A day of solidarity and support
Come for a family-friendly day out on Saturday 22 February 2025! Each year the Walk to Defeat MND sees hundreds of people dressed in their brightest, boldest blue, all walking in support and in memory of people with MND. Join us in Auckland, Wellington, or Christchurch to raise awareness and funds for research and support.
About MND
MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.
Find an MND Advisor
We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.
After your diagnosis
A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.
Join a group
There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.
Living with MND
Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.
MND Registry
MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.
We're here for you
Motor Neurone Disease New Zealand is a charity built on the ethos of helping people affected by motor neurone disease – and it remains the cornerstone of all that we do today.
Our vision is a world where everyone who faces motor neurone disease (MND) is empowered to live with dignity and hope. We champion a future where MND is treated, cured or prevented.
Until then, we are dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.
Funded by you
Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.
We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.
Every donation offers solace, empowerment, compassion and care.
Key supporters
Aotearoa Gaming Trust
Fulton Hogan
Lindsay Foundation
Lottery Grants Board
Pub Charity
The Lion Foundation
News & events
If I Could Change the World I Would Cure MND
Receiving a motor neurone disease (MND) diagnosis can be a challenging and emotional experience for families. …
Tony's Journey: Taking Steps for MND at the Auckland Marathon
When Tony Treloar read in our previous newsletter about Jodi Clouston and the ‘Team MND' she had…
Save the Date: Walk to Defeat MND 2025
We’re excited to announce the 2025 Walk to Defeat MND will take place on Saturday, 22 February!…
Film Night Fundraiser for MND in Memory of Ronnie
This Thursday, 24th October, the Devonport community is hosting a special film screening at The Vic to…
“The Australia and New Zealand MND Research symposium gave me hope”
In August, Dr Natalie Gauld, MND NZ’s Research Advisor travelled to Melbourne to attend the Australia and…
Augmentative and Alternative Communication Awareness Month
October is International AAC Awareness Month, dedicated to raising awareness of augmentative and alternative communication (AAC), celebrate…
Karuna of the ready smile
Meet Karuna, an inspiration with a ready smile showing us that #nothingisordinary. Despite the rapid progression of…
Thank you, North Otago Rugby and friends!
On Saturday 21 September our friends at North Otago Rugby Football Union (NORFU) hosted a special day…
You're invited: MND Support Group in Auckland
You’re invited to attend the new MND Support Group for the Auckland region, taking place at 12.30pm…