May 9, 2025
Edaravone in Australia: what it means for New Zealanders living with MND
A treatment for motor neurone disease (MND) has been newly added to Australia’s Pharmaceutical Benefits Scheme (PBS),…
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Living with MND, NZ MND Registry, Research
April 9, 2025
Lighthouse II trial ends, but research momentum continues
We want to share an important update with our community: the Lighthouse II clinical trial has been…
Community, Living with MND
April 1, 2025
David Seymour: Advocate, mentor, and friend to our MND community
We’re deeply saddened by the recent death of David Seymour, a much-loved member of our Motor Neurone…
Community, MND NZ, Research
March 18, 2025
Watch: MND Insight Survey 2025 webinar
The MND Insight Survey 2025 is the most comprehensive survey of the motor neurone disease (MND) community…
Community, Events, Fundraising
March 18, 2025
Defying limits and inspiring change
From diagnosis to determination When Phillipa MacDonald was diagnosed with motor neurone disease (MND) on her 55th…
Community, MND NZ
March 18, 2025
A year at MND NZ: Reflections on 40 years of strength and action
A year as Motor Neurone Disease NZ’s Chief Executive Over the past year, Motor Neurone Disease NZ…
Education, Support
March 18, 2025
End-of-life doulas: Compassionate support when it matters most
Talking about death can be difficult, but planning for the end of life can bring comfort, clarity,…
Advocacy, MND NZ, Research
March 11, 2025
MND Insight Survey 2025 – your experience matters
Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not…
Advocacy, MND NZ, Research
March 11, 2025
MND research: answering your key questions and driving change
Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is…
Advocacy, Living with MND, Research
March 11, 2025
Why the MND Insight Survey matters – Dr Natalie Gauld
Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…
Fundraising, Research
March 7, 2025
Turning science into hope: MND research update
Motor neurone disease (MND) research is advancing at pace, with new discoveries bringing hope to those affected….
Advocacy, MND NZ, Research
March 5, 2025
Join the MND Insight Survey webinars
Join us for one of two MND Insight Survey webinars, where we’ll introduce the MND Insight Survey…