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In this issue:
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By October of this year, a small group of New Zealanders living with Motor Neuron Disease will begin their journey as members of the first-ever international phase 3 MND clinical trial to be offered in New Zealand, across multiple locations. The Lighthouse II trial looks at whether human endogenous retroviruses (HERVs) play a role in … Read more
On Sunday 27th February, our supporters gathered their teams to walk, run, cycle and wheel around their chosen tracks across the country. While the format this year shifted from large group events to individual or small group walks to protect our community while New Zealand is in the red level of the COVID-19 Protection Framework, … Read more
MND New Zealand is delighted to announce the appointment of Scott Arrol as the new Chief Executive. Scott will be joining the team on the 14th of March 2022. Scott has significant experience in the health and not-for-profit sectors, most recently as the Chief Executive for Dementia New Zealand. Prior to this, Scott was the … Read more
Every year, Walk 2 D’Feet is a special fundraising event providing opportunities for our community to come together to remember loved ones, friends, whānau, and honour those living with MND. The funds raised are vital for our organisations continued support for people living with MND. Due to the impacts of COVID-19 and the advice from … Read more
Congratulations to Greg Goldfinch and the incredible team at Colliers Highbrook, who are this year’s David Oliver Beacon Award recipients. The David Oliver Beacon Award is awarded annually, to acknowledge and celebrate those who have made a significant contribution to the MND community. The 2021 theme was “making a positive contribution, improvement, or innovation in … Read more
Thank you to everyone who supported Motor Neurone Disease Awareness Month 2021. To those who boiled the kettle, baked the cakes, endured an icy drenching, sponsored an activity, or dropped a donation in a collection tub. More than 30 Cuppa Tea for MND events were held across New Zealand to mark Motor Neurone Disease Awareness … Read more
As part of Motor Neurone Disease Awareness Month and to mark Global ALS/MND Awareness Day, today we launched a new campaign to help raise awareness of motor neurone disease in New Zealand, and in turn increase support, funding, and research, to benefit those living with the disease. Whangarei-based David Seymour, who was diagnosed with MND … Read more
Raise awareness and funds to make a difference this June! Find out how to get involved below: Share your storyDo you have a story to share about your experiences with MND? We invite you to help raise awareness about MND and its impact on New Zealanders by sharing your story when the time feels right. … Read more
Following the recent resignation of our Chair Greg Horton, we are delighted to announce the appointment of Natalie Thain as interim Chair to our AGM on 30th October. Natalie brings considerable governance experience at board level in a range of organisations, including large private sector organisations; listed companies; local, central, and regional government agencies; non-profits; … Read more
Summary of study provided by lead investigator Paige Thomas (PhD); Rose Centre for Stroke Recovery and Research, Department of Communication Disorders, University of Canterbury, Christchurch Summary of study provided by lead investigator Paige Thomas (PhD); Rose Centre for Stroke Recovery and Research, Department of Communication Disorders, University of Canterbury, Christchurch For individuals with MND swallowing … Read more
Kiwis living with motor neurone disease (MND) are set to benefit from MND New Zealand being the official charity partner of Emirates Team New Zealand for the 36th America’s Cup. Since the partnership was announced in June 2019, the team has helped the charity increase awareness and inspire others to join them in supporting people … Read more