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Lighthouse II is an international clinical trial looking at whether human endogenous retroviruses (HERVs) play a role in MND, and whether the anti-retroviral therapy Triumeq might slow the progression of the disease. The clinical trial in New Zealand is jointly funded by Motor Neurone Disease NZ and the Neurological Foundation. Alan Stanley, Consultant Neurologist and Principal … Read more
Nominations for the David Oliver Beacon Award 2023 are open! The David Oliver Beacon Award is awarded annually, acknowledging, and celebrating those who have made a significant contribution to the MND community. The award is open to individuals, groups, and organisations that make positive contribution, improvement, or innovation in MND support or care. Dr David … Read more
MND NZ Board member Estelle and her husband Geoff have run an annual charity bridge tournament for many years, helping to raise money and awareness for a wide range of causes dearest to the Royle Epsom Bridge Club members. “Because of the tightknit nature of the bridge playing community, bridge tournaments are an amazing way … Read more
TV shows can be a powerful tool, helping to illustrate how various diseases and conditions impact on a person and their loved ones when woven into a storyline. When done well, the storyline can improve the public’s understanding and awareness, and in some cases may even ignite interest from researchers and medical professionals, as has … Read more
Wow, what an incredible June YOU have helped create! Your support means the world to us. Here at Motor Neurone Disease NZ, we see firsthand the cruel blows and unfairness of an MND diagnosis on both the individual and those that love them. We also see the hope and strength you offer through Motor Neurone … Read more
Join us Sunday 23 July on Waiheke Island, for a G&T for MND hosted by Waiheke Distilling Co! The team at this iconic boutique distillery have created a gorgeous blue cocktail to capture the essence of the MND cornflower blue logo and story as part of #MNDActionMonth. The unique cocktail is anchored on Waiheke Distilling … Read more
June is the international awareness month for motor neurone disease. Awareness is great – but there is currently no truly effective treatment and no known cure for MND. We need to take action to change this. Things are at an exciting point in research, and we need to keep the momentum going with funding. We … Read more
Walk 2 D’Feet MND is a volunteer organised and facilitated community event created to raise awareness and vital funds for MND. With a global pandemic overshadowing everything the future of these events being in person was uncertain at best. That is until we were joined by incredibly talented volunteers from Invercargill, the Hawke’s Bay, Palmerston … Read more
In 2022 Allan Bullot completed his now legendary Lord of the Rings inspired Witch King half marathon for Motor Neurone Disease NZ. Along the way he amazed beach goers while walking over 21 kms in a 3 metre tall 15 kilo Witch King of Angmar costume; all while raising over $10,000 for support, research and … Read more
Last week it was announced that Coronation Street character Paul Foreman, will, in the coming weeks, be diagnosed with motor neurone disease. The MND Association in the UK worked closely with the Coronation Street team to ensure the portrayal is as accurate as possible, within the boundaries of a television drama. Read more about the … Read more
Natalie was diagnosed with MND in November of 2022 and as is the case for everyone in this situation had a lot to process and go through along with her loved ones. It was discovered that she has one of the slower progressing versions of MND, so Natalie decided to do everything in her power … Read more
MND NZ is extremely disappointed with Pharmac’s proposal to phase out funding of food thickeners for…