Mnd Website News Featherbed Tales Promo

With Christmas just around the corner MND New Zealand is pleased to offer free access to the Featherbed Tales online talking e-books and greeting card service. The web-based platform allows people with MND and their family to quickly and easily record (and re-record!) audio to play alongside the pages of illustrated digital story books, nursery … Read more

Pictured: Caron Palmer (Deputy Chair, MND New Zealand) and Cos Bruyn (Fulton Hogan Managing Director). Fulton Hogan is this year’s recipient of the David Oliver Beacon Award. The decision was announced at our AGM on Saturday, 31st October. The purpose of the award is for MND New Zealand to honour, acknowledge, and celebrate individuals, groups, … Read more

Each week in New Zealand at least two people are diagnosed with MND. This devastating disease impacts hundreds of families throughout New Zealand, yet it’s something many kiwis have little knowledge of. Raising awareness of motor neurone disease is vital. With increased awareness comes increased understanding, which leads to more funding, more research, and eventually … Read more

No, we haven’t lost our minds, there really is a plus side to the end of the tax year. Read on to discover what it is! MND New Zealand is a registered charity (The Motor Neurone Disease Association of New Zealand Incorporated – Registration Number: CC35320). If you donated to MND New Zealand during the … Read more

Today, Tuesday 11th February is International Day of Women and Girls in Science! Implemented by the United Nations in 2015, the day celebrates the vital role women play in Science and Technology. With this in mind, it was only fitting that today we introduced you to two young women involved in MND research in New … Read more

On Monday 9th December, in conjunction with the MND Research Network, we proudly hosted the Inaugural MND New Zealand Research Conference at the Cordis Hotel in Auckland. It was a momentous occasion, gathering 16 speakers, both national and international experts, to discuss the latest updates in MND Research. The Morning’s session focused on understanding and … Read more

At our recent 2019 Annual General Meeting, we announced some changes to the National Council for the coming year. Beth Watson and Tony Treloar both retired from council at the meeting. Beth (pictured with Steve Green) came to MND New Zealand in 2001 as the National Executive Officer, and was also part of the previous … Read more

Following our 3rd April article, ‘Prescribing of Rilutek (Riluzole) – What you need to know’, we would like to update you on current progress. Recently it has come to our attention that some of our clients have been prescribed the drug Riluzole (trade name “Rilutek”) by their General Practitioner. Under the Medicines Act 1981, Rilutek can … Read more

As part of MND Awareness Week 2019 (17-23 June) and to celebrate Global MND Awareness Day on 21st June, MND New Zealand hosted “An update on MND Research – Homegrown and Abroad” in Auckland with guest speakers Professor Chris Shaw, Dr Emma Scotter , MND Registry Curator Kerry Walker and MND New Zealand Community & … Read more

As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration.  MND New Zealand’s Research Strategy aims to develop a globally connected, … Read more

Having the right to choose assisted dying has become a global debate. Lobbying, submissions and protests have urged governments to look at current laws and work towards more compassionate policy around assisted dying and provisions to protect the most vulnerable. Victoria, Australia made headlines in 2017 when it passed the Voluntary Assisted Dying Bill becoming … Read more

We are excited to launch our new MND New Zealand Forum. The forum is an online community for people living with or affected by MND to share experiences and support one another. The forum replaces the existing Facebook group KIWIPALS and is be available via our website here Forum. MND New Zealand Community and Research Advisor … Read more