As part of our action Month, the Crowe family held a Cuppa Tea and an Ice Bucket challenge in memory of their husband and dad Ian, who passed away in December last year. The Lower Hutt family hosted 60 friends and family last Sunday, and included our own Moira Young, Support Advisor for the lower … Read more
We’re growing our support! 💙 Motor Neurone Disease NZ was built on the ethos of helping people affected by MND – it’s the cornerstone of all that we do. We’re delighted to be recruiting for a second MND Regional Support Advisor for the South Island, so we can better support those in North Otago (south … Read more
When retired vet Jonathan Spencer found out in 2021 he had motor neurone disease, it was like being hit with a sledgehammer.
We are delighted to share that Rachel Woodworth has recently joined MND NZ as a Support Advisor in the Auckland and Counties Manukau area. Rachel brings with her a wealth of experience in the health and disability sectors. As has become a bit of a tradition, we have put a few questions to Rachel to … Read more
Today is Global MND/ALS Awareness Day 💙🌏 Every year we acknowledge Global MND Day on 21 June, as it is the solstice – a turning point. It symbolises our collective hope that this year we will have a turning point in the search for a future free from MND. Today we are thinking of the … Read more
We are absolutely delighted to share that Bunnings and our wonderful volunteers raised over $30,000 on Saturday. It has been such a privilege to work with the Bunnings staff and stores, and to meet so many people and hear so many stories of MND. Thank you for all your hard work to bring this to … Read more
As part of MND Action Month, Motor Neurone Disease NZ is teaming up with Bunnings for a NATIONWIDE sausage sizzle on Saturday, 15th June, from 9am to 3pm and we need you! We’re looking for enthusiastic volunteers to assist at 41 Bunnings locations across NZ. Just a couple hours of your time can help make … Read more
When Kristy’s dad Kendall was diagnosed with MND in November 2019, it came as a shock to everyone. “He thought he had a knee injury, and we were expecting him to have surgery and be up and running in no time” recalls Kristy. But this was not to be. The Wellington family managed to squeeze … Read more
It’s not all hot tea and ice buckets this June! Earlier today Taranaki-born Jon Beardmore was interviewed on One Breakfast about his postman adventure in memory of his dad, who passed away from motor neurone disease 18 months ago. In what he calls “the Galapagos Postman Challenge”, Jon has taken 50 letters from an ancient … Read more
We are very pleased to announce the appointment of Mark Leggett to the permanent role of Chief Executive, after filling the interim position for the last few months. Mark is an experienced senior manager with a background (originally nursing and midwifery) in clinical health services, leading to broad senior executive roles across public and private … Read more
We are thrilled Dr Emma Scotter has been appointed a Member of the New Zealand Order of Merit for outstanding services to motor neurone disease (MND) research, as part of today’s Kings Birthday Honours. We are immensely very grateful to Dr Scotter for her unwavering passion to tackle MND with new approaches and insights, for … Read more
THE GOOD CAFE (formerly the Community Cafe) is a vibrant hub of hospitality and delicious breakfast every Tuesday morning, raising tens of thousands of dollars for various charitable projects. As part of MND Action Month, The Good Café will be raising funds for Motor Neurone Disease NZ on Tuesday, 11 June. “We cook a hot … Read more