September 21, 2022
MND New Zealand Newsletter – out now!
In this issue: Celebrate our fundraising heroes, including the 2022 MND Ice Bucket Challenge. Learn more about…
MND Latest News
All
- All
- Advocacy
- Assisted Dying
- Australasian MND Symposium
- Clinical
- Clinical News
- Covid-19 Updates
- Events & Fundraising
- Genetics
- Hope
- Living with MND
- MND News in New Zealand
- MND NZ
- NZ MND Registry
- Personal Stories
- Research
- Support service update
- tdp43
Living with MND, MND News in New Zealand, Personal Stories, Research
Clinical, Hope, Living with MND, MND News in New Zealand, NZ MND Registry, Research
July 28, 2022
Lighthouse II – NZ’s first multi-site phase 3 clinical trial announced
By October of this year, a small group of New Zealanders living with Motor Neuron Disease will…
Advocacy, Clinical News
February 22, 2023
Pharmac proposal to phase out funding of food thickeners
MND NZ is extremely disappointed with Pharmac’s proposal to phase out funding of food thickeners for…
MND NZ, Support service update
February 1, 2023
Update regarding North Island flooding
It’s been a very wet and scary time for so many affected by the huge amount of rain and flooding…
Events & Fundraising
January 29, 2023
Joe Cotton competes for MND on Celebrity Treasure Island
The new season of New Zealand reality TV competition Treasure Island starts Monday 30 January 2023 at…
Events & Fundraising, Personal Stories
December 5, 2022
MND Christmas 2022 Campaign Launched
The harsh realities of motor neurone disease can be especially tough at Christmas. Some people have the…
Clinical, Genetics, Research
November 21, 2022
Lighthouse II Trial Phase 3 underway
Update from Dr Alan Stanley, Consultant Neurologist and Principal Investigator for Lighthouse II Phase 3 clinical trial….
Living with MND, MND NZ
November 14, 2022
Talking books & greeting card service available free to MND community just in time for Christmas
With Christmas just around the corner MND New Zealand is pleased to offer free access to the…
Clinical, Genetics, MND News in New Zealand, Research
November 10, 2022
First MND forum research update webinar a success
The inaugural webinar in the newly developed MND New Zealand Community Forum series went successfully, with an…
Clinical, MND News in New Zealand, Research
November 8, 2022
Best practice guidelines published to improve MND care in NZ
A new set of clinical guidelines for the management and care of individuals with MND has been…
Genetics, Research
November 1, 2022
Gene therapy strategies for MND – Prof. Chris Shaw lecture available to view
In his inaugural lecture on 17 October 2022, Professor Shaw gave insight to the remarkable progress recently achieved with a…
Events & Fundraising, Living with MND, MND News in New Zealand, Research
October 12, 2022
Join us online Nov 8 for inaugural MND NZ research update webinar
Join us for this inaugural webinar in the newly developed MND New Zealand Community Forum where leading…
Clinical, Genetics, MND News in New Zealand, Research
October 3, 2022
Professor Chris Shaw appointed to Hugh Green Chair
MND New Zealand welcomes the announcement of Professor Chris Shaw in his appointment to the Hugh Green…