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Independent Living Services’ Comfortable with Money workshops are back for 2024. Join the programme and take back control of your finances. First intake for 2024: Weekly on Wednesdays from March 13th, 6:30pm-8:00pm online. These FREE online workshops are designed specifically for people living with disability and their families, tāngata whaikaha Māori and tagata sa’ilimalo. Find … Read more

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Join us for an incredible day out at the iconic Auckland Waterfront on Sunday 25th of February 2024 as we walk, united with compassion and camaraderie, to support people living with MND 💙 Meet at Silo Park, located at the corner of Beaumont Street and Jellicoe Street, Auckland CBD 1010 and just a stones throw … Read more


Embark on the momentous trek up Mt Kilimanjaro in Tanzania to help support people living with MND. 4 March – 12 March 2025 IMPORTANT NOTE ALL REGISTRATIONS, INCLUDING PAYMENTS, MUST BE COMPLETED WITH INSPIRED ADVENTURES VIA THIS LINK: https://inspiredadventures.com.au/event/mndnz-kilimanjaro-2025/ REGISTER AND PAY HERE Our Challenge Trek to Mt Kilimanjaro is a fantastic collaboration with MND Victoria, who … Read more

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Join us for an incredible day out at Christchurch’s Hagley Park (southern end) on Sunday 18 February as we walk, united with compassion and camaraderie, to support people living with MND 💙 Don’t miss out on the opportunity to get your loved ones together, connect with the MND community, and enjoy a lovely morning at … Read more

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The buzz of the crowd, quiet moments of remembrance, the hug of a stranger who gets it. Walk to Defeat MND community events are positive, powerful, colourful, and life-affirming. People from all walks of life find strength together, united by their experiences with MND, with the shared purpose of creating hope for others. Join us … Read more

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It’s been another busy year at Motor Neurone Disease NZ as we continue to evolve as an organisation, and work even harder to ensure we offer the best, and most appropriate, support that we can. With Christmas fast approaching, we would like to reflect on how privileged we feel to be able to walk alongside … Read more


Earlier this month, Ruth Mylchreest – Waikato local, athlete and Te Whatu Ora- Waikato neurology clinical nurse specialist took on an incredible challenge to raise awareness and funding for people affected by MND and Huntington’s disease. The challenge saw Ruth climb Kakepuku Mountain 10 times – a total distance of around 75km – on a … Read more

New Books For Kids

Beth Watson was strongly committed to supporting those impacted by MND, and was involved with MND NZ for many years as president, part of the council, and as life member. Recognising the importance of helping young children in understanding what may lie ahead when their loved ones are diagnosed with MND, Beth set out to … Read more

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Thanks to the support from Fulton Hogan, we can offer a range of grants to help cover some of the costs associated with a diagnosis of MND. Fulton Hogan became sponsors of the fund in 2019, greatly enhancing the MND NZ support service. Our Regional Support Advisors work with families to navigate and access statutory … Read more

Medication For Motor Neurone Disease

Motor Neurone Disease NZ has been made aware of a change Medsafe has recently made to the prescribing regime for Riluzole (Rilutek). Riluzole can slow the progression for amyotrophic lateral sclerosis (ALS) and progressive bulbar palsy (PBP) – the most common types of MND. Our understanding is that the changes mean GPs no longer can … Read more

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Walk 2 D’Feet MND is a volunteer organised and facilitated community event created to raise awareness and vital funds for MND. With a global pandemic overshadowing everything the future of these events being in person was uncertain at best. That is until we were joined by incredibly talented volunteers from Invercargill, the Hawke’s Bay, Palmerston … Read more

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Natalie was diagnosed with MND in November of 2022 and as is the case for everyone in this situation had a lot to process and go through along with her loved ones. It was discovered that she has one of the slower progressing versions of MND, so Natalie decided to do everything in her power … Read more