Canterbury’s Brent Thompson was diagnosed with MND in August 2013, which he describes as “a wrecking ball through our whole world!” He and his wife Jess had a nine-month old baby girl, and were in the final stages of designing their dream home in Rangiora. Brent also ran his own business, designing and manufacturing aircraft … Read more
The Centre for Brain Research recently celebrated its 15th birthday, marking an incredible milestone for neurological research. The Centre has over 400 researchers working across various fields of brain research, including a dedicated team of 10 researchers focusing specifically on motor neurone disease (MND). Led by Dr. Emma Scotter, the team have published over 20 … Read more
In August, Dr Natalie Gauld, MND NZ’s Research Advisor travelled to Melbourne to attend the Australia and New Zealand MND Research Symposium. Here, she shares her insights and highlights from the conference. The Australia and New Zealand MND Research Symposium was a two-day jam-packed series of presentations by clever people working hard to find the … Read more
You’re invited to attend the new MND Support Group for the Auckland region, taking place at 12.30pm on Wednesday 2 October at the MND national office, 14 Erson Avenue, Royal Oak. “The support group gathering is the result of several clients saying ‘It would be really good to have a support group’,” says Rachel Woodworth, … Read more
We love having Toni back in the office, and we’ve put a few questions to help get to know her better. What’s your favourite quality about yourself?Hmm that is a tough one! Probably that I am usually able to see/consider things from someone else’s perspective as well as my own. What are you most excited … Read more
A new study has recently been published on the difference in levels of proteins associated with neurodegenerative disease
Independent Living Services’ Comfortable with Money workshops are back for 2024. Join the programme and take back control of your finances. First intake for 2024: Weekly on Wednesdays from March 13th, 6:30pm-8:00pm online. These FREE online workshops are designed specifically for people living with disability and their families, tāngata whaikaha Māori and tagata sa’ilimalo. Find … Read more
Beth Watson was strongly committed to supporting those impacted by MND, and was involved with MND NZ for many years as president, part of the council, and as life member. Recognising the importance of helping young children in understanding what may lie ahead when their loved ones are diagnosed with MND, Beth set out to … Read more
📌 Free online workshop on Assistive Technology The Federation of Disability Information Centres and Complex Care Group will be hosting an online workshop on assistive technology on Wednesday 29th November 12 noon till 1.30pm via Zoom, with a presentation first, followed by discussion time. This workshop will be facilitated by Emma Brockie of Living Well … Read more
The future of MND treatment in New Zealand: Best practice recommendations and beyond Wednesday 6 September, 20237pm – 8pm Comprehensive, multidisciplinary care is the current gold standard for treating MND. Motor Neurone Disease NZ recently facilitated the production of best practice guidelines for the care of people living with motor neurone disease. Developed over … Read more