Jon Beardmore Galapagos Postman on Breakfast

It’s not all hot tea and ice buckets this June! Earlier today Taranaki-born Jon Beardmore was interviewed on One Breakfast about his postman adventure in memory of his dad, who passed away from motor neurone disease 18 months ago. In what he calls “the Galapagos Postman Challenge”, Jon has taken 50 letters from an ancient … Read more

Mark Leggett appointed MND NZ Chief Executive

We are very pleased to announce the appointment of Mark Leggett to the permanent role of Chief Executive, after filling the interim position for the last few months. Mark is an experienced senior manager with a background (originally nursing and midwifery) in clinical health services, leading to broad senior executive roles across public and private … Read more

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We are thrilled Dr Emma Scotter has been appointed a Member of the New Zealand Order of Merit for outstanding services to motor neurone disease (MND) research, as part of today’s Kings Birthday Honours. We are immensely very grateful to Dr Scotter for her unwavering passion to tackle MND with new approaches and insights, for … Read more

Taranaki Cathedral Breakfast

THE GOOD CAFE (formerly the Community Cafe) is a vibrant hub of hospitality and delicious breakfast every Tuesday morning, raising tens of thousands of dollars for various charitable projects. As part of MND Action Month, The Good Café will be raising funds for Motor Neurone Disease NZ on Tuesday, 11 June. “We cook a hot … Read more

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Sam Stuchbury Tomorrow’s a new day. There’s light at the end of the tunnel. You can’t stop the waves of life, but you can learn how to surf. Clichés often contain a kernel of truth, which is probably why they gain traction in the first place. And over the past 18 months clichés have made … Read more

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MND Action Month is back for 2024! Gather your workmates, your whānau, and your friends and let’s do whatever we can to make time count for people with motor neurone disease this June. When raising awareness about tough diseases, like MND, there’s no denying that conversation and connection go a long way. Recognizing this power … Read more

Gerald Patterson preparing for Bike USA

On Saturday 18 May three New Zealand riders will embark on the cycling trip of a lifetime, traversing the USA, from San Francisco to New York, to raise $51,500 for MND research and support.

Make MND a notifiable disease Barton interview

Ally Barton, once an active hiker and gym goer, was diagnosed with MND at just 34, one of the youngest with the condition in New Zealand. Newshub recently interviewed husband Paul – who is calling for better data collection by making MND a “notifiable disease” – at the monthly MND Support Group in Christchurch. Thank … Read more