Have you been diagnosed with motor neurone disease?

Motor Neurone Disease New Zealand is a charitable trust dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.

Have you been diagnosed with motor neurone disease?

Motor Neurone Disease New Zealand is a charitable trust dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.

Tip or pour this June

and help make time count

June is MND Action Month — and we’re calling on you to help make time count for New Zealanders living with one of the most relentless and under-recognised diseases we face.

 

Whether you host a Cuppa Tea for MND or take the Ice Bucket Challenge (or both!) we invite you to learn more, speak up, and take action this June.

 

Every cuppa poured and every bucket tipped makes a difference.

Host a Cuppa Tea for MND or take on the Ice Bucket Challenge

About MND

MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.

 

 

Wheelchair Control

Find an MND Advisor

We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.

 

Thank You For Showing Me That You Care
After your diagnosis

A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.

 

 

Book For Kids

Join a group

There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.

 

 

Ipad Photo Speech

Living with MND

Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.

 

 

Wheelchair Person Enjoying Friends
MND Registry

MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.

 

Brain Bank Auckland

We're here for you

Motor Neurone Disease New Zealand is a charity built on the ethos of helping people affected by motor neurone disease – and it remains the cornerstone of all that we do today.

 

Our vision is a world where everyone who faces motor neurone disease (MND) is empowered to live with dignity and hope. We champion a future where MND is treated, cured or prevented.

 

Until then, we are dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.

Funded by you

Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.

 

We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.

 

Every donation offers solace, empowerment, compassion and care.

 

Key supporters

Aotearoa Gaming Trust

Aotearoa Gaming Trust

Fulton Hogan

Fh Logo Square

Jubilee Trust

Lindsay Foundation

Lindsay Foundation Logo

Lottery Grants Board

Lottery Grants Board

Pub Charity

Pub Charity

The Lion Foundation

Lion Foundation Logo

News & events

Jacqueline (left) and Michelle — the mother–daughter duo behind JMT Ceramics, shaped by clay and connection.
, ,

The teacups that carry a story — and the bond behind them

It began with a holiday pottery class — a young girl at the wheel, her mum by…

Read More
Blue Cornflower Blog
, ,

A mother remembered, a movement honoured — Global MND Awareness Day

Today is Global MND/ALS Awareness Day — a date that falls on the solstice for a reason….

Read More
Kevin Norton Hero
, , ,

A path of passion, persistence, and practical know-how

Behind a set of double doors on a quiet West Auckland street sits a place that hums…

Read More
Edm Header (600 X 300 Px) Isaiah
,

For Scott, in motion: Isaiah’s MND Action Month challenge

When Isaiah Masters lost his uncle Scott Bowman to motor neurone disease (MND), he didn’t want to…

Read More
Mnd Merch Banner 600 X 450 Px
,

Merchandise with meaning: new ways to support MND Action Month

This MND Action Month, we’re proud to share some beautiful new additions to the MND NZ merchandise…

Read More
Mike Brown at home beside his modified Mazda CX-9 — a vehicle that helped him stay mobile and independent after his MND diagnosis.
, , ,

A journey of car modification, mobility, and mindset

Michael Brown—known to most as Mike or “Browno”—has always met life head-on. Sporty by nature and community-minded…

Read More
MND Action Month: Tip or pour and make time count.
, ,

MND Action Month: tip a bucket, pour a brew, make time count

June is MND Action Month — a time to take action, raise awareness, and make time count…

Read More
Motor Neurone
,

Edaravone in Australia: what it means for New Zealanders living with MND

A treatment for motor neurone disease (MND) has been newly added to Australia’s Pharmaceutical Benefits Scheme (PBS),…

Read More
Update on Lighthouse II trial
, ,

Lighthouse II trial ends, but research momentum continues

We want to share an important update with our community: the Lighthouse II clinical trial has been…

Read More

MND Action Month is back for 2025!

Gather your workmates, your whānau, and your friends and let’s do whatever we can to make time count for people with motor neurone disease this June.