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The end of the tax year is almost here! As we are a registered charity (The Motor Neurone Disease Association of New Zealand Incorporated – Registration Number: CC35320), if you donated to MND New Zealand during the 2020 tax year (ending on 31st March 2021), you could be eligible for a tax refund. We estimate … Read more
This year’s symposium was held virtually from 9 – 11 December. For further details on the presentations and presenters from this year’s symposium, please go to https://symposium.mndassociation.org You may also be interested in the cleverly designed ‘Periodic Table of MND Research’ summary of the symposium here: https://symposium.mndassociation.org/periodic-table/
Pictured: Caron Palmer (Deputy Chair, MND New Zealand) and Cos Bruyn (Fulton Hogan Managing Director). Fulton Hogan is this year’s recipient of the David Oliver Beacon Award. The decision was announced at our AGM on Saturday, 31st October. The purpose of the award is for MND New Zealand to honour, acknowledge, and celebrate individuals, groups, … Read more
In light of the most recent COVID-19 lockdown period, affecting Auckland and now lowering of alert levels again across the country, we want to let you know what we are doing in response to the current situation. In March, plans were put in place to enable Registry staff to continue to work from home using … Read more
Results from a study investigating if ‘a lack of social support and perceived stigma contributes to psychological distress in people with MND’ has been accepted for publication in the British Journal of Health Psychology. The study, led by Natalie Leigh from Lancaster University in England, was conducted using an online survey of 77 participants, mainly … Read more
A big thank you to our Foundation Corporate Sponsor Fulton Hogan as we celebrate the one-year anniversary of our partnership and The Fulton Hogan MND New Zealand Support Fund. It takes a team to live with the impacts of MND and we are so proud to have Fulton Hogan as part of the team making … Read more
Walk 2 D’Feet MND is MND New Zealand’s national fundraising event series, organised and led by volunteer supporters. MND New Zealand provides guidance, resources, and support to organise a Walk 2 D’Feet MND event in your local community. Why not join in this summer? Walk 2 D’Feet MND raises vital funds for MND support, information, … Read more
Each week in New Zealand at least two people are diagnosed with MND. This devastating disease impacts hundreds of families throughout New Zealand, yet it’s something many kiwis have little knowledge of. Raising awareness of motor neurone disease is vital. With increased awareness comes increased understanding, which leads to more funding, more research, and eventually … Read more
It takes a team to live with the impacts of MND. Every member of the community plays a valuable part; friends and whānau, health professionals and researchers, volunteers and supporters. As our Foundation Corporate Sponsor, we’re proud to have Fulton Hogan as part of the team making a difference by supporting our vision: Together, we provide … Read more
Last September, we held the first-ever MND Hui at Parliament. The hui offered the chance for people working in various disciplines across healthcare throughout the country to come together and discuss the clinical needs of people living with Motor Neurone Disease in New Zealand. What became apparent throughout the day was that there are regional … Read more
To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, we hope you are well and thank you for your patience during the COVID-19 pandemic. Now that we are at Level One, we have resumed study enrolment and sample collection and imaging for both our MND genetics … Read more
David Seymour is living with MND and reflects on the vital role of his family and impacts on them. My family and I have been grappling with the devastation caused by the beast that is MND, for the past three and a half years. For the first six months after receiving the diagnosis of MND, … Read more