Stock Clinical Trial

Update from Dr Alan Stanley, Consultant Neurologist and Principal Investigator for Lighthouse II Phase 3 clinical trial. Lighthouse II is an international clinical trial looking at whether human endogenous retroviruses (HERVs) play a role in motor neurone disease (MND), and whether anti-retroviral therapy might slow the progression of the disease. HERVs are ancient viruses that … Read more

Mnd Webinar 81122 Plain

The inaugural webinar in the newly developed MND New Zealand Community Forum series went successfully, with an impressive turnout and high engagement during the Q&A session. The webinar also saw the announcement of the publication of the NZ-based Best Practice Recommendations for the Care of People with MND. “As a early stage slow progressing MND … Read more

Cover Of Document

A new set of clinical guidelines for the management and care of individuals with MND has been published today, 8 November 2022. Developed over a number of years by a working group of New Zealand MND clinicians and funded by MND New Zealand, this first-ever New Zealand based best practice recommendations (BPRs) represent what specialists … Read more

Chris Shaw Announcement Oct222

In his inaugural lecture on 17 October 2022, Professor Shaw gave insight to the remarkable progress recently achieved with a pioneering gene therapy delivery method for patients with spinal muscular atrophy (SMA).   SMA is characterised by the loss of motor neurons, or nerve cells, in the spinal cord and is classified as a motor neuron disease. This progress has sparked a proliferation of … Read more

Mnd Webinar 81122 Plain

Join us for this inaugural webinar in the newly developed MND New Zealand Community Forum where leading researchers and neurological practitioners will provide an update on key areas of motor neurone disease research happening on both sides of the Tasman. Register for the MND Community Forum Webinar – 8 November 2022 Registration to this webinar … Read more

Chris Shaw Image Credit Mark Mitchell Via Nz Herald

MND New Zealand welcomes the announcement of Professor Chris Shaw in his appointment to the Hugh Green Chair in Translational Neuroscience in the Centre for Brain Research at the University of Auckland. The Hugh Green Foundation has generously endowed this Chair in Translational Neuroscience and the Hugh Green Biobank in perpetuity in the Centre for … Read more

Cover Winter Newsletter 2022

In this issue:

  • Celebrate our fundraising heroes, including the 2022 MND Ice Bucket Challenge.
  • Learn more about international MND research trial – Lighthouse II Phase 3.
  • Meet the new staff joining the battle against MND.  
  • Get to know our Support Advisors – meet Megan Te Boekhorst.
  • Feel inspired by stories from across our community. 
  • From everyone at MND New Zealand, take care and stay in touch. 

Read online here

This year’s symposium was held virtually from 9 – 11 December. For further details on the presentations and presenters from this year’s symposium, please go to https://symposium.mndassociation.org You may also be interested in the cleverly designed ‘Periodic Table of MND Research’ summary of the symposium here: https://symposium.mndassociation.org/periodic-table/  

In light of the most recent COVID-19 lockdown period, affecting Auckland and now lowering of alert levels again across the country, we want to let you know what we are doing in response to the current situation. In March, plans were put in place to enable Registry staff to continue to work from home using … Read more

Results from a study investigating if  ‘a lack of social support and perceived stigma contributes to psychological distress in people with MND’ has been accepted for publication in the British Journal of Health Psychology. The study, led by Natalie Leigh from Lancaster University in England, was conducted using an online survey of 77 participants, mainly … Read more

Last September, we held the first-ever MND Hui at Parliament. The hui offered the chance for people working in various disciplines across healthcare throughout the country to come together and discuss the clinical needs of people living with Motor Neurone Disease in New Zealand. What became apparent throughout the day was that there are regional … Read more