Ronnie Harris was diagnosed with MND in July 2022, whilst visiting his beloved birthplace, Scotland. It was of course, a devastating blow to Ronnie and Jane, but the way in which they both dealt with the diagnosis and continued to make the very best of the time left together, was an inspiration to all. Ronnie’s … Read more
Jodi Clouston lost her Mum to MND in 2011, a heart-wrenching experience that has driven her to make a difference in the lives of people affected by this devastating condition. In 2023, Jodi had the opportunity to run the New York Marathon as a member of Team ALS, the official charity partner for MND in … Read more
Voice banking is the recording of your natural voice while it is still natural and strong, for the possible eventuality of losing your speech. You can voice bank on a mobile phone, computer, or digital voice recorder. As long as the recordings are produced in MP3 format, they can be used later within a speech … Read more
Join us for an unforgettable night of music and community at Ministry of Folk Presents: A Tribute to Neil Young! Taking place in the historic Auckland Guide Centre in Mt Eden, this special event will feature some of the finest alt-folk talent New Zealand has to offer, all coming together for an important cause—supporting people … Read more
We warmly invite all bridge players to our annual charity bridge tournament on Sunday, 15 September 2024, at 1 pm. Hosted by The Royle Epsom Bridge Club, this event holds special significance as we raise funds for Motor Neurone Disease NZ. For many years, MND NZ Board member Estelle and her late husband Geoff led … Read more
We love having Toni back in the office, and we’ve put a few questions to help get to know her better. What’s your favourite quality about yourself?Hmm that is a tough one! Probably that I am usually able to see/consider things from someone else’s perspective as well as my own. What are you most excited … Read more
We are delighted to let you know that Sarah Mathieson has joined our team as Support Advisor covering the Te Whatu Ora Southern district, starting from 2 September. Sarah is an enrolled nurse and has worked in the acute hospital, hospice and residential care settings as well as in community teams. Sarah has lived in … Read more
Hi, I’m Paul Kelly, a 32-year-old Tasmanian who has been living with motor neurone disease (MND) for the past nine years. I’m excited to announce a special project close to my heart: a poetry collection titled 100 Poems From People Affected by ALS. This anthology will bring together poems from those directly impacted by MND—whether … Read more
We know that time is precious, and our organisation is built on the ethos of making time count. This new series is one way we can spotlight your moments and share them with our MND community, because #nothingisordinary. Willie Hellesoe is an ex league player, who came along to the Warriors Ice Bucket Challenge back … Read more
Known for his happy-go-lucky spirit (despite his wife’s description of him as a “serious grumpy old buggar”)
Kua hina he totara i te waonui a TaneA mighty totara has fallen in the forest of Tane. We are deeply saddened that Norm Hewitt’s journey with MND has come to an end. Our thoughts are with his whanau, friends, and all those in the wider community who were touched by the great Norm Hewitt. … Read more
What could be better than watching supergroup Come Together perform Led Zeppelin IV live in full? Knowing that the price of your ticket is a donation towards the vital work of Motor Neurone Disease NZ, the only charity focused on improving quality of life, funding research and campaigning for people affected by MND in New … Read more