The harsh realities of motor neurone disease can be especially tough at Christmas. Some people have the heart-breaking knowledge that this Christmas will be their last. Others are facing their first Christmas with an important person missing. Across the motu families will be spending quality time together, having conversations around the dinner table, singing carols, … Read more
In this issue:
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David Seymour is living with MND and reflects on the vital role of his family and impacts on them. My family and I have been grappling with the devastation caused by the beast that is MND, for the past three and a half years. For the first six months after receiving the diagnosis of MND, … Read more
Sometimes it’s the simple pleasure in life that are the most enjoyable. For people living with MND, everyday things like going for a walk can be a challenge. To help others understand this, Jos from Wellington put pen to paper and came up with this piece entitled “Going for a walk”. “The sun is shining … Read more
West Coast woman Samarra Wright is one of three people in her family currently living with MND .The SOD1 Gene responsible for familial MND is prevalent in Samarra’s family – 32 of her family members have been identified as carrying the gene. Samarra along with her husband and children recently worked with Attitude TV, creating … Read more
This report comes from an experienced traveller who has been affected by MND for a number of years, yet has travelled solo, with his motorised wheelchair from the UK to Japan, North America, Europe and Australasia. Travelling alone, while having advanced MND, and flying long distances is perfectly possible given a bit of thought and … Read more