June 22, 2026
There’s a Hole in My Bucket — and a story worth sharing
This June, a powerful new documentary arrives in Aotearoa. There’s a Hole in My Bucket, directed by…
Personal Stories Articles
1 - 12 of 70 posts
Awareness, Community, Personal Stories
Awareness, Community, Living with MND, Personal Stories
June 19, 2026
Global MND/ALS Awareness Day: a time to remember, a time to take action
Sunday 21 June is Global MND/ALS Awareness Day. It’s a day that falls on the solstice for…
Awareness, Events, Fundraising, Personal Stories
June 17, 2026
A daring dive for MND on Global ALS/MND Day
Trevor Bailey is braving his second ice-cold plunge into Lake Wānaka as a fundraiser for 2026 MND…
Awareness, Fundraising, Living with MND, Personal Stories
June 2, 2026
Music, love and living ‘normally’: Chris Kemp’s life with MND
Behind a lime-green door, musicians Chris Kemp and Kendall Todd are choosing creativity, connection and purpose –…
Awareness, Community, Living with MND, Personal Stories
May 7, 2026
Seeds of connection: A pumpkin festival, the natural world and life with MND
Loren Hope (44) is a passionate advocate for te taiao* (the natural world) and the power of…
Events, Fundraising, Personal Stories
April 29, 2026
Trek for MND: Three sisters on a mission to make time count
Three Auckland sisters are on a mission to make time count for people living with MND in…
Awareness, Living with MND, Personal Stories
January 29, 2026
Blair Cox: 14-hour extreme triathlons to MND diagnosis
Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…
Awareness, Community, Living with MND, Personal Stories
January 14, 2026
Still Time: Reflections on love, loss and life
Robyn Pryor didn’t set out to write a book. In 2022, when motor neurone disease (MND) forced…
Community, MND NZ, Personal Stories
December 11, 2025
MND News Summer 2025 is out now
The latest edition of MND News is here, packed with stories illustrating the power of connection, advocacy,…
MND NZ, Personal Stories
August 11, 2025
Staff Spotlight: Meet Laura — where purpose meets paws and powerful stories
Behind every campaign, story, and fundraiser at Motor Neurone Disease NZ is a team of people working…
Community, Living with MND, Personal Stories
June 26, 2025
In memory of Helen: the rituals, the resilience, the love that stayed
For 30 years, it was part of Helen and Keith’s daily ritual — until motor neurone disease…
Community, Fundraising, Personal Stories
June 23, 2025
The teacups that carry a story — and the bond behind them
It began with a holiday pottery class — a young girl at the wheel, her mum by…