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Chris Kemp sits in his living room in a power chair
Awareness, Fundraising, Living with MND, Personal Stories

Music, love and living ‘normally’: Chris Kemp’s life with MND

Behind a lime-green door, musicians Chris Kemp and Kendall Todd are choosing creativity, connection and purpose –…

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Al with his bikepacking bike On Tour Divide
Awareness, Fundraising, Living with MND, Personal Stories

One more road to ride: Al Rynn’s mission for MND

Adventure has always been at the heart of Al Rynn’s life. In 2024, the 60-year-old set out…

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R8y Photo
Clinical News, Research, Treatments

Promising MND research from the University of Queensland in early stages

We congratulate University of Queensland (UQ) researchers and their international partners on the development of R8Y, a…

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Awareness, Community, Fundraising

MND Action Month 2026: A community in action

MND Action Month 2026 brought people across Aotearoa together in a powerful show of support, awareness, and…

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Photo of Dr Richard Bedlack on blue banner advertising an ALS/MND webinar
Education, Events, Research, Treatments

Motor neurone disease webinar: Perspectives, progress and positivity

As part of Motor Neurone Disease NZ’s (MND NZ) commitment to connecting the MND community with global…

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Auction Blog Banner (1)
Awareness, Fundraising, Support

Help us finish strong: the MND Action Month auction

We’re close to the finish line — and this is our final push.  As MND Action Month comes…

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Impact Edm Banner 650x300
Awareness, Community, Fundraising

Your MND Action Month impact: where does your money go? 

With more than 150 buckets tipped or brews poured during the first three weeks of MND Action Month, we’re so excited to be close to our fundraising target of…

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Landscape Tolkien Brothers
Awareness, Community, Personal Stories

There’s a Hole in My Bucket — and a story worth sharing

This June, a powerful new documentary arrives in Aotearoa. There’s a Hole in My Bucket, directed by…

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A child's drawing of a dad and two kids on a power chair
Awareness, Community, Living with MND, Personal Stories

Global MND/ALS Awareness Day: a time to remember, a time to take action

Sunday 21 June is Global MND/ALS Awareness Day. It’s a day that falls on the solstice for…

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100k Banner
Awareness, Community, Fundraising

Halfway through MND Action Month — and what a start

We’re more than halfway through MND Action Month, and already we’re seeing something powerful unfold across Aotearoa….

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Natalie Contact End
Community, Research

Update:  Dr Natalie Gauld, ONZM

The end of June marks the completion of our Research Advisor and Best Practice Advocate, Dr Natalie Gauld’s contract…

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Podcast
Education, Living with MND, Research

Brainstorming with Clare de Lore: MND

In the latest episode of Brainstorming with Clare de Lore (Newstalk ZB), made in partnership with the…

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Trevor's Daring Dive Website Banner (2)
Awareness, Events, Fundraising, Personal Stories

A daring dive for MND on Global ALS/MND Day

Trevor Bailey is braving his second ice-cold plunge into Lake Wānaka as a fundraiser for 2026 MND…

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