Every step taken in the Walk to Defeat MND helps fund vital work that supports people affected by motor neurone disease today, while building hope for tomorrow. For Donna McKay the Walk to Defeat MND is deeply personal. Her beloved mum, Delia, was diagnosed with MND, and Donna was by her side from the very … Read more
In just one week, people across Aotearoa will come together for the 2026 Walk to Defeat MND. From Auckland to Wellington to Christchurch, and in homes and communities around the country, we’ll walk in honour, in memory, and in support of everyone affected by motor neurone disease. And already, this year’s Walk is making an … Read more
Every step taken in the Walk to Defeat MND helps fund vital work that supports people affected by motor neurone disease today while building hope for tomorrow. One of the projects made possible through the generosity of our supporters is the MND Registry. Funded entirely by MND NZ since 2017, the Registry helps researchers better … Read more
The Spring 2026 edition of MND News magazine is landing in mailboxes and inboxes throughout New Zealand. It’s overflowing with stories that showcase the power of connection, advocacy, education, research and support. Pictured on the front cover is the late Francois Smith, who left a remarkable legacy following his death with MND in October 2025. … Read more
As Chief Executive of MND NZ, Walk to Defeat MND is one of the highlights of my year. We know how important community and solidarity are for people and whānau affected by MND. We also know the value of learning from those who have walked this path before us. What stands out to me most, … Read more
Mark your calendars. Walk to Defeat MND is returning nationwide on Saturday 07 November 2026. Each year, Walk to Defeat MND brings people together to walk in honour, memory, and support of those affected by motor neurone disease (MND), while raising vital awareness and funds for MND NZ’s support services and research. MND is a … Read more
We’re bringing the community together for a special day of cricket — in support of people affected by motor neurone disease (MND). On Sunday 14 March 2027, a T20 charity cricket match will take place at Mandeville Sports Ground, Christchurch raising vital funds and awareness for people living with MND across Aotearoa. This will be … Read more
MND Action Month 2026 brought people across Aotearoa together in a powerful show of support, awareness, and connection. From sausage sizzles to cuppa teas, ice bucket challenges to powerful stories shared, there was a real sense of momentum across the country — people showing up with generosity, care, and commitment to the MND community. Together, … Read more
Sunday 21 June is Global MND/ALS Awareness Day. It’s a day that falls on the solstice for a reason. When the global community pauses and speaks with one voice to raise the visibility of this disease that demands urgent action. Here in Aotearoa, we remember and honour the 139 MND NZ clients who have died … Read more
We’re more than halfway through MND Action Month, and already we’re seeing something powerful unfold across Aotearoa. 145 people have signed up to make time count — and together, you’ve raised over $100,000 towards our $160,000 goal. This is real progress. And it belongs to all of you. Every donation, every fundraiser, every shared post, … Read more
In the latest episode of Brainstorming with Clare de Lore (Newstalk ZB), made in partnership with the University of Auckland’s Centre for Brain Research, the focus turns to motor neurone disease (MND). Journalist Clare de Lore speaks with Associate Professor Emma Scotter, who leads the MND Lab at the Centre, and Dr Natalie Gauld ONZM, … Read more
Trevor Bailey is braving his second ice-cold plunge into Lake Wānaka as a fundraiser for 2026 MND Action Month. The daring dive off the Wānaka wharf is planned for 10 am on Global ALS/MND Awareness Day and New Zealand’s winter solstice, Sunday 21 June. It’s Trevor’s version of the popular Ice Bucket Challenge undertaken by … Read more