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It’s MND Awareness Month, and we need your support!


31 May 2021

Cropped graphic for website blog

Raise awareness and funds to make a difference this June! Find out how to get involved below:

Share your story
Do you have a story to share about your experiences with MND?

We invite you to help raise awareness about MND and its impact on New Zealanders by sharing your story when the time feels right.

Your story may assist us in various ways. It could help us write more powerful funding applications, advocate for the rights of people living with MND, raise public awareness of MND, and help other people with MND and carers to know they are not alone in their experiences.

Click here to share your story.

Nicci Reynold's story
My mum was diagnosed in her 50s, it was 18 months from there until her death. I was a young mum, wife, and business owner looking after her in her home for as long as I could do so safely for her.

MND New Zealand’s Support Team Member at the time, Remia Casey, was our angel – she held our hands all the way through it and continued to hold my hand after. If it wasn’t for Remia Casey, Jude Stevenson (CCS), and Claire Ryan, my mum wouldn't have been able to stay at home for as long as she did. It was about quality not quantity for mum, and they helped us achieve that.

My advice to anyone newly diagnosed and their family is just breathe… anything is possible. Don’t give up and don’t let doctors and the health system make you feel like your loved one is a waste of time, it's about quality not quantity.

To view more stories shared by the MND community, click here.

Help raise awareness with our downloadable resources

Download and print an ‘About MND' poster to display in your community, share the Motor Neurone Disease Awareness graphic on your social media accounts, or add our frame to your Facebook profile for the month.

Downloadable MND Awareness poster.
Downloadable Facebook tile.
Update your Facebook profile photo frame.

Cuppa Tea for MND
Host a Cuppa Tea for MND event during Motor Neurone Disease Awareness Month (June) to raise awareness of MND and funds to support the work of MND New Zealand.

The event can be big or small, take place anytime and anywhere. Invite your friends, colleagues, or family to a morning or afternoon tea, lunch, or get-together, and donate proceeds.


Click here to find out more and sign up!

Take on The MND Ice Bucket Challenge
Will your business, school, or group take on The MND Ice Bucket Challenge this awareness month?

If just ten groups take part and each raise $1,000, this could cover the cost of offering MND New Zealand's free personalised support service to six families living with MND for an entire year.


Click here to find out more and sign up!

Watch this space!
As part of awareness month we will also be launching a new awareness and fundraising campaign on Global ALS/MND Awareness Day (21st June). More details to come!

New look for MND New Zealand
You may have noticed we have an updated look and feel as today we launch our new brand identity. This includes a refreshed logo, colour palette, fonts, icons, and photos. We hope you love it as much as we do!

We have also been working on a new and improved website to make online interaction more user friendly, so it's easier for our MND community to find the information they are looking for. We are looking forward to unveiling this very soon.

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