September 16, 2026
The day my voice went quiet and my body defied me
By Tania Guillemot-Meehan Tania is an energetic, sociable, warm, and kind person who is always thinking of…
Personal Stories Articles
1 - 12 of 310 posts
Awareness, Living with MND, Personal Stories
Awareness, Events, Fundraising, Personal Stories
September 2, 2026
MERV: A powerful theatre project exploring love, loss, grief and the impact of MND
MERV is a powerful new work by playwright and director Jackson Rosie (Ngāi Tahu), presented by JCR…
Community, Fundraising, Living with MND, Personal Stories
July 21, 2026
A lifetime of service: The courage and community behind Tony Rice’s MND story
“My dad is my hero,” says Annabelle Rice (pictured above) blinking back tears as she describes the…
Awareness, Fundraising, Living with MND, Personal Stories
July 9, 2026
One more road to ride: Al Rynn’s mission for MND
Adventure has always been at the heart of Al Rynn’s life. In 2024, the 60-year-old set out…
Awareness, Community, Personal Stories
June 22, 2026
There’s a Hole in My Bucket — and a story worth sharing
This June, a powerful new documentary arrives in Aotearoa. There’s a Hole in My Bucket, directed by…
Awareness, Community, Living with MND, Personal Stories
June 19, 2026
Global MND/ALS Awareness Day: a time to remember, a time to take action
Sunday 21 June is Global MND/ALS Awareness Day. It’s a day that falls on the solstice for…
Awareness, Events, Fundraising, Personal Stories
June 17, 2026
A daring dive for MND on Global ALS/MND Day
Trevor Bailey is braving his second ice-cold plunge into Lake Wānaka as a fundraiser for 2026 MND…
Awareness, Fundraising, Living with MND, Personal Stories
June 2, 2026
Music, love and living ‘normally’: Chris Kemp’s life with MND
Behind a lime-green door, musicians Chris Kemp and Kendall Todd are choosing creativity, connection and purpose –…
Awareness, Community, Living with MND, Personal Stories
May 7, 2026
Seeds of connection: A pumpkin festival, the natural world and life with MND
Loren Hope (44) is a passionate advocate for te taiao* (the natural world) and the power of…
Events, Fundraising, Personal Stories
April 29, 2026
Trek for MND: Three sisters on a mission to make time count
Three Auckland sisters are on a mission to make time count for people living with MND in…
Awareness, Living with MND, Personal Stories
January 29, 2026
Blair Cox: 14-hour extreme triathlons to MND diagnosis
Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…
Awareness, Community, Living with MND, Personal Stories
January 14, 2026
Still Time: Reflections on love, loss and life
Robyn Pryor didn’t set out to write a book. In 2022, when motor neurone disease (MND) forced…