We are delighted to let you know that Sarah Mathieson has joined our team as Support Advisor covering the Te Whatu Ora Southern district, starting from 2 September. Sarah is an enrolled nurse and has worked in the acute hospital, hospice and residential care settings as well as in community teams. Sarah has lived in … Read more
Hi, I’m Paul Kelly, a 32-year-old Tasmanian who has been living with motor neurone disease (MND) for the past nine years. I’m excited to announce a special project close to my heart: a poetry collection titled 100 Poems From People Affected by ALS. This anthology will bring together poems from those directly impacted by MND—whether … Read more
We know that time is precious, and our organisation is built on the ethos of making time count. This new series is one way we can spotlight your moments and share them with our MND community, because #nothingisordinary. Willie Hellesoe is an ex league player, who came along to the Warriors Ice Bucket Challenge back … Read more
Known for his happy-go-lucky spirit (despite his wife’s description of him as a “serious grumpy old buggar”)
Kua hina he totara i te waonui a TaneA mighty totara has fallen in the forest of Tane. We are deeply saddened that Norm Hewitt’s journey with MND has come to an end. Our thoughts are with his whanau, friends, and all those in the wider community who were touched by the great Norm Hewitt. … Read more
What could be better than watching supergroup Come Together perform Led Zeppelin IV live in full? Knowing that the price of your ticket is a donation towards the vital work of Motor Neurone Disease NZ, the only charity focused on improving quality of life, funding research and campaigning for people affected by MND in New … Read more
As part of our action Month, the Crowe family held a Cuppa Tea and an Ice Bucket challenge in memory of their husband and dad Ian, who passed away in December last year. The Lower Hutt family hosted 60 friends and family last Sunday, and included our own Moira Young, Support Advisor for the lower … Read more
We’re growing our support! 💙 Motor Neurone Disease NZ was built on the ethos of helping people affected by MND – it’s the cornerstone of all that we do. We’re delighted to be recruiting for a second MND Regional Support Advisor for the South Island, so we can better support those in North Otago (south … Read more
When retired vet Jonathan Spencer found out in 2021 he had motor neurone disease, it was like being hit with a sledgehammer.
Today is Global MND/ALS Awareness Day 💙🌏 Every year we acknowledge Global MND Day on 21 June, as it is the solstice – a turning point. It symbolises our collective hope that this year we will have a turning point in the search for a future free from MND. Today we are thinking of the … Read more
When Kristy’s dad Kendall was diagnosed with MND in November 2019, it came as a shock to everyone. “He thought he had a knee injury, and we were expecting him to have surgery and be up and running in no time” recalls Kristy. But this was not to be. The Wellington family managed to squeeze … Read more
It’s not all hot tea and ice buckets this June! Earlier today Taranaki-born Jon Beardmore was interviewed on One Breakfast about his postman adventure in memory of his dad, who passed away from motor neurone disease 18 months ago. In what he calls “the Galapagos Postman Challenge”, Jon has taken 50 letters from an ancient … Read more