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The buzz of the crowd, quiet moments of remembrance, the hug of a stranger who gets it. Walk to Defeat MND community events are positive, powerful, colourful, and life-affirming. People from all walks of life find strength together, united by their experiences with MND, with the shared purpose of creating hope for others. Join us … Read more
The buzz of the crowd, quiet moments of remembrance, the hug of a stranger who gets it. Walk to Defeat MND community events are positive, powerful, colourful, and life-affirming. People from all walks of life find strength together, united by their experiences with MND, with the shared purpose of creating hope for others. Join us … Read more
It’s been another busy year at Motor Neurone Disease NZ as we continue to evolve as an organisation, and work even harder to ensure we offer the best, and most appropriate, support that we can. With Christmas fast approaching, we would like to reflect on how privileged we feel to be able to walk alongside … Read more
We are very pleased to welcome Dr Natalie Gauld to Motor Neurone Disease NZ as Research Advisor and Best Practice Advocate. Natalie is a pharmacist with a MPharm and PhD degrees and has honorary roles in the Department of Paediatrics and School of Pharmacy at the University of Auckland. She is passionate about improving access … Read more
Darren Bidois (Ngāi Te Rangi) and his wife Leanne are trying to focus on the positives after Darren was diagnosed with Motor Neurone Disease. Darren commissioned this Korowai (cloak) as an heirloom for his family and it arrived just the day before his 60th birthday, when this photo was taken. Photo: Supplied Every year, the … Read more
Earlier this month, Ruth Mylchreest – Waikato local, athlete and Te Whatu Ora- Waikato neurology clinical nurse specialist took on an incredible challenge to raise awareness and funding for people affected by MND and Huntington’s disease. The challenge saw Ruth climb Kakepuku Mountain 10 times – a total distance of around 75km – on a … Read more
Tonight’s screening of “Stewart” is more than just a movie night—it’s a tribute to the memory of Malcolm Abernethy and the fight against MND. Malcolm, who was diagnosed with MND in March 2021, was a passionate fan of the legendary racer Jackie Stewart. “In March 2023 we sadly lost a dad, grandad and husband,” the … Read more
When Serena’s brother Michael was diagnosed with MND on Valentine’s Day 2020 everything changed. He and his young family were living in Wellington, but soon moved back home to Invercargill to be close to family. Among all the bad news and uncertainty over the future, the one bright spot that Serena recalls is that the … Read more
Beth Watson was strongly committed to supporting those impacted by MND, and was involved with MND NZ for many years as president, part of the council, and as life member. Recognising the importance of helping young children in understanding what may lie ahead when their loved ones are diagnosed with MND, Beth set out to … Read more
📌 Free online workshop on Assistive Technology The Federation of Disability Information Centres and Complex Care Group will be hosting an online workshop on assistive technology on Wednesday 29th November 12 noon till 1.30pm via Zoom, with a presentation first, followed by discussion time. This workshop will be facilitated by Emma Brockie of Living Well … Read more
Thanks to the support from Fulton Hogan, we can offer a range of grants to help cover some of the costs associated with a diagnosis of MND. Fulton Hogan became sponsors of the fund in 2019, greatly enhancing the MND NZ support service. Our Regional Support Advisors work with families to navigate and access statutory … Read more
Today, Pharmac has published the minutes of the August PTAC (Pharmacology and Therapeutics Advisory Committee) meeting, where the proposal to defund food thickeners for people with MND with a swallowing disorder was discussed. The recommendation from the advisory committee is for access to funded food thickeners be retained in the community for people with MND … Read more