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MND New Zealand (the Motor Neurone Disease Association of New Zealand) are to partner with Emirates Team New Zealand as the official charity of the Team for the 36th America’s Cup. Motor Neurone Disease (MND) causes the muscles that enable us to move, speak, swallow and breathe to gradually stop working. New Zealand has the … Read more

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The Motor Neurone Disease Association of New Zealand (MND NZ) and Fulton Hogan have announced a three-year partnership to enhance the quality of life for people living with motor neurone disease. New Zealand has the highest known rate of motor neurone disease (MND) in the world, with an average of two people per week diagnosed … Read more

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As part of MND Awareness Week 2019 (17-23 June) and to celebrate Global MND Awareness Day on 21st June, MND New Zealand invite you to join us for “An update on MND Research – Homegrown and Abroad” with guest speakers Professor Chris Shaw, Dr Emma Scotter and MND Registry Curator Kerry Walker. Afternoon tea will … Read more

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Led by Grace Chen from Massey University, Wellington the first paper in the series of epidemiological studies into MND has been published. The first paper and findings – Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the … Read more

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Paul Manning knows first-hand the effects of opiate-based pain killers. Having experienced chronic pain for over 15 years, he relied on his doctor and pharmacist to help him with pain management. Paul then found out the opiate-based pain killers had burned a hole in his stomach. “I thought there must be a more natural way to manage … Read more

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The David Oliver Beacon Award is open for 2019 submissions. This year’s theme is: Acknowledging an individual or team making a difference on the journey of people or families living with motor neurone disease. Dr David Oliver, internationally acclaimed physician who has dedicated much of his life to enhancing the quality of life of people … Read more

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Having the right to choose assisted dying has become a global debate. Lobbying, submissions and protests have urged governments to look at current laws and work towards more compassionate policy around assisted dying and provisions to protect the most vulnerable. Victoria, Australia made headlines in 2017 when it passed the Voluntary Assisted Dying Bill becoming … Read more

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MND New Zealand is proud to announce our newest member to our Support Team, Elise Doyer. Pronounced ‘Elisa,’ Elise comes with a very strong and diverse background and is a great addition to our Support Team. If you are in the region Elise serves, visit our Support Team page for her contact information. Elise introduces … Read more

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A recent report surveying over 900 affected families and care organisations about the carer laws has been released with an overwhelming agreement for better pay, removal of the paid 40-hour- a-week cap and better rights for carers. The unpaid work of carers has an annual economic value of more than $7 billion NZD, making the … Read more

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If you’d like to participate please contact Dr. Emma Scotter via email: MND New Zealand proudly helps fund vital research at the Centre for Brain Research at the University of Auckland and supports the latest genetics study. Dr. Emma Scotter (Centre for Brain Research, University of Auckland), Dr. Richard Roxburgh (Neurogenetics Clinic, Auckland City … Read more

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Meeting the needs of people living with MND and their families and carers is a vital part of MND New Zealand’s mission. Our team of 7 MND support team members around New Zealand provide information, support, awareness and advocacy for clients, carers, whanau and the health professionals working with people with MND. Support team leader … Read more

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We are thrilled to announce MND New Zealand volunteers and fundraisers have achieved an amazing $220, 532 dollars for support and research! Thank you to everyone who participated, donated and supported the Walk 2 D’Feet MND on November 11th 2018, we could not have done it without you. MND New Zealand Fundraising Manager Kate Dalders … Read more