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Promising research results announced this week from an Australian clinical trial using a compound called copper-ATSM show that the drug is safe and effective in the effort to defeat Motor Neurone Disease. As this breakthrough in research has made headlines, we put together a Q&A with University of Melbourne neuroscientist Associate Professor Peter Crouch to … Read more
The 29th International Symposium on ALS/MND was held on 7-9 December 2018 in Glasgow, UK. This year saw another full and exciting programme with a wide range of topics and presenters from all over the world. For further details on the presentations and presenters from this year’s symposium, please go to https://www.mndassociation.org/symposium/. You may also be … Read more
MND NZ welcomes research into the prevalence of motor neurone disease as we work to better understand this disease in the hope to one day find a cure. The Global Burden of Disease (GBD) study released this week suggests rates in New Zealand may be higher than elsewhere in the world. We plan to meet with the … Read more
Thousands showed up around the country Sunday in support of their loved ones living with MND and to commemorate those they have lost. All around the New Zealand adults, children and dogs dressed up in blue and white outfits, face paint and fundraised to continue nationwide support and advocacy for people living with MND and … Read more
On the 27th and 28th of July, Silvia Hodel and a friend ran a comedy weekend in Marlborough that raised nearly $13,0000 for MND New Zealand and the Graeme Dingle Foundation. Silvia explains how they did it. My sister had been running comedy fundraisers for years, and they were always such a fun night with … Read more
Holidays can be an essential way to recharge your batteries, particularly in times of stress or illness. Getting away from your normal environment and routines can really lift flagging spirits. It is possible to travel and have holidays with MND, with a bit of extra research and preparation. Being outside in New Zealand’s beautiful natural … Read more
“It’s a very exciting time to be involved in MND research. There’s a lot of hope and positivity.” – Professor Matthew Kiernan, Bushell Chair of Neurology, Sydney Medical School The first Australasian MND Symposium, held in March 2018, was an in-depth, technical, fascinating glimpse into current MND research from all over the world. We learned … Read more
This report comes from an experienced traveller who has been affected by MND for a number of years, yet has travelled solo, with his motorised wheelchair from the UK to Japan, North America, Europe and Australasia. Travelling alone, while having advanced MND, and flying long distances is perfectly possible given a bit of thought and … Read more
We invite you to complete our MND Community Survey. This is our biggest ever survey, and your response is crucial to the future strategy and direction of MND New Zealand. We would really appreciate your input. Today we invite you to complete our MND Community Survey. Our service will be shaped by your input today. This … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to health professionals, people living with MND and their families and carers. This update discusses the importance of quality palliative care throughout the course of MND from all health professionals involved. For an easier to read format, please click here … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to allied health professionals, people living with MND and their carers. This update discusses the importance of multidisciplinary teams in providing best practice care for people with MND. For an easier to read format, please click here for a PDF … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to neurologists and researchers with an interest in MND, and people affected by MND who have a strong interest in scientific research. This update discusses some key global and Australian clinical trials in 2018, the current issues in clinical … Read more