Having the right to choose assisted dying has become a global debate. Lobbying, submissions and protests have urged governments to look at current laws and work towards more compassionate policy around assisted dying and provisions to protect the most vulnerable. Victoria, Australia made headlines in 2017 when it passed the Voluntary Assisted Dying Bill becoming … Read more
We are excited to launch our new MND New Zealand Forum. The forum is an online community for people living with or affected by MND to share experiences and support one another. The forum replaces the existing Facebook group KIWIPALS and is be available via our website here Forum. MND New Zealand Community and Research Advisor … Read more
If you’d like to participate please contact Dr. Emma Scotter via email: MND New Zealand proudly helps fund vital research at the Centre for Brain Research at the University of Auckland and supports the latest genetics study. Dr. Emma Scotter (Centre for Brain Research, University of Auckland), Dr. Richard Roxburgh (Neurogenetics Clinic, Auckland City … Read more
We invite you to complete our MND Community Survey. This is our biggest ever survey, and your response is crucial to the future strategy and direction of MND New Zealand. We would really appreciate your input. Today we invite you to complete our MND Community Survey. Our service will be shaped by your input today. This … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to health professionals, people living with MND and their families and carers. This update discusses the importance of quality palliative care throughout the course of MND from all health professionals involved. For an easier to read format, please click here … Read more
MND New Zealand appreciates that many people in our community have strong views about assisted dying, both in favour and against. We choose to remain neutral as an organisation, but made a submission to the Select Committee to ensure that any rights that could be created by the End of Life Choice Bill do not … Read more
We are please to introduce the ‘Review of Current Research Regarding the use of Medicinal Cannabis for MS and MND Symptom Management’, jointly commissioned by Multiple Sclerosis NZ and MND New Zealand. The review suggests that medicinal cannabis can provide some relief from pain and spasticity for people with MND. There are also risks involved. … Read more
We are thrilled to announce that the website of the New Zealand MND Research Network (www.mndresearch.auckland.ac.nz) launched on November 1st 2017. We are thrilled to announce that the website of the New Zealand MND Research Network (www.mndresearch.auckland.ac.nz) launched on November 1st 2017. The Research Network website’s purpose is to provide a central location informing others … Read more
The New Zealand MND Registry was launched in May 2017, just 8 months after 4000 participants in the Walk 2 D’Feet MND fundraised to establish the Registry. The New Zealand Motor Neurone Disease Registry was launched on on Monday 22 May 2017, just eight months after 4000 participants in 14 fundraising walks all over New … Read more