We know that time is precious, and our organisation is built on the ethos of making time count. This new series is one way we can spotlight your moments and share them with our MND community, because #nothingisordinary. Willie Hellesoe is an ex league player, who came along to the Warriors Ice Bucket Challenge back … Read more
A new study has recently been published on the difference in levels of proteins associated with neurodegenerative disease
Known for his happy-go-lucky spirit (despite his wife’s description of him as a “serious grumpy old buggar”)
Kua hina he totara i te waonui a TaneA mighty totara has fallen in the forest of Tane. We are deeply saddened that Norm Hewitt’s journey with MND has come to an end. Our thoughts are with his whanau, friends, and all those in the wider community who were touched by the great Norm Hewitt. … Read more
Are you ready to conquer Mt Kilimanjaro? This is your chance to embark on an unforgettable journey while making a difference for people affected by motor neurone disease. In 2025, we’ll embark on the Kilimanjaro Rongai route in Tanzania and reach the summit of 5,895m over nine days. Our Challenge Trek to Mt Kilimanjaro is a … Read more
What could be better than watching supergroup Come Together perform Led Zeppelin IV live in full? Knowing that the price of your ticket is a donation towards the vital work of Motor Neurone Disease NZ, the only charity focused on improving quality of life, funding research and campaigning for people affected by MND in New … Read more
As part of our action Month, the Crowe family held a Cuppa Tea and an Ice Bucket challenge in memory of their husband and dad Ian, who passed away in December last year. The Lower Hutt family hosted 60 friends and family last Sunday, and included our own Moira Young, Support Advisor for the lower … Read more
We’re growing our support! 💙 Motor Neurone Disease NZ was built on the ethos of helping people affected by MND – it’s the cornerstone of all that we do. We’re delighted to be recruiting for a second MND Regional Support Advisor for the South Island, so we can better support those in North Otago (south … Read more
When retired vet Jonathan Spencer found out in 2021 he had motor neurone disease, it was like being hit with a sledgehammer.
We are delighted to share that Rachel Woodworth has recently joined MND NZ as a Support Advisor in the Auckland and Counties Manukau area. Rachel brings with her a wealth of experience in the health and disability sectors. As has become a bit of a tradition, we have put a few questions to Rachel to … Read more
Today is Global MND/ALS Awareness Day 💙🌏 Every year we acknowledge Global MND Day on 21 June, as it is the solstice – a turning point. It symbolises our collective hope that this year we will have a turning point in the search for a future free from MND. Today we are thinking of the … Read more
We are absolutely delighted to share that Bunnings and our wonderful volunteers raised over $30,000 on Saturday. It has been such a privilege to work with the Bunnings staff and stores, and to meet so many people and hear so many stories of MND. Thank you for all your hard work to bring this to … Read more