MND New Zealand are proud to share our Strategic Plan for the next 3 years. The 2019-2022 plan (July-June) is the result of the collaborative work undertaken on behalf of the MND community by MND New Zealand staff and National Council members. It is also a result of the in-depth consultation with our wide range … Read more
Following our 3rd April article, ‘Prescribing of Rilutek (Riluzole) – What you need to know’, we would like to update you on current progress. Recently it has come to our attention that some of our clients have been prescribed the drug Riluzole (trade name “Rilutek”) by their General Practitioner. Under the Medicines Act 1981, Rilutek can … Read more
As part of MND Awareness Week 2019 (17-23 June) and to celebrate Global MND Awareness Day on 21st June, MND New Zealand hosted “An update on MND Research – Homegrown and Abroad” in Auckland with guest speakers Professor Chris Shaw, Dr Emma Scotter , MND Registry Curator Kerry Walker and MND New Zealand Community & … Read more
As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. As part of Awareness Week 2019, MND New Zealand launch their 3 year research strategy focusing on cure, care, communication and collaboration. MND New Zealand’s Research Strategy aims to develop a globally connected, … Read more
Having the right to choose assisted dying has become a global debate. Lobbying, submissions and protests have urged governments to look at current laws and work towards more compassionate policy around assisted dying and provisions to protect the most vulnerable. Victoria, Australia made headlines in 2017 when it passed the Voluntary Assisted Dying Bill becoming … Read more
MND New Zealand is proud to announce our newest member to our Support Team, Elise Doyer. Pronounced ‘Elisa,’ Elise comes with a very strong and diverse background and is a great addition to our Support Team. If you are in the region Elise serves, visit our Support Team page for her contact information. Elise introduces … Read more
If you’d like to participate please contact Dr. Emma Scotter via email: MND New Zealand proudly helps fund vital research at the Centre for Brain Research at the University of Auckland and supports the latest genetics study. Dr. Emma Scotter (Centre for Brain Research, University of Auckland), Dr. Richard Roxburgh (Neurogenetics Clinic, Auckland City … Read more
Meeting the needs of people living with MND and their families and carers is a vital part of MND New Zealand’s mission. Our team of 7 MND support team members around New Zealand provide information, support, awareness and advocacy for clients, carers, whanau and the health professionals working with people with MND. Support team leader … Read more
We invite you to complete our MND Community Survey. This is our biggest ever survey, and your response is crucial to the future strategy and direction of MND New Zealand. We would really appreciate your input. Today we invite you to complete our MND Community Survey. Our service will be shaped by your input today. This … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to health professionals, people living with MND and their families and carers. This update discusses the importance of quality palliative care throughout the course of MND from all health professionals involved. For an easier to read format, please click here … Read more
MND New Zealand appreciates that many people in our community have strong views about assisted dying, both in favour and against. We choose to remain neutral as an organisation, but made a submission to the Select Committee to ensure that any rights that could be created by the End of Life Choice Bill do not … Read more
We are please to introduce the ‘Review of Current Research Regarding the use of Medicinal Cannabis for MS and MND Symptom Management’, jointly commissioned by Multiple Sclerosis NZ and MND New Zealand. The review suggests that medicinal cannabis can provide some relief from pain and spasticity for people with MND. There are also risks involved. … Read more