On Monday 9th December, in conjunction with the MND Research Network, we proudly hosted the Inaugural MND New Zealand Research Conference at the Cordis Hotel in Auckland. It was a momentous occasion, gathering 16 speakers, both national and international experts, to discuss the latest updates in MND Research. The Morning’s session focused on understanding and … Read more
At our recent 2019 Annual General Meeting, we announced some changes to the National Council for the coming year. Beth Watson and Tony Treloar both retired from council at the meeting. Beth (pictured with Steve Green) came to MND New Zealand in 2001 as the National Executive Officer, and was also part of the previous … Read more
MND New Zealand supports people living with Motor Neurone Disease, their carers, families and whanau, and the Health Professionals who work with them throughout New Zealand. We’re currently on the lookout for new members to join our National Council which meets five times a year to help govern and set the strategic direction for our … Read more
MND New Zealand are proud to share our Strategic Plan for the next 3 years. The 2019-2022 plan (July-June) is the result of the collaborative work undertaken on behalf of the MND community by MND New Zealand staff and National Council members. It is also a result of the in-depth consultation with our wide range … Read more
Following our 3rd April article, ‘Prescribing of Rilutek (Riluzole) – What you need to know’, we would like to update you on current progress. Recently it has come to our attention that some of our clients have been prescribed the drug Riluzole (trade name “Rilutek”) by their General Practitioner. Under the Medicines Act 1981, Rilutek can … Read more
As part of MND Awareness Week 2019 (17-23 June) and to celebrate Global MND Awareness Day on 21st June, MND New Zealand hosted “An update on MND Research – Homegrown and Abroad” in Auckland with guest speakers Professor Chris Shaw, Dr Emma Scotter , MND Registry Curator Kerry Walker and MND New Zealand Community & … Read more
As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. MND New Zealand’s Research Strategy aims to develop a globally connected, … Read more
Having the right to choose assisted dying has become a global debate. Lobbying, submissions and protests have urged governments to look at current laws and work towards more compassionate policy around assisted dying and provisions to protect the most vulnerable. Victoria, Australia made headlines in 2017 when it passed the Voluntary Assisted Dying Bill becoming … Read more
MND New Zealand is proud to announce our newest member to our Support Team, Elise Doyer. Pronounced ‘Elisa,’ Elise comes with a very strong and diverse background and is a great addition to our Support Team. If you are in the region Elise serves, visit our Support Team page for her contact information. Elise introduces … Read more
We are excited to launch our new MND New Zealand Forum. The forum is an online community for people living with or affected by MND to share experiences and support one another. The forum replaces the existing Facebook group KIWIPALS and is be available via our website here Forum. MND New Zealand Community and Research Advisor … Read more
If you’d like to participate please contact Dr. Emma Scotter via email: MND New Zealand proudly helps fund vital research at the Centre for Brain Research at the University of Auckland and supports the latest genetics study. Dr. Emma Scotter (Centre for Brain Research, University of Auckland), Dr. Richard Roxburgh (Neurogenetics Clinic, Auckland City … Read more
Meeting the needs of people living with MND and their families and carers is a vital part of MND New Zealand’s mission. Our team of 7 MND support team members around New Zealand provide information, support, awareness and advocacy for clients, carers, whanau and the health professionals working with people with MND. Support team leader … Read more