Photo caption: Rider Gerald Patterson during his training for the epic challenge ahead On Saturday 18 May three New Zealand riders will embark on the cycling trip of a lifetime,…
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Photo caption: Jen (left) & Megan (right) are bringing together whānau impacted by MND After losing her mum to motor neurone disease, Jen Smart saw a need to support grieving…
In the final instalment of Newshub’s three-part series on motor neurone disease, journalist Amanda Gillies spoke with Dr Emma Scotter, head of the Motor Neuron Disease Research Lab at the…
Ally Barton, once an active hiker and gym goer, was diagnosed with MND at just 34, one of the youngest with the condition in New Zealand. Newshub recently interviewed husband…
This week TV3’s Newshub shared a piece on Jimmy King, the first New Zealander with MND to access Tofersen. Tofersen is an investigational drug developed by Biogen to treat SOD1-type MND. Read more and watch the news segment, here: www.newshub.co.nz/home/new-zealand/2024/04/motor-neurone-disease-game-changer-treatment-soon-available-in-new-zealand In people of European descent, SOD1 gene mutations cause about 15-30% of MND cases with … Read more
This year’s Walk to Defeat MND was a resounding success, bringing together communities from Wellington, Christchurch, and Auckland to raise much needed awareness, not to mention an astounding $123,390 for…
Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with motor neurone disease (MND) know this is how their life will end, and with no treatment or cure available, it is a terrifying fate. Tofersen (brand name Qalsody) is an investigational drug developed by the company Biogen to … Read more
There are many people who have contributed to MND NZ over its past decades, but possibly none more so than Beth Watson who sadly passed away in June 2023. Beth Watson was a tireless advocate for people with motor neurone disease (MND) and the work of MND NZ for nearly 25 years including thousands of … Read more
Embark on the momentous trek up Mt Kilimanjaro in Tanzania to help support people living with MND. 4 March – 12 March 2025 IMPORTANT NOTE ALL REGISTRATIONS, INCLUDING PAYMENTS, MUST BE COMPLETED WITH INSPIRED ADVENTURES VIA THIS LINK: https://inspiredadventures.com.au/event/mndnz-kilimanjaro-2025/ REGISTER AND PAY HERE Our Challenge Trek to Mt Kilimanjaro is a fantastic collaboration with MND Victoria, who … Read more
Independent Living Services’ Comfortable with Money workshops are back for 2024. Join the programme and take back control of your finances. First intake for 2024: Weekly on Wednesdays from March 13th, 6:30pm-8:00pm online. These FREE online workshops are designed specifically for people living with disability and their families, tāngata whaikaha Māori and tagata sa’ilimalo. Find … Read more
Darren Bidois – a former New Zealand indoor cricket rep who was diagnosed with MND on his 58th birthday – recently candidly shared the everyday realities of living with MND with Duncan Garner as part of the ‘Editor in Chief’ podcast. “His journey is not just a battle with physical decline but a testament to … Read more
On Thursday we were privileged to have Dr Emma Scotter, head of the MND Lab at the University of Auckland, and Dr Natalie Gauld, ONZM, Research Advisor and Best Practice Advocate at MND NZ, on the AM Show sofa on Three discussing motor neurone disease and this weekend’s Walk to Defeat MND. If you missed … Read more