We’re excited to announce the 2025 Walk to Defeat MND will take place on Saturday, 22 February! Join us in Auckland, Wellington, or Christchurch for a day of solidarity and support: Further details will be published soon. Community WalksCan’t make it to an official location? You can organise your own community walk! Whether you’re personally … Read more
This Thursday, 24th October, the Devonport community is hosting a special film screening at The Vic to raise funds for Motor Neurone Disease NZ, honouring the memory of Ronnie Harris, who passed away from MND nearly a year ago. Organised by his friends, family, and local supporters, the night will feature one of Ronnie’s favourite … Read more
Meet Karuna, an inspiration with a ready smile showing us that #nothingisordinary. Despite the rapid progression of motor neurone disease, Karuna’s grace, humour, and positivity shine through. Supported by his loving children, Dee and Kriv, Karuna continues to embrace life with the help of remarkable technology like his iPad, which allows him to stay connected … Read more
On Saturday 21 September our friends at North Otago Rugby Football Union (NORFU) hosted a special day of rugby at Weston Sports Ground to raise awareness and vital funds for MND. The day kicked off with a North Otago v Mid Canterbury match, with the NORFU team running out in special charity branded one-off jerseys, … Read more
We’re Mat and Darren Bowling — brothers, fathers, partners, and sons. Last year, our dad became one of the many people in New Zealand taken by motor neurone disease (MND). It’s a cruel, unforgiving illness. Everyone diagnosed with MND faces the same devastating prognosis: there’re no truly effective treatment options, and no cure. When we … Read more
Motor Neurone Disease New Zealand (MND NZ) is partnering up with North Otago Rugby Football Union (NORFU) and Bunnings Timaru to help increase acceptance and understanding of motor neurone disease (MND) in the community and raise vital funds for those impacted by MND. NORFU is hosting a special day of rugby on Saturday 21 September … Read more
Ronnie Harris was diagnosed with MND in July 2022, whilst visiting his beloved birthplace, Scotland. It was of course, a devastating blow to Ronnie and Jane, but the way in which they both dealt with the diagnosis and continued to make the very best of the time left together, was an inspiration to all. Ronnie’s … Read more
Jodi Clouston lost her Mum to MND in 2011, a heart-wrenching experience that has driven her to make a difference in the lives of people affected by this devastating condition. In 2023, Jodi had the opportunity to run the New York Marathon as a member of Team ALS, the official charity partner for MND in … Read more
Voice banking is the recording of your natural voice while it is still natural and strong, for the possible eventuality of losing your speech. You can voice bank on a mobile phone, computer, or digital voice recorder. As long as the recordings are produced in MP3 format, they can be used later within a speech … Read more
Join us for an unforgettable night of music and community at Ministry of Folk Presents: A Tribute to Neil Young! Taking place in the historic Auckland Guide Centre in Mt Eden, this special event will feature some of the finest alt-folk talent New Zealand has to offer, all coming together for an important cause—supporting people … Read more
We warmly invite all bridge players to our annual charity bridge tournament on Sunday, 15 September 2024, at 1 pm. Hosted by The Royle Epsom Bridge Club, this event holds special significance as we raise funds for Motor Neurone Disease NZ. For many years, MND NZ Board member Estelle and her late husband Geoff led … Read more
Hi, I’m Paul Kelly, a 32-year-old Tasmanian who has been living with motor neurone disease (MND) for the past nine years. I’m excited to announce a special project close to my heart: a poetry collection titled 100 Poems From People Affected by ALS. This anthology will bring together poems from those directly impacted by MND—whether … Read more