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Having entered a nationwide Alert Level 4 COVID-19 lock-down period, we want to let you know what we are doing in response to current situation. Because the Registry is based in the Auckland DHB, we have put plans in place to enable Registry staff to continue to work from home using the hospital’s secure computer … Read more
To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, Due to the COVID-19 pandemic, to ensure that participating in our research remains safe and you don’t need to go out to have scans done or to have blood samples taken, we have decided to pause MRI … Read more
UPDATED 30th March: we now have a dedicated COVID-19 page where you can access up to date information relevant to the Alert Level 4 Lockdown situation. Click here to access our COVID-19 page We’re aware that people living with MND and their families may be concerned about the spread of COVID-19, also known as … Read more
No, we haven’t lost our minds, there really is a plus side to the end of the tax year. Read on to discover what it is! MND New Zealand is a registered charity (The Motor Neurone Disease Association of New Zealand Incorporated – Registration Number: CC35320). If you donated to MND New Zealand during the … Read more
Today, Tuesday 11th February is International Day of Women and Girls in Science! Implemented by the United Nations in 2015, the day celebrates the vital role women play in Science and Technology. With this in mind, it was only fitting that today we introduced you to two young women involved in MND research in New … Read more
Emirates Team New Zealand’s newest boat Te Kāhu, meaning ‘The Hawk’ was rolled out of the shed last week and christened by Ngāti Whātua Ōrākei. On Tuesday, Te Kāhu took to the water, with the MND New Zealand logo prominently displayed on the mainsail! MND New Zealand Managing Director, Carl Sunderland says “With the boat … Read more
Yesterday the Government announced changes to Funded Family Care, designed to make things more equitable. Here’s a brief overview of what’s changing: From 14 April 2020, pay rates for family carers will increase from the minimum wage of $20.50 to $25.50 per hour, which will make a significant difference financially. Carer eligibility is being expanded … Read more
A ground-breaking MND clinical drug trial is about to launch in Scotland. The platform, MND-SMART, is a UK-wide trial which aims to find treatments that can slow, stop or reverse the progression of MND. While clinical trials usually focus on a single drug, MND-SMART will allow more than one treatment to be tested at a … Read more
On Monday 9th December, in conjunction with the MND Research Network, we proudly hosted the Inaugural MND New Zealand Research Conference at the Cordis Hotel in Auckland. It was a momentous occasion, gathering 16 speakers, both national and international experts, to discuss the latest updates in MND Research. The Morning’s session focused on understanding and … Read more
The David Oliver Beacon Award is an annual award that honours, acknowledges and celebrates those who have made a significant contribution to the MND community. The theme for 2019 is: Acknowledging an individual or team making a difference on the journey of people or families living with motor neurone disease. We’re delighted to announce that this … Read more
At our recent 2019 Annual General Meeting, we announced some changes to the National Council for the coming year. Beth Watson and Tony Treloar both retired from council at the meeting. Beth (pictured with Steve Green) came to MND New Zealand in 2001 as the National Executive Officer, and was also part of the previous … Read more
This year, MND New Zealand and Angel Street held the first ever Corporate Ice Bucket Challenge; a new initiative encouraging kiwi businesses to raise awareness of motor neurone disease. As part of the challenge, nominees Calum Haslop (Go Bus Director), Murray Schnuriger (PwC Managing Partner) and Andrew Carpenter (TR Group Managing Director), fundraised in aid … Read more