June is MND Action Month — a time to take action, raise awareness, and make time count for New Zealanders living with motor neurone disease (MND). MND is a rapidly progressing, incurable disease that robs people of their ability to move, talk, eat, and eventually breathe. On average, a person diagnosed with MND in Aotearoa … Read more
From diagnosis to determination When Phillipa MacDonald was diagnosed with motor neurone disease (MND) on her 55th birthday, her world changed overnight. Once a practice nurse and competitive bodybuilder, she suddenly faced the challenges of progressive bulbar palsy (PBP), a form of MND that affects speech and mobility. Determined to raise awareness and support for … Read more
Motor neurone disease (MND) research is advancing at pace, with new discoveries bringing hope to those affected. The team at the University of Auckland’s MND Research Lab is working to uncover the genetic causes of MND in New Zealanders, develop targeted therapies, and improve support for families. Thanks to the generosity of MND NZ and … Read more
Months of hard work, dedication, and planning went into making the 2025 Walk to Defeat MND a reality. But no amount of preparation could create the energy, passion, and impact that people bring to this event. The walk is nothing without the individuals, families, and teams who show up—not just to take steps, but to … Read more
For Jeremy Benton, the Walk to Defeat MND isn’t just another fundraising event—it’s a personal journey. Every year, he dedicates countless hours to ensuring the Christchurch walk is a success, helping to unite people in support of those affected by Motor Neurone Disease (MND). His motivation? Honouring the memory of his grandfather, who passed away … Read more
Across Aotearoa, communities are coming together for the Walk to Defeat MND, raising vital awareness and funds for those affected by motor neurone disease (MND). Each walk is more than just a fundraising event—it’s a personal journey, a show of solidarity, and a way to honour those we’ve lost. For Donna McKay, this walk is … Read more
We’re thrilled to announce that registrations are now open for the 2025 Walk to Defeat MND! This is always our biggest fundraising event of the year and crucial for ensuring we can continue our work. But it’s about far more than just money: it’s an opportunity for us to come together as a community of … Read more
Start off your year on a positive note by volunteering on Saturday 22 February 2025 in Auckland, Wellington, or Christchurch. Walk to Defeat MND brings communities together to walk in honour, memory, and in support of people affected by MND and raise awareness and much needed funds for research and support. Walks vary between 2-3km, … Read more
New Zealander Jon Beardmore is on a mission to reconnect the world, and at the same time raise funds and awareness of motor neurone disease (MND) in memory of his dad, Eric, who died in 2022 after living with MND for eight years. While on a trip to the Galapagos Islands in 2023, Jon spotted … Read more
We’re excited to announce the 2025 Walk to Defeat MND will take place on Saturday, 22 February! Join us in Auckland, Wellington, or Christchurch for a day of solidarity and support: Further details will be published soon. Community WalksCan’t make it to an official location? You can organise your own community walk! Whether you’re personally … Read more
On Saturday 21 September our friends at North Otago Rugby Football Union (NORFU) hosted a special day of rugby at Weston Sports Ground to raise awareness and vital funds for MND. The day kicked off with a North Otago v Mid Canterbury match, with the NORFU team running out in special charity branded one-off jerseys, … Read more
We’re Mat and Darren Bowling — brothers, fathers, partners, and sons. Last year, our dad became one of the many people in New Zealand taken by motor neurone disease (MND). It’s a cruel, unforgiving illness. Everyone diagnosed with MND faces the same devastating prognosis: there’re no truly effective treatment options, and no cure. When we … Read more