This year’s symposium was held virtually from 9 – 11 December. For further details on the presentations and presenters from this year’s symposium, please go to You may also be interested in the cleverly designed ‘Periodic Table of MND Research’ summary of the symposium here:  

In light of the most recent COVID-19 lockdown period, affecting Auckland and now lowering of alert levels again across the country, we want to let you know what we are doing in response to the current situation. In March, plans were put in place to enable Registry staff to continue to work from home using … Read more

Results from a study investigating if  ‘a lack of social support and perceived stigma contributes to psychological distress in people with MND’ has been accepted for publication in the British Journal of Health Psychology. The study, led by Natalie Leigh from Lancaster University in England, was conducted using an online survey of 77 participants, mainly … Read more

Last September, we held the first-ever MND Hui at Parliament. The hui offered the chance for people working in various disciplines across healthcare throughout the country to come together and discuss the clinical needs of people living with Motor Neurone Disease in New Zealand. What became apparent throughout the day was that there are regional … Read more

To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, we hope you are well and thank you for your patience during the COVID-19 pandemic.  Now that we are at Level One, we have resumed study enrolment and sample collection and imaging for both our MND genetics … Read more

Dr Emma Scotter

To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, Due to the COVID-19 pandemic, to ensure that participating in our research remains safe and you don’t need to go out to have scans done or to have blood samples taken, we have decided to pause MRI … Read more

A ground-breaking MND clinical drug trial is about to launch in Scotland. The platform, MND-SMART, is a UK-wide trial which aims to find treatments that can slow, stop or reverse the progression of MND. While clinical trials usually focus on a single drug, MND-SMART will allow more than one treatment to be tested at a … Read more

On Monday 9th December, in conjunction with the MND Research Network, we proudly hosted the Inaugural MND New Zealand Research Conference at the Cordis Hotel in Auckland. It was a momentous occasion, gathering 16 speakers, both national and international experts, to discuss the latest updates in MND Research. The Morning’s session focused on understanding and … Read more

As part of MND Awareness Week 2019 (17-23 June) and to celebrate Global MND Awareness Day on 21st June, MND New Zealand hosted “An update on MND Research – Homegrown and Abroad” in Auckland with guest speakers Professor Chris Shaw, Dr Emma Scotter , MND Registry Curator Kerry Walker and MND New Zealand Community & … Read more

Led by Grace Chen from Massey University, Wellington the first paper in the series of epidemiological studies into MND has been published. The first paper and findings – Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the … Read more

Promising research results announced this week from an Australian clinical trial using a compound called copper-ATSM show that the drug is safe and effective in the effort to defeat Motor Neurone Disease. As this breakthrough in research has made headlines, we put together a Q&A with University of Melbourne neuroscientist Associate Professor Peter Crouch to … Read more