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A ground-breaking MND clinical drug trial is about to launch in Scotland. The platform, MND-SMART, is a UK-wide trial which aims to find treatments that can slow, stop or reverse the progression of MND. While clinical trials usually focus on a single drug, MND-SMART will allow more than one treatment to be tested at a … Read more

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On Monday 9th December, in conjunction with the MND Research Network, we proudly hosted the Inaugural MND New Zealand Research Conference at the Cordis Hotel in Auckland. It was a momentous occasion, gathering 16 speakers, both national and international experts, to discuss the latest updates in MND Research. The Morning’s session focused on understanding and … Read more

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The David Oliver Beacon Award is an annual award that honours, acknowledges and celebrates those who have made a significant contribution to the MND community.  The theme for 2019 is: Acknowledging an individual or team making a difference on the journey of people or families living with motor neurone disease.  We’re delighted to announce that this … Read more

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At our recent 2019 Annual General Meeting, we announced some changes to the National Council for the coming year. Beth Watson and Tony Treloar both retired from council at the meeting. Beth (pictured with Steve Green) came to MND New Zealand in 2001 as the National Executive Officer, and was also part of the previous … Read more

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This year, MND New Zealand and Angel Street held the first ever Corporate Ice Bucket Challenge; a new initiative encouraging kiwi businesses to raise awareness of motor neurone disease. As part of the challenge, nominees Calum Haslop (Go Bus Director), Murray Schnuriger (PwC Managing Partner) and Andrew Carpenter (TR Group Managing Director), fundraised in aid … Read more

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We’re proud to share the findings of our MND Community Survey, and appreciate the time and effort of those who participated. We know you’ll be keen to see the results, which focused on six key areas: Supporting people with MND Needs of people with MND Connecting with MND New Zealand – people with MND & … Read more

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MND New Zealand was chosen as the charity beneficiary of the Grocery Charity Ball 2019. The premier event on the grocery industry social calendar has directed over $3million to charitable trusts since it began in 2004, with support from sponsor organisations including Foodstuffs, Countdown and the New Zealand Food & Grocery Council. Held at Sky … Read more

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We have been closely following the Medsafe consultation on the changes to the prescribing restrictions of riluzole (trade name ‘Rilutek’). In April we raised concerns that some of our clients had been prescribed riluzole by their general practitioner. Under the Medicines Act 1981, Rilutek can only be prescribed by specialist physicians who care for patients with … Read more

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Research is a vital key that will one day help to unlock a cure for MND. The Centre for Brain Research at Auckland University is currently looking for volunteers to help with a study into the function of the blood-brain barrier in Motor neurone disease, specifically, amyotrophic lateral sclerosis (ALS). Led by Dr Emma Scotter … Read more

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Bright and early this morning, our major supporter, Emirates Team New Zealand revealed their first AC75 monohull boat to the world at Auckland’s Viaduct Harbour. The boat was christened ‘Te Aihe’ (Dolphin) by MND New Zealand representative Marcus Gerbich. Congratulations Emirates Team New Zealand on the successful launch! If you’ve always dreamed of getting up … Read more

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MND New Zealand supports people living with Motor Neurone Disease, their carers, families and whanau, and the Health Professionals who work with them throughout New Zealand. We’re currently on the lookout for new members to join our National Council which meets five times a year to help govern and set the strategic direction for our … Read more

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Living with MND is incredibly challenging, and providing practical support to people living with MND is very important to us. With this in mind – we’re delighted to let you know that in conjunction with Corporate Sponsor, Fulton Hogan, we’ve just launched the Fulton Hogan MND New Zealand Support Fund. The fund has been set … Read more