Edm Header (600 X 300 Px) Bunnings 3

Thanks to the support of Bunnings, our amazing volunteers, and communities across Aotearoa, MND Action Month sizzled its way to a $50,000 milestone — helping make time count for people living with motor neurone disease. On Saturday, 28 June, something special happened across Aotearoa. From Whangārei to Invercargill, 42 Bunnings stores opened their doors and … Read more

Support Advisor Rachel Woodworth

The latest edition of MND News has arrived — and it’s filled with stories of courage, connection, and community. Published during MND Action Month, the MND News Winter 2025 issue reflects the heart of what this time of year is all about. Across Aotearoa, people are tipping buckets of ice, pouring cups of tea, and … Read more

In memory of Helen — a life of love, resilience, and quiet strength.

For 30 years, it was part of Helen and Keith’s daily ritual — until motor neurone disease slowly took everything away. In this moving first-person reflection, Keith Thomas shares the heartbreak, resilience, and enduring love that defined their final years together. We’re honoured to share Helen’s story as part of MND Action Month — a … Read more

Jacqueline (left) and Michelle — the mother–daughter duo behind JMT Ceramics, shaped by clay and connection.

It began with a holiday pottery class — a young girl at the wheel, her mum by her side, both falling quietly in love with clay. Over time, that spark became JMT Ceramics: a mother–daughter studio grounded in patience, creativity, and connection. When Michelle’s partner lost his father to motor neurone disease (MND), the grief … Read more

Blue Cornflower Blog

Today is Global MND/ALS Awareness Day — a date that falls on the solstice for a reason. It’s a turning point. It marks the shift — the return of longer days and a sense of renewal. We remember the lives lost to motor neurone disease (MND), stand with those living with it, and reflect on … Read more

Kevin Norton Hero

Behind a set of double doors on a quiet West Auckland street sits a place that hums with quiet energy. From the outside, it’s a shed. But to Kevin Norton, it’s home. A sanctuary. A life lived among machines. Now living with motor neurone disease (MND), Kevin has adapted his world around what he loves … Read more

Edm Header (600 X 300 Px) Isaiah

When Isaiah Masters lost his uncle Scott Bowman to motor neurone disease (MND), he didn’t want to sit with the sadness — he wanted to move with it. So, during MND Action Month, he’s turning grief into grit through Scotty’s MND400 — a challenge that’s raw, physical, and deeply personal. Between 16 and 29 June, … Read more

Mnd Merch Banner 600 X 450 Px

This MND Action Month, we’re proud to share some beautiful new additions to the MND NZ merchandise range — created to raise awareness, honour loved ones, and support the vital work we do alongside people living with motor neurone disease and their whānau.  Held every June, MND Action Month is a time to raise awareness, … Read more

Mike Brown at home beside his modified Mazda CX-9 — a vehicle that helped him stay mobile and independent after his MND diagnosis.

Michael Brown—known to most as Mike or “Browno”—has always met life head-on. Sporty by nature and community-minded at heart, he’s spent years in the surf and on the diamond. As Event Water Safety Manager with Surf Lifesaving New Zealand, Mike shares how he adapted to life with MND, modified his car to retain mobility and … Read more

MND Action Month: Tip or pour and make time count.

June is MND Action Month — a time to take action, raise awareness, and make time count for New Zealanders living with motor neurone disease (MND). MND is a rapidly progressing, incurable disease that robs people of their ability to move, talk, eat, and eventually breathe. On average, a person diagnosed with MND in Aotearoa … Read more

Motor Neurone

A treatment for motor neurone disease (MND) has been newly added to Australia’s Pharmaceutical Benefits Scheme (PBS), making it publicly funded there for the first time. The drug, edaravone (brand name Radicava), is now available to eligible Australians. It is not registered in Europe or the UK after questions were raised about its effectiveness, and … Read more

Update on Lighthouse II trial

We want to share an important update with our community: the Lighthouse II clinical trial has been stopped early, following a planned interim analysis. The analysis found that the treatment being investigated, Triumeq, did not show the level of benefit hoped for in slowing the progression of motor neurone disease (MND). Lighthouse II was a … Read more