About Us

Strategic plan

At Motor Neurone Disease NZ, every decision we make is shaped by what people living with MND and their whānau tell us matters most.

In 2024, we ran a nationwide three-question survey to understand what we’re doing well, what could be better, and what people value most. Right now, we’re also analysing the results of the most in-depth MND survey ever undertaken in Aotearoa, funded partly by the Health Research Council. These insights help us make sure our services are truly meeting the needs of the community.

When it comes to funding decisions, our leadership team and Board of Trustees use a clear framework to stay focused on our mission of making time count for people affected by MND.

We ask ourselves six key questions to guide every decision:

  1. Will it make things easier for people with MND and their loved ones?
  2. Will it help us reach more people and raise awareness of MND?
  3. Can we deliver it within our current structure — or do we need to adapt?
  4. Does it support the growth and development of our team?
  5. Will it strengthen and diversify our funding base?
  6. Does it build on our strengths and support sustainable growth?

We’re proud to be the only organisation in Aotearoa solely dedicated to supporting people with MND. Our work focuses on five key areas:

  • Tailored Support
  • Advocacy and Awareness
  • Education
  • Research
  • Community Engagement

pdf download

MND NZ Strategic Plan 2025-28

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