About MND
MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.

Find an MND Advisor
We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.

After your diagnosis
A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.

Join a group
There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.

Living with MND
Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.

MND Registry
MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.

Funded by you
Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.
We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.
Every donation offers solace, empowerment, compassion and care.
Key supporters
Aotearoa Gaming Trust

Fulton Hogan

Jubilee Trust

Lindsay Foundation

Lottery Grants Board

Pub Charity

The Lion Foundation

News & events
A mother remembered, a movement honoured — Global MND Awareness Day
Today is Global MND/ALS Awareness Day — a date that falls on the solstice for a reason….
For Scott, in motion: Isaiah’s MND Action Month challenge
When Isaiah Masters lost his uncle Scott Bowman to motor neurone disease (MND), he didn’t want to…
Merchandise with meaning: new ways to support MND Action Month
This MND Action Month, we’re proud to share some beautiful new additions to the MND NZ merchandise…
MND Action Month: tip a bucket, pour a brew, make time count
June is MND Action Month — a time to take action, raise awareness, and make time count…
Edaravone in Australia: what it means for New Zealanders living with MND
A treatment for motor neurone disease (MND) has been newly added to Australia’s Pharmaceutical Benefits Scheme (PBS),…
Lighthouse II trial ends, but research momentum continues
We want to share an important update with our community: the Lighthouse II clinical trial has been…