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This report comes from an experienced traveller who has been affected by MND for a number of years, yet has travelled solo, with his motorised wheelchair from the UK to Japan, North America, Europe and Australasia. Travelling alone, while having advanced MND, and flying long distances is perfectly possible given a bit of thought and … Read more
We invite you to complete our MND Community Survey. This is our biggest ever survey, and your response is crucial to the future strategy and direction of MND New Zealand. We would really appreciate your input. Today we invite you to complete our MND Community Survey. Our service will be shaped by your input today. This … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to health professionals, people living with MND and their families and carers. This update discusses the importance of quality palliative care throughout the course of MND from all health professionals involved. For an easier to read format, please click here … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to allied health professionals, people living with MND and their carers. This update discusses the importance of multidisciplinary teams in providing best practice care for people with MND. For an easier to read format, please click here for a PDF … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to neurologists and researchers with an interest in MND, and people affected by MND who have a strong interest in scientific research. This update discusses some key global and Australian clinical trials in 2018, the current issues in clinical … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to neurologists and researchers with an interest in MND, and people affected by MND who have a strong interest in scientific research. This update discusses the early 2018 drug development pipeline and our current understanding of the disease mechanisms … Read more
A summary of research from the 2018 Australasian MND Symposium. This information will be of interest to people with MND, their carers and health professionals. Below is a broad update about developments in research towards a cure and understanding the causes of MND, including a proposed staging system for MND (similar to that used for … Read more
A summary of research from the 2018 Australasian MND Symposium, regarding the clinical management of MND. This information will be of interest to allied health professionals who work with people with MND in New Zealand. It includes advice about communicating about sensitive subjects, new respiratory research, and developments in assistive communication technology. 1. Clinical Management … Read more
MND New Zealand appreciates that many people in our community have strong views about assisted dying, both in favour and against. We choose to remain neutral as an organisation, but made a submission to the Select Committee to ensure that any rights that could be created by the End of Life Choice Bill do not … Read more
Live updates from the Australasian MND Symposium, March 23, 2018. Written by a non-scientist for a layperson audience. This means we’re skipping the complicated science and going straight for the highlights. Typing fast and editing slow, so excuse spelling mistakes. UPDATES FROM AUSTRALIA AND THE WORLD 8:45am Carol Birks (CEO, MND Australia) – 10 years … Read more
Live updates from the Australasian MND Symposium, March 23, 2018. Written by a non-scientist for a layperson audience. This means we’re skipping the complicated science and going straight for the highlights. Typing fast and editing slow, so excuse spelling mistakes. DRUG DEVELOPMENT AND CLINICAL TRIAL DESIGN SESSION 8:30am Dr Lucie Bruijn – Opportunities and Advances … Read more
Live updates from the Australasian MND Symposium, March 22, 2018. Written by a non-scientist for a layperson audience. This means we’re skipping the complicated science and going straight for the highlights. Typing fast and editing slow, so excuse spelling mistakes. The team from MND New Zealand are at the inaugural Australasian MND Symposium hosted by … Read more