Julia Davies 
Congratulations to Greg Goldfinch and the incredible team at Colliers Highbrook, who are this year’s David Oliver Beacon Award recipients. The David Oliver Beacon Award is awarded annually, to acknowledge and celebrate those who have made a significant contribution to the MND community. The 2021 theme was “making a positive contribution, improvement, or innovation in … Read more
Thank you to everyone who supported Motor Neurone Disease Awareness Month 2021. To those who boiled the kettle, baked the cakes, endured an icy drenching, sponsored an activity, or dropped a donation in a collection tub. More than 30 Cuppa Tea for MND events were held across New Zealand to mark Motor Neurone Disease Awareness … Read more
As part of Motor Neurone Disease Awareness Month and to mark Global ALS/MND Awareness Day, today we launched a new campaign to help raise awareness of motor neurone disease in New Zealand, and in turn increase support, funding, and research, to benefit those living with the disease. Whangarei-based David Seymour, who was diagnosed with MND … Read more
Raise awareness and funds to make a difference this June! Find out how to get involved below: Share your storyDo you have a story to share about your experiences with MND? We invite you to help raise awareness about MND and its impact on New Zealanders by sharing your story when the time feels right. … Read more
Following the recent resignation of our Chair Greg Horton, we are delighted to announce the appointment of Natalie Thain as interim Chair to our AGM on 30th October. Natalie brings considerable governance experience at board level in a range of organisations, including large private sector organisations; listed companies; local, central, and regional government agencies; non-profits; … Read more
Summary of study provided by lead investigator Paige Thomas (PhD); Rose Centre for Stroke Recovery and Research, Department of Communication Disorders, University of Canterbury, Christchurch Summary of study provided by lead investigator Paige Thomas (PhD); Rose Centre for Stroke Recovery and Research, Department of Communication Disorders, University of Canterbury, Christchurch For individuals with MND swallowing … Read more
Kiwis living with motor neurone disease (MND) are set to benefit from MND New Zealand being the official charity partner of Emirates Team New Zealand for the 36th America’s Cup. Since the partnership was announced in June 2019, the team has helped the charity increase awareness and inspire others to join them in supporting people … Read more
The end of the tax year is almost here! As we are a registered charity (The Motor Neurone Disease Association of New Zealand Incorporated – Registration Number: CC35320), if you donated to MND New Zealand during the 2020 tax year (ending on 31st March 2021), you could be eligible for a tax refund. We estimate … Read more
This year’s symposium was held virtually from 9 – 11 December. For further details on the presentations and presenters from this year’s symposium, please go to https://symposium.mndassociation.org You may also be interested in the cleverly designed ‘Periodic Table of MND Research’ summary of the symposium here: https://symposium.mndassociation.org/periodic-table/
Pictured: Caron Palmer (Deputy Chair, MND New Zealand) and Cos Bruyn (Fulton Hogan Managing Director). Fulton Hogan is this year’s recipient of the David Oliver Beacon Award. The decision was announced at our AGM on Saturday, 31st October. The purpose of the award is for MND New Zealand to honour, acknowledge, and celebrate individuals, groups, … Read more
In light of the most recent COVID-19 lockdown period, affecting Auckland and now lowering of alert levels again across the country, we want to let you know what we are doing in response to the current situation. In March, plans were put in place to enable Registry staff to continue to work from home using … Read more
Results from a study investigating if ‘a lack of social support and perceived stigma contributes to psychological distress in people with MND’ has been accepted for publication in the British Journal of Health Psychology. The study, led by Natalie Leigh from Lancaster University in England, was conducted using an online survey of 77 participants, mainly … Read more