Myrddin Gwynedd 
Motor Neurone Disease NZ welcomes the appointment of Professor Hanneke Hulst as the next Director of the Centre for Brain Research (CBR) at Waipapa Taumata Rau, University of Auckland. An internationally respected clinical neuroscientist based at the University of Leiden in the Netherlands, Professor Hulst will begin her role in December 2025. Her research focuses … Read more
Behind every campaign, story, and fundraiser at Motor Neurone Disease NZ is a team of people working with purpose, care, and conviction. In our Staff Spotlight series, we introduce you to the people behind the cause — those who bring connection and heart to their mahi. This month, we meet Marketing & Fundraising Manager Laura … Read more
Wayne Richards is one of many New Zealanders living with motor neurone disease (MND) — and one of many who show us what resilience really looks like. We’re sharing Wayne’s story to highlight the everyday strength, humour, and perspective that shape our community. His message is simple but powerful: tough days don’t take away who … Read more
Buckets were tipped. Brews were poured. But MND Action Month 2025 was more than just fundraising — it was a nationwide effort to raise awareness, start conversations, and support people living with motor neurone disease. Together, we helped make time count. From heartfelt Cuppa Tea parties to exhilarating Ice Bucket Challenges, people all over Aotearoa … Read more
Thanks to the support of Bunnings, our amazing volunteers, and communities across Aotearoa, MND Action Month sizzled its way to a $50,000 milestone — helping make time count for people living with motor neurone disease. On Saturday, 28 June, something special happened across Aotearoa. From Whangārei to Invercargill, 42 Bunnings stores opened their doors and … Read more
The latest edition of MND News has arrived — and it’s filled with stories of courage, connection, and community. Published during MND Action Month, the MND News Winter 2025 issue reflects the heart of what this time of year is all about. Across Aotearoa, people are tipping buckets of ice, pouring cups of tea, and … Read more
For 30 years, it was part of Helen and Keith’s daily ritual — until motor neurone disease slowly took everything away. In this moving first-person reflection, Keith Thomas shares the heartbreak, resilience, and enduring love that defined their final years together. We’re honoured to share Helen’s story as part of MND Action Month — a … Read more
It began with a holiday pottery class — a young girl at the wheel, her mum by her side, both falling quietly in love with clay. Over time, that spark became JMT Ceramics: a mother–daughter studio grounded in patience, creativity, and connection. When Michelle’s partner lost his father to motor neurone disease (MND), the grief … Read more
Today is Global MND/ALS Awareness Day — a date that falls on the solstice for a reason. It’s a turning point. It marks the shift — the return of longer days and a sense of renewal. We remember the lives lost to motor neurone disease (MND), stand with those living with it, and reflect on … Read more
Behind a set of double doors on a quiet West Auckland street sits a place that hums with quiet energy. From the outside, it’s a shed. But to Kevin Norton, it’s home. A sanctuary. A life lived among machines. Now living with motor neurone disease (MND), Kevin has adapted his world around what he loves … Read more
When Isaiah Masters lost his uncle Scott Bowman to motor neurone disease (MND), he didn’t want to sit with the sadness — he wanted to move with it. So, during MND Action Month, he’s turning grief into grit through Scotty’s MND400 — a challenge that’s raw, physical, and deeply personal. Between 16 and 29 June, … Read more
This MND Action Month, we’re proud to share some beautiful new additions to the MND NZ merchandise range — created to raise awareness, honour loved ones, and support the vital work we do alongside people living with motor neurone disease and their whānau. Held every June, MND Action Month is a time to raise awareness, … Read more