To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, we hope you are well and thank you for your patience during the COVID-19 pandemic. Now that we are at Level One, we have resumed study enrolment and sample collection and imaging for both our MND genetics … Read more
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David Seymour is living with MND and reflects on the vital role of his family and impacts on them. My family and I have been grappling with the devastation caused by the beast that is MND, for the past three and a half years. For the first six months after receiving the diagnosis of MND, … Read more
Sometimes it’s the simple pleasure in life that are the most enjoyable. For people living with MND, everyday things like going for a walk can be a challenge. To help others understand this, Jos from Wellington put pen to paper and came up with this piece entitled “Going for a walk”. “The sun is shining … Read more
Tomorrow New Zealand moves to Alert Level Two. It has been a long and challenging journey, so the easing of restrictions will be a relief to many, but the golden rule for Alert Level Two is to play it safe. We’re not out of the woods yet, and it’s important to remain vigilant, especially for … Read more
The Ministry of Social Development (MSD) has made some temporary changes to document requirements as part of the COVID-19 response. The changes are helping to make things easier for people and ensure they continue to receive support during this time. Here is an overview of some key changes they’ve made: No medical certificate renewals for … Read more
On Tuesday 28th April, New Zealand will wake up to Alert Level 3. If you’re wondering what this means as someone with an increased risk, we’ll step you through the changes and what to expect. Under Alert Level 3, there will still be significant restrictions on our day-to-day lives. The risk of COVID-19 is reduced … Read more
There’s no doubt that things are pretty challenging for most people at the moment. With any luck, we’re nearly halfway through the lockdown to combat the spread of COVID-19. Adapting to this new, albeit temporary situation is a resilience test for everyone. For some, suddenly being housebound may feel restrictive. For those who are used … Read more
Having entered a nationwide Alert Level 4 COVID-19 lock-down period, we want to let you know what we are doing in response to current situation. Because the Registry is based in the Auckland DHB, we have put plans in place to enable Registry staff to continue to work from home using the hospital’s secure computer … Read more
To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, Due to the COVID-19 pandemic, to ensure that participating in our research remains safe and you don’t need to go out to have scans done or to have blood samples taken, we have decided to pause MRI … Read more
UPDATED 30th March: we now have a dedicated COVID-19 page where you can access up to date information relevant to the Alert Level 4 Lockdown situation. Click here to access our COVID-19 page We’re aware that people living with MND and their families may be concerned about the spread of COVID-19, also known as … Read more
No, we haven’t lost our minds, there really is a plus side to the end of the tax year. Read on to discover what it is! MND New Zealand is a registered charity (The Motor Neurone Disease Association of New Zealand Incorporated – Registration Number: CC35320). If you donated to MND New Zealand during the … Read more
Today, Tuesday 11th February is International Day of Women and Girls in Science! Implemented by the United Nations in 2015, the day celebrates the vital role women play in Science and Technology. With this in mind, it was only fitting that today we introduced you to two young women involved in MND research in New … Read more