THE GOOD CAFE (formerly the Community Cafe) is a vibrant hub of hospitality and delicious breakfast every Tuesday morning, raising tens of thousands of dollars for various charitable projects. As part of MND Action Month, The Good Café will be raising funds for Motor Neurone Disease NZ on Tuesday, 11 June. “We cook a hot … Read more
This week TV3’s Newshub shared a piece on Jimmy King, the first New Zealander with MND to access Tofersen. Tofersen is an investigational drug developed by Biogen to treat SOD1-type MND. Read more and watch the news segment, here: www.newshub.co.nz/home/new-zealand/2024/04/motor-neurone-disease-game-changer-treatment-soon-available-in-new-zealand In people of European descent, SOD1 gene mutations cause about 15-30% of MND cases with … Read more