It’s not all hot tea and ice buckets this June! Earlier today Taranaki-born Jon Beardmore was interviewed on One Breakfast about his postman adventure in memory of his dad, who passed away from motor neurone disease 18 months ago. In what he calls “the Galapagos Postman Challenge”, Jon has taken 50 letters from an ancient … Read more
We are very pleased to announce the appointment of Mark Leggett to the permanent role of Chief Executive, after filling the interim position for the last few months. Mark is an experienced senior manager with a background (originally nursing and midwifery) in clinical health services, leading to broad senior executive roles across public and private … Read more
We are thrilled Dr Emma Scotter has been appointed a Member of the New Zealand Order of Merit for outstanding services to motor neurone disease (MND) research, as part of today’s Kings Birthday Honours. We are immensely very grateful to Dr Scotter for her unwavering passion to tackle MND with new approaches and insights, for … Read more
THE GOOD CAFE (formerly the Community Cafe) is a vibrant hub of hospitality and delicious breakfast every Tuesday morning, raising tens of thousands of dollars for various charitable projects. As part of MND Action Month, The Good Café will be raising funds for Motor Neurone Disease NZ on Tuesday, 11 June. “We cook a hot … Read more
Sam Stuchbury Tomorrow’s a new day. There’s light at the end of the tunnel. You can’t stop the waves of life, but you can learn how to surf. Clichés often contain a kernel of truth, which is probably why they gain traction in the first place. And over the past 18 months clichés have made … Read more
Today, as we are celebrating mothers, we are thinking of those who lost their mums to MND, and those mothers walking the hard path of MND.
On Saturday 18 May three New Zealand riders will embark on the cycling trip of a lifetime, traversing the USA, from San Francisco to New York, to raise $51,500 for MND research and support.
This year’s Walk to Defeat MND was a resounding success, bringing together communities from Wellington, Christchurch, and Auckland to raise much needed awareness, not to mention an astounding $123,390 for MND support and research! Through months of planning in whatever spare time that could be spared the tireless dedication of some quite remarkable volunteers were … Read more
Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with motor neurone disease (MND) know this is how their life will end, and with no treatment or cure available, it is a terrifying fate. Tofersen (brand name Qalsody) is an investigational drug developed by the company Biogen to … Read more
Embark on the momentous trek up Mt Kilimanjaro in Tanzania to help support people living with MND. 4 March – 12 March 2025 IMPORTANT NOTE ALL REGISTRATIONS, INCLUDING PAYMENTS, MUST BE COMPLETED WITH INSPIRED ADVENTURES VIA THIS LINK: https://inspiredadventures.com.au/event/mndnz-kilimanjaro-2025/ REGISTER AND PAY HERE Our Challenge Trek to Mt Kilimanjaro is a fantastic collaboration with MND Victoria, who … Read more
Independent Living Services’ Comfortable with Money workshops are back for 2024. Join the programme and take back control of your finances. First intake for 2024: Weekly on Wednesdays from March 13th, 6:30pm-8:00pm online. These FREE online workshops are designed specifically for people living with disability and their families, tāngata whaikaha Māori and tagata sa’ilimalo. Find … Read more
Darren Bidois – a former New Zealand indoor cricket rep who was diagnosed with MND on his 58th birthday – recently candidly shared the everyday realities of living with MND with Duncan Garner as part of the ‘Editor in Chief’ podcast. “His journey is not just a battle with physical decline but a testament to … Read more