It’s been another busy year at Motor Neurone Disease NZ as we continue to evolve as an organisation, and work even harder to ensure we offer the best, and most appropriate, support that we can. With Christmas fast approaching, we would like to reflect on how privileged we feel to be able to walk alongside … Read more
Earlier this month, Ruth Mylchreest – Waikato local, athlete and Te Whatu Ora- Waikato neurology clinical nurse specialist took on an incredible challenge to raise awareness and funding for people affected by MND and Huntington’s disease. The challenge saw Ruth climb Kakepuku Mountain 10 times – a total distance of around 75km – on a … Read more
Beth Watson was strongly committed to supporting those impacted by MND, and was involved with MND NZ for many years as president, part of the council, and as life member. Recognising the importance of helping young children in understanding what may lie ahead when their loved ones are diagnosed with MND, Beth set out to … Read more
Thanks to the support from Fulton Hogan, we can offer a range of grants to help cover some of the costs associated with a diagnosis of MND. Fulton Hogan became sponsors of the fund in 2019, greatly enhancing the MND NZ support service. Our Regional Support Advisors work with families to navigate and access statutory … Read more
Motor Neurone Disease NZ has been made aware of a change Medsafe has recently made to the prescribing regime for Riluzole (Rilutek). Riluzole can slow the progression for amyotrophic lateral sclerosis (ALS) and progressive bulbar palsy (PBP) – the most common types of MND. Our understanding is that the changes mean GPs no longer can … Read more
Walk 2 D’Feet MND is a volunteer organised and facilitated community event created to raise awareness and vital funds for MND. With a global pandemic overshadowing everything the future of these events being in person was uncertain at best. That is until we were joined by incredibly talented volunteers from Invercargill, the Hawke’s Bay, Palmerston … Read more
Natalie was diagnosed with MND in November of 2022 and as is the case for everyone in this situation had a lot to process and go through along with her loved ones. It was discovered that she has one of the slower progressing versions of MND, so Natalie decided to do everything in her power … Read more
The new season of New Zealand reality TV competition Treasure Island starts Monday 30 January 2023 at 7.30pm, with Joe Cotton competing on behalf of Motor Neurone Disease NZ. The television show will see eight fans of the Celebrity Treasure Island franchise compete against eight former Treasure Island competitors for a chance at $50,000 to … Read more
In his inaugural lecture on 17 October 2022, Professor Shaw gave insight to the remarkable progress recently achieved with a pioneering gene therapy delivery method for patients with spinal muscular atrophy (SMA).  SMA is characterised by the loss of motor neurons, or nerve cells, in the spinal cord and is classified as a motor neuron disease. This progress has sparked a proliferation of … Read more