Sam Stuchbury Tomorrow’s a new day. There’s light at the end of the tunnel. You can’t stop the waves of life, but you can learn how to surf. Clichés often contain a kernel of truth, which is probably why they gain traction in the first place. And over the past 18 months clichés have made … Read more
Today, as we are celebrating mothers, we are thinking of those who lost their mums to MND, and those mothers walking the hard path of MND.
On Saturday 18 May three New Zealand riders will embark on the cycling trip of a lifetime, traversing the USA, from San Francisco to New York, to raise $51,500 for MND research and support.
This year’s Walk to Defeat MND was a resounding success, bringing together communities from Wellington, Christchurch, and Auckland to raise much needed awareness, not to mention an astounding $123,390 for MND support and research! Through months of planning in whatever spare time that could be spared the tireless dedication of some quite remarkable volunteers were … Read more
Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with motor neurone disease (MND) know this is how their life will end, and with no treatment or cure available, it is a terrifying fate. Tofersen (brand name Qalsody) is an investigational drug developed by the company Biogen to … Read more
Embark on the momentous trek up Mt Kilimanjaro in Tanzania to help support people living with MND. 4 March – 12 March 2025 IMPORTANT NOTE ALL REGISTRATIONS, INCLUDING PAYMENTS, MUST BE COMPLETED WITH INSPIRED ADVENTURES VIA THIS LINK: https://inspiredadventures.com.au/event/mndnz-kilimanjaro-2025/ REGISTER AND PAY HERE Our Challenge Trek to Mt Kilimanjaro is a fantastic collaboration with MND Victoria, who … Read more
Independent Living Services’ Comfortable with Money workshops are back for 2024. Join the programme and take back control of your finances. First intake for 2024: Weekly on Wednesdays from March 13th, 6:30pm-8:00pm online. These FREE online workshops are designed specifically for people living with disability and their families, tāngata whaikaha Māori and tagata sa’ilimalo. Find … Read more
Darren Bidois – a former New Zealand indoor cricket rep who was diagnosed with MND on his 58th birthday – recently candidly shared the everyday realities of living with MND with Duncan Garner as part of the ‘Editor in Chief’ podcast. “His journey is not just a battle with physical decline but a testament to … Read more
On Thursday we were privileged to have Dr Emma Scotter, head of the MND Lab at the University of Auckland, and Dr Natalie Gauld, ONZM, Research Advisor and Best Practice Advocate at MND NZ, on the AM Show sofa on Three discussing motor neurone disease and this weekend’s Walk to Defeat MND. If you missed … Read more
Join us for an incredible day out at the iconic Auckland Waterfront on Sunday 25th of February 2024 as we walk, united with compassion and camaraderie, to support people living with MND 💙 Meet at Silo Park, located at the corner of Beaumont Street and Jellicoe Street, Auckland CBD 1010 and just a stones throw … Read more
Join us for an incredible day out at Christchurch’s Hagley Park (southern end) on Sunday 18 February as we walk, united with compassion and camaraderie, to support people living with MND 💙 Don’t miss out on the opportunity to get your loved ones together, connect with the MND community, and enjoy a lovely morning at … Read more
The buzz of the crowd, quiet moments of remembrance, the hug of a stranger who gets it. Walk to Defeat MND community events are positive, powerful, colourful, and life-affirming. People from all walks of life find strength together, united by their experiences with MND, with the shared purpose of creating hope for others. Join us … Read more