May 18, 2026
Lost in limbo: the long and frustrating road to an MND diagnosis
For many people, motor neurone disease (MND) begins in confusion. Early symptoms are often missed or misunderstood,…
Awareness Articles
1 - 5 of 5 posts
Advocacy, Awareness, Community, Education
Awareness, Community, Living with MND, Personal Stories
May 7, 2026
Seeds of connection: A pumpkin festival, the natural world and life with MND Â
Loren Hope (44) is a passionate advocate for te taiao* (the natural world) and the power of…
Awareness, Community, Fundraising
May 7, 2026
Bunnings x MND NZ: Sausage sizzles, ice buckets, and making time count
Every week in Aotearoa, two people are diagnosed with motor neurone disease (MND). Two more die from…
Awareness, Community, Fundraising
May 5, 2026
MND Action Month 2026: Tip a bucket. Pour a brew. Make time count.
June is MND Action Month — a time to act, raise awareness, and make time count for…
Advocacy, Awareness, Community, Research
February 23, 2026
MND NZ meets with Minister of Health to advocate for change
MND NZ CE Mark Leggett and MND NZ Research Advisor Dr Natalie Gauld met with the Minister…
Awareness, Community, Fundraising
February 10, 2026
Silvia Hodel turns jewellery hobby into fundraiser to honour sister
In September 2016, Shauntelle Schreuder (L), a 40-year-old mother-of-two, was diagnosed with motor neurone disease (MND). Shauntelle’s…
Awareness, Living with MND, Personal Stories
January 29, 2026
Blair Cox: 14-hour extreme triathlons to MND diagnosis
Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…
Awareness, Community, Living with MND, Personal Stories
January 14, 2026
Still Time: Reflections on love, loss and life
Robyn Pryor didn’t set out to write a book. In 2022, when motor neurone disease (MND) forced…
Advocacy, Awareness, Treatments
December 16, 2025
Government urged to fund liquid riluzole for people with MND
Motor Neurone Disease NZ is calling for the Government to urgently introduce and fund liquid riluzole for…
Awareness, Community, Fundraising
December 10, 2025
When art mirrors life: the powerful layers of creativity
Helen Casey-MacDuff has a lifelong-artist’s view of the world and as an art educator she encourages others…
Awareness, Community, Fundraising
December 9, 2025
Jackie’s response: a 24-hour gym challenge
Photo: Jackie Keenan (R) rides with her dad, Craig, and sister Hannah When Jackie Keenan’s dad was…
Awareness, Community, Events
September 15, 2025
MND NZ Reappointed as Official Charity Partner for 2026 NZ Masters Games
We’re proud to share that Motor Neurone Disease NZ has once again been named the official charity partner…