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West Coast woman Samarra Wright is one of three people in her family currently living with MND .The SOD1 Gene responsible for familial MND is prevalent in Samarra’s family – 32 of her family members have been identified as carrying the gene. Samarra along with her husband and children recently worked with Attitude TV, creating … Read more

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MND New Zealand are proud to share our Strategic Plan for the next 3 years. The 2019-2022 plan (July-June) is the result of the collaborative work undertaken on behalf of the MND community by MND New Zealand staff and National Council members. It is also a result of the in-depth consultation with our wide range … Read more

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Following our 3rd April article, ‘Prescribing of Rilutek (Riluzole) – What you need to know’, we would like to update you on current progress. Recently it has come to our attention that some of our clients have been prescribed the drug Riluzole (trade name “Rilutek”) by their General Practitioner. Under the Medicines Act 1981, Rilutek can … Read more

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As part of MND Awareness Week 2019 (17-23 June) and to celebrate Global MND Awareness Day on 21st June, MND New Zealand hosted “An update on MND Research – Homegrown and Abroad” in Auckland with guest speakers Professor Chris Shaw, Dr Emma Scotter , MND Registry Curator Kerry Walker and MND New Zealand Community & … Read more

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As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration.  MND New Zealand’s Research Strategy aims to develop a globally connected, … Read more

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MND New Zealand (the Motor Neurone Disease Association of New Zealand) are to partner with Emirates Team New Zealand as the official charity of the Team for the 36th America’s Cup. Motor Neurone Disease (MND) causes the muscles that enable us to move, speak, swallow and breathe to gradually stop working. New Zealand has the … Read more

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The Motor Neurone Disease Association of New Zealand (MND NZ) and Fulton Hogan have announced a three-year partnership to enhance the quality of life for people living with motor neurone disease. New Zealand has the highest known rate of motor neurone disease (MND) in the world, with an average of two people per week diagnosed … Read more

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As part of MND Awareness Week 2019 (17-23 June) and to celebrate Global MND Awareness Day on 21st June, MND New Zealand invite you to join us for “An update on MND Research – Homegrown and Abroad” with guest speakers Professor Chris Shaw, Dr Emma Scotter and MND Registry Curator Kerry Walker. Afternoon tea will … Read more

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Led by Grace Chen from Massey University, Wellington the first paper in the series of epidemiological studies into MND has been published. The first paper and findings – Occupation and Motor Neurone Disease: a New Zealand case-control study – has been published in Occupational & Environmental Medicine. Please click on the link below to access the … Read more

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Paul Manning knows first-hand the effects of opiate-based pain killers. Having experienced chronic pain for over 15 years, he relied on his doctor and pharmacist to help him with pain management. Paul then found out the opiate-based pain killers had burned a hole in his stomach. “I thought there must be a more natural way to manage … Read more

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The David Oliver Beacon Award is open for 2019 submissions. This year’s theme is: Acknowledging an individual or team making a difference on the journey of people or families living with motor neurone disease. Dr David Oliver, internationally acclaimed physician who has dedicated much of his life to enhancing the quality of life of people … Read more

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Having the right to choose assisted dying has become a global debate. Lobbying, submissions and protests have urged governments to look at current laws and work towards more compassionate policy around assisted dying and provisions to protect the most vulnerable. Victoria, Australia made headlines in 2017 when it passed the Voluntary Assisted Dying Bill becoming … Read more