Last September, we held the first-ever MND Hui at Parliament. The hui offered the chance for people working in various disciplines across healthcare throughout the country to come together and discuss the clinical needs of people living with Motor Neurone Disease in New Zealand. What became apparent throughout the day was that there are regional … Read more

To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, we hope you are well and thank you for your patience during the COVID-19 pandemic.  Now that we are at Level One, we have resumed study enrolment and sample collection and imaging for both our MND genetics … Read more

Dr Emma Scotter

To all participants and potential participants in our University of Auckland/ADHB MND genetics screening and MRI scanning studies, Due to the COVID-19 pandemic, to ensure that participating in our research remains safe and you don’t need to go out to have scans done or to have blood samples taken, we have decided to pause MRI … Read more

A ground-breaking MND clinical drug trial is about to launch in Scotland. The platform, MND-SMART, is a UK-wide trial which aims to find treatments that can slow, stop or reverse the progression of MND. While clinical trials usually focus on a single drug, MND-SMART will allow more than one treatment to be tested at a … Read more

On Monday 9th December, in conjunction with the MND Research Network, we proudly hosted the Inaugural MND New Zealand Research Conference at the Cordis Hotel in Auckland. It was a momentous occasion, gathering 16 speakers, both national and international experts, to discuss the latest updates in MND Research. The Morning’s session focused on understanding and … Read more

As part of MND Awareness Week 2019 (17-23 June) and to celebrate Global MND Awareness Day on 21st June, MND New Zealand hosted “An update on MND Research – Homegrown and Abroad” in Auckland with guest speakers Professor Chris Shaw, Dr Emma Scotter , MND Registry Curator Kerry Walker and MND New Zealand Community & … Read more

Led by Grace Chen from Massey University, Wellington the first paper in the series of epidemiological studies into MND has been published. The first paper and findings – Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the … Read more

Promising research results announced this week from an Australian clinical trial using a compound called copper-ATSM show that the drug is safe and effective in the effort to defeat Motor Neurone Disease. As this breakthrough in research has made headlines, we put together a Q&A with University of Melbourne neuroscientist Associate Professor Peter Crouch to … Read more

Fight MND Symposium 2018

“It’s a very exciting time to be involved in MND research. There’s a lot of hope and positivity.” – Professor Matthew Kiernan, Bushell Chair of Neurology, Sydney Medical School The first Australasian MND Symposium, held in March 2018, was an in-depth, technical, fascinating glimpse into current MND research from all over the world. We learned … Read more

MND Community Survey 2018

We invite you to complete our MND Community Survey. This is our biggest ever survey, and your response is crucial to the future strategy and direction of MND New Zealand. We would really appreciate your input. Today we invite you to complete our MND Community Survey. Our service will be shaped by your input today. This … Read more

A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to health professionals, people living with MND and their families and carers. This update discusses the importance of quality palliative care throughout the course of MND from all health professionals involved. For an easier to read format, please click here … Read more

A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to allied health professionals, people living with MND and their carers. This update discusses the importance of multidisciplinary teams in providing best practice care for people with MND. For an easier to read format, please click here for a PDF … Read more