Meet Karuna, an inspiration with a ready smile showing us that #nothingisordinary. Despite the rapid progression of motor neurone disease, Karuna’s grace, humour, and positivity shine through. Supported by his loving children, Dee and Kriv, Karuna continues to embrace life with the help of remarkable technology like his iPad, which allows him to stay connected … Read more
On Saturday 21 September our friends at North Otago Rugby Football Union (NORFU) hosted a special day of rugby at Weston Sports Ground to raise awareness and vital funds for MND. The day kicked off with a North Otago v Mid Canterbury match, with the NORFU team running out in special charity branded one-off jerseys, … Read more
Motor Neurone Disease New Zealand (MND NZ) is partnering up with North Otago Rugby Football Union (NORFU) and Bunnings Timaru to help increase acceptance and understanding of motor neurone disease (MND) in the community and raise vital funds for those impacted by MND. NORFU is hosting a special day of rugby on Saturday 21 September … Read more
Ronnie Harris was diagnosed with MND in July 2022, whilst visiting his beloved birthplace, Scotland. It was of course, a devastating blow to Ronnie and Jane, but the way in which they both dealt with the diagnosis and continued to make the very best of the time left together, was an inspiration to all. Ronnie’s … Read more
Jodi Clouston lost her Mum to MND in 2011, a heart-wrenching experience that has driven her to make a difference in the lives of people affected by this devastating condition. In 2023, Jodi had the opportunity to run the New York Marathon as a member of Team ALS, the official charity partner for MND in … Read more
Join us for an unforgettable night of music and community at Ministry of Folk Presents: A Tribute to Neil Young! Taking place in the historic Auckland Guide Centre in Mt Eden, this special event will feature some of the finest alt-folk talent New Zealand has to offer, all coming together for an important cause—supporting people … Read more
We warmly invite all bridge players to our annual charity bridge tournament on Sunday, 15 September 2024, at 1 pm. Hosted by The Royle Epsom Bridge Club, this event holds special significance as we raise funds for Motor Neurone Disease NZ. For many years, MND NZ Board member Estelle and her late husband Geoff led … Read more
Hi, I’m Paul Kelly, a 32-year-old Tasmanian who has been living with motor neurone disease (MND) for the past nine years. I’m excited to announce a special project close to my heart: a poetry collection titled 100 Poems From People Affected by ALS. This anthology will bring together poems from those directly impacted by MND—whether … Read more
We know that time is precious, and our organisation is built on the ethos of making time count. This new series is one way we can spotlight your moments and share them with our MND community, because #nothingisordinary. Willie Hellesoe is an ex league player, who came along to the Warriors Ice Bucket Challenge back … Read more
Known for his happy-go-lucky spirit (despite his wife’s description of him as a “serious grumpy old buggar”)
Are you ready to conquer Mt Kilimanjaro? This is your chance to embark on an unforgettable journey while making a difference for people affected by motor neurone disease. In 2025, we’ll embark on the Kilimanjaro Rongai route in Tanzania and reach the summit of 5,895m over nine days. Our Challenge Trek to Mt Kilimanjaro is a … Read more
What could be better than watching supergroup Come Together perform Led Zeppelin IV live in full? Knowing that the price of your ticket is a donation towards the vital work of Motor Neurone Disease NZ, the only charity focused on improving quality of life, funding research and campaigning for people affected by MND in New … Read more