June 19, 2026
Global MND/ALS Awareness Day: a time to remember, a time to take action
Sunday 21 June is Global MND/ALS Awareness Day. It’s a day that falls on the solstice for…
Living with MND Articles
1 - 12 of 70 posts
Awareness, Community, Living with MND, Personal Stories
Education, Living with MND, Research
June 18, 2026
Brainstorming with Clare de Lore: MND
In the latest episode of Brainstorming with Clare de Lore (Newstalk ZB), made in partnership with the…
Awareness, Community, Living with MND
June 3, 2026
Cuppa Tea for MND: our July MND Connect Group, with an Action Month twist
Each month, we host an MND Connect Group at the MND NZ national office in Royal Oak…
Awareness, Fundraising, Living with MND, Personal Stories
June 2, 2026
Music, love and living ‘normally’: Chris Kemp’s life with MND
Behind a lime-green door, musicians Chris Kemp and Kendall Todd are choosing creativity, connection and purpose –…
Awareness, Community, Living with MND, Personal Stories
May 7, 2026
Seeds of connection: A pumpkin festival, the natural world and life with MND Â
Loren Hope (44) is a passionate advocate for te taiao* (the natural world) and the power of…
Awareness, Living with MND, Personal Stories
January 29, 2026
Blair Cox: 14-hour extreme triathlons to MND diagnosis
Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…
Awareness, Community, Living with MND, Personal Stories
January 14, 2026
Still Time: Reflections on love, loss and life
Robyn Pryor didn’t set out to write a book. In 2022, when motor neurone disease (MND) forced…
Community, Living with MND
August 4, 2025
From diagnosis to determination: Wayne’s journey with MND
Wayne Richards is one of many New Zealanders living with motor neurone disease (MND) — and one…
Community, Living with MND, Personal Stories
June 26, 2025
In memory of Helen: the rituals, the resilience, the love that stayed
For 30 years, it was part of Helen and Keith’s daily ritual — until motor neurone disease…
Community, Fundraising, Living with MND, Personal Stories
June 18, 2025
A path of passion, persistence, and practical know-how
Behind a set of double doors on a quiet West Auckland street sits a place that hums…
Community, Fundraising, Living with MND, Personal Stories
June 10, 2025
A journey of car modification, mobility, and mindset
Michael Brown—known to most as Mike or “Browno”—has always met life head-on. Sporty by nature and community-minded…
Living with MND, NZ MND Registry, Research
April 9, 2025
Lighthouse II trial ends, but research momentum continues
We want to share an important update with our community: the Lighthouse II clinical trial has been…