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Talking about death can be difficult, but planning for the end of life can bring comfort, clarity, and dignity. End-of-life doulas provide emotional, practical, and spiritual support to people with life-limiting illnesses and their families. They help with advance care planning, navigating the healthcare system, and ensuring a person’s wishes are understood and respected. In … Read more
Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not only those diagnosed but also their whānau and support networks. The challenges can be overwhelming – from accessing healthcare and equipment to managing financial and emotional strain. Yet, despite its profound impact, there is still so much we … Read more
Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is essential for improving the lives of people with motor neurone disease (MND) and their families. It helps us understand what works, what doesn’t, and where change is needed to provide better care, services, and support. That’s why Motor … Read more
Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the most in-depth study of its kind in New Zealand. The survey aims to uncover what’s working, what’s not, and where urgent improvements are needed for people with MND and their families. By sharing their experiences, participants will help … Read more
Motor neurone disease (MND) research is advancing at pace, with new discoveries bringing hope to those affected. The team at the University of Auckland’s MND Research Lab is working to uncover the genetic causes of MND in New Zealanders, develop targeted therapies, and improve support for families. Thanks to the generosity of MND NZ and … Read more
Join us for one of two MND Insight Survey webinars, where we’ll introduce the MND Insight Survey 2025, explain why it matters, and answer any questions you have. These sessions are not the survey itself but an opportunity to learn more before it launches. The MND Insight Survey 2025 is led by Dr Natalie Gauld, … Read more
Months of hard work, dedication, and planning went into making the 2025 Walk to Defeat MND a reality. But no amount of preparation could create the energy, passion, and impact that people bring to this event. The walk is nothing without the individuals, families, and teams who show up—not just to take steps, but to … Read more
For Jeremy Benton, the Walk to Defeat MND isn’t just another fundraising event—it’s a personal journey. Every year, he dedicates countless hours to ensuring the Christchurch walk is a success, helping to unite people in support of those affected by Motor Neurone Disease (MND). His motivation? Honouring the memory of his grandfather, who passed away … Read more
Across Aotearoa, communities are coming together for the Walk to Defeat MND, raising vital awareness and funds for those affected by motor neurone disease (MND). Each walk is more than just a fundraising event—it’s a personal journey, a show of solidarity, and a way to honour those we’ve lost. For Donna McKay, this walk is … Read more
The Hewitt whānau is proud to announce two special golf fundraisers, organised in memory of Norm Hewitt, a beloved All Black and rugby stalwart, who passed away in 2024 after living with motor neurone disease (MND). These events are dedicated to supporting Motor Neurone Disease New Zealand (MND NZ), raising vital funds for research, advocacy, … Read more
We’re thrilled to announce that registrations are now open for the 2025 Walk to Defeat MND! This is always our biggest fundraising event of the year and crucial for ensuring we can continue our work. But it’s about far more than just money: it’s an opportunity for us to come together as a community of … Read more
At Motor Neurone Disease New Zealand (MND NZ), we are proud to reflect on a year marked by progress, resilience, and unwavering commitment to our community. The release of our 2023/24 Annual Impact Report offers a snapshot of the strides we’ve made, the challenges we’ve faced, and our vision for a brighter future. A New … Read more