May 7, 2026
Seeds of connection: A pumpkin festival, the natural world and life with MND Â
Loren Hope (44) is a passionate advocate for te taiao* (the natural world) and the power of…
Living with MND Articles
1 - 12 of 47 posts
Awareness, Community, Living with MND, Personal Stories
Awareness, Living with MND, Personal Stories
January 29, 2026
Blair Cox: 14-hour extreme triathlons to MND diagnosis
Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…
Awareness, Community, Living with MND, Personal Stories
January 14, 2026
Still Time: Reflections on love, loss and life
Robyn Pryor didn’t set out to write a book. In 2022, when motor neurone disease (MND) forced…
Community, Living with MND
August 4, 2025
From diagnosis to determination: Wayne’s journey with MND
Wayne Richards is one of many New Zealanders living with motor neurone disease (MND) — and one…
Community, Living with MND, Personal Stories
June 26, 2025
In memory of Helen: the rituals, the resilience, the love that stayed
For 30 years, it was part of Helen and Keith’s daily ritual — until motor neurone disease…
Community, Fundraising, Living with MND, Personal Stories
June 18, 2025
A path of passion, persistence, and practical know-how
Behind a set of double doors on a quiet West Auckland street sits a place that hums…
Community, Fundraising, Living with MND, Personal Stories
June 10, 2025
A journey of car modification, mobility, and mindset
Michael Brown—known to most as Mike or “Browno”—has always met life head-on. Sporty by nature and community-minded…
Living with MND, NZ MND Registry, Research
April 9, 2025
Lighthouse II trial ends, but research momentum continues
We want to share an important update with our community: the Lighthouse II clinical trial has been…
Community, Living with MND
April 1, 2025
David Seymour: Advocate, mentor, and friend to our MND community
We’re deeply saddened by the recent death of David Seymour, a much-loved member of our Motor Neurone…
Advocacy, Living with MND, Research
March 11, 2025
Why the MND Insight Survey matters – Dr Natalie Gauld
Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…
Education, Living with MND
October 14, 2024
Augmentative and Alternative Communication Awareness Month
October is International AAC Awareness Month, dedicated to raising awareness of augmentative and alternative communication (AAC), celebrate…
Community, Living with MND
September 3, 2024
Voice Banking
Voice banking is the recording of your natural voice while it is still natural and strong, for…