Every step taken in the Walk to Defeat MND helps fund vital work that supports people affected by motor neurone disease today, while building hope for tomorrow. For Donna McKay the Walk to Defeat MND is deeply personal. Her beloved mum, Delia, was diagnosed with MND, and Donna was by her side from the very … Read more
In just one week, people across Aotearoa will come together for the 2026 Walk to Defeat MND. From Auckland to Wellington to Christchurch, and in homes and communities around the country, we’ll walk in honour, in memory, and in support of everyone affected by motor neurone disease. And already, this year’s Walk is making an … Read more
The Spring 2026 edition of MND News magazine is landing in mailboxes and inboxes throughout New Zealand. It’s overflowing with stories that showcase the power of connection, advocacy, education, research and support. Pictured on the front cover is the late Francois Smith, who left a remarkable legacy following his death with MND in October 2025. … Read more
As Chief Executive of MND NZ, Walk to Defeat MND is one of the highlights of my year. We know how important community and solidarity are for people and whānau affected by MND. We also know the value of learning from those who have walked this path before us. What stands out to me most, … Read more
Over the weekend, many people tagged MND NZ in posts expressing disappointment at Sky Sport NZ’s decision to cut away from Jai Arrow’s 100th NRL game walkout. Like many in our community, we were disappointed to see such a significant moment missed. For people living with MND, their families and whānau, and those who have … Read more
Rebecca Sanders and her mum, Michelle Williamson, are best friends. Often together for shopping, crafting, or a cheeky cocktail they’re each other’s first phone call for good news, bad news, or just to have a natter. When Michelle was diagnosed with fast-progressing motor neurone disease (MND) in June 2025, Rebecca and her fiancé John … Read more
We’re bringing the community together for a special day of cricket — in support of people affected by motor neurone disease (MND). On Sunday 14 March 2027, a T20 charity cricket match will take place at Mandeville Sports Ground, Christchurch raising vital funds and awareness for people living with MND across Aotearoa. This will be … Read more
MND Action Month 2026 brought people across Aotearoa together in a powerful show of support, awareness, and connection. From sausage sizzles to cuppa teas, ice bucket challenges to powerful stories shared, there was a real sense of momentum across the country — people showing up with generosity, care, and commitment to the MND community. Together, … Read more
With more than 150 buckets tipped or brews poured during the first three weeks of MND Action Month, we’re so excited to be close to our fundraising target of $160,000! Now, it’s time to talk about where your money goes and the powerful impact you have made. Every dollar you raise for MND NZ during Action Month goes to vital personalised support for the 400+ families impacted by MND in NZ; research towards improving quality of life, treatments and finding a cure; and education and awareness sessions so more Kiwis and health professionals understand MND. We rely on the generosity of fundraisers, trusts, foundations and … Read more
Sunday 21 June is Global MND/ALS Awareness Day. It’s a day that falls on the solstice for a reason. When the global community pauses and speaks with one voice to raise the visibility of this disease that demands urgent action. Here in Aotearoa, we remember and honour the 139 MND NZ clients who have died … Read more
We’re more than halfway through MND Action Month, and already we’re seeing something powerful unfold across Aotearoa. 145 people have signed up to make time count — and together, you’ve raised over $100,000 towards our $160,000 goal. This is real progress. And it belongs to all of you. Every donation, every fundraiser, every shared post, … Read more
The end of June marks the completion of our Research Advisor and Best Practice Advocate, Dr Natalie Gauld’s contract with Motor Neurone Disease NZ. Natalie began with us prior to my start as Chief Executive. With a strong background in research, health development projects and of course her lived experience, she immediately made an impact. One of the first … Read more