Sunday 21 June is Global MND/ALS Awareness Day. It’s a day that falls on the solstice for a reason. When the global community pauses and speaks with one voice to raise the visibility of this disease that demands urgent action. Here in Aotearoa, we remember and honour the 139 MND NZ clients who have died … Read more
We’re more than halfway through MND Action Month, and already we’re seeing something powerful unfold across Aotearoa. 145 people have signed up to make time count — and together, you’ve raised over $100,000 towards our $160,000 goal. This is real progress. And it belongs to all of you. Every donation, every fundraiser, every shared post, … Read more
In the latest episode of Brainstorming with Clare de Lore (Newstalk ZB), made in partnership with the University of Auckland’s Centre for Brain Research, the focus turns to motor neurone disease (MND). Journalist Clare de Lore speaks with Associate Professor Emma Scotter, who leads the MND Lab at the Centre, and Dr Natalie Gauld ONZM, … Read more
Trevor Bailey is braving his second ice-cold plunge into Lake Wānaka as a fundraiser for 2026 MND Action Month. The daring dive off the Wānaka wharf is planned for 10 am on Global ALS/MND Awareness Day and New Zealand’s winter solstice, Sunday 21 June. It’s Trevor’s version of the popular Ice Bucket Challenge undertaken by … Read more
Each month, we host an MND Connect Group at the MND NZ national office in Royal Oak — a relaxed, supportive space where people affected by motor neurone disease can connect, talk, and spend time with others who understand. In July, to honour MND Action Month, we’re doing something a little different. On Wednesday 01 July, our MND Connect … Read more
Behind a lime-green door, musicians Chris Kemp and Kendall Todd are choosing creativity, connection and purpose – even as motor neurone disease (MND) changes everything. Chris Kemp (55) and Kendall Todd’s (38) lime-green front door feels like a Narnia-esque portal into a magical musicians’ haven. Inside, a Ramones’ vinyl-record creates a rock’n’roll kitchen rangehood. A … Read more
In July 2025, the hills of Karaka came alive with the clink of cups raised for a ‘Cuppa Tea for MND’, the squeals of an MND Ice Bucket Challenge, the calls of a bingo master, the quiet plink of teardrops…
For many people, motor neurone disease (MND) begins in confusion. Early symptoms are often missed or misunderstood, sending people on a frustrating circuit of appointments, tests and misdiagnoses. For Judith Jones (81), it was eight years from her first symptoms to her recent diagnosis, and she is shocked by the lack of awareness of the … Read more
Loren Hope (44) is a passionate advocate for te taiao* (the natural world) and the power of community connection. She is the founder of Northland’s Ngunguru Pumpkin Festival and was diagnosed with motor neurone disease (MND) as a young mum-of-two at 34-years-old. In response to the progression of her incurable disease, Loren left her teaching … Read more
June is MND Action Month — a time to act, raise awareness, and make time count for people in Aotearoa living with motor neurone disease (MND), and for the whānau who support them. MND is a progressive, incurable, and ultimately terminal disease. It gradually takes away a person’s ability to walk, talk, eat — and … Read more
Three Auckland sisters are on a mission to make time count for people living with MND in memory of Carl Cavanagh (pictured left) who died of the disease in August 2025, aged 56. Fundraising for research and support of people living with motor neurone disease (MND) is a family affair for Carl’s wife Lisa Cavanagh … Read more
For many workplaces, 2026 is already shaping up to be a year where wellbeing, genuine connection, and meaningful community involvement matter more than ever. At MND NZ, we’re inviting organisations across the motu to take part in something that brings all of these threads together. From 2–6 October 2026, we’re hosting Trek for MND – … Read more