approach to MND There is increasing evidence that palliative care, integrated in a multidisciplinary approach to care, leads to improved symptoms and quality of life in pwMND and their families. These outcomes can […] READ MORE
For an easier to read format, please click here for a PDF of the text below. Multidisciplinary Clinics This summary is based information presented by Paul Talman, clinical session 6B, and discussions with staff at Calvary Healthcare Bethlehem (Dr Susan Mathers, Dr Paul Talman and Occupational Therapist Sarah Solomon). It also summarises […] READ MORE
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DAVID OLIVER BEACON AWARD
Honour, acknowledge and celebrate individuals, groups or services providing a positive contribution to service, care, improvement, or innovation in support of people with MND.
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