The David Oliver Beacon Award is open for 2019 submissions. This year’s theme is: Acknowledging an individual or team making a difference on the journey of people or families living with motor neurone disease. Dr David Oliver, internationally acclaimed physician who has dedicated much of his life to enhancing the quality of life of people … Read more
Having the right to choose assisted dying has become a global debate. Lobbying, submissions and protests have urged governments to look at current laws and work towards more compassionate policy around assisted dying and provisions to protect the most vulnerable. Victoria, Australia made headlines in 2017 when it passed the Voluntary Assisted Dying Bill becoming … Read more
MND New Zealand is proud to announce our newest member to our Support Team, Elise Doyer. Pronounced ‘Elisa,’ Elise comes with a very strong and diverse background and is a great addition to our Support Team. If you are in the region Elise serves, visit our Support Team page for her contact information. Elise introduces … Read more
We are excited to launch our new MND New Zealand Forum. The forum is an online community for people living with or affected by MND to share experiences and support one another. The forum replaces the existing Facebook group KIWIPALS and is be available via our website here Forum. MND New Zealand Community and Research Advisor … Read more
A recent report surveying over 900 affected families and care organisations about the carer laws has been released with an overwhelming agreement for better pay, removal of the paid 40-hour- a-week cap and better rights for carers. The unpaid work of carers has an annual economic value of more than $7 billion NZD, making the … Read more
MND Community & Research Advisor Dr. Claire Reilly explains best practice when being prescribed Rilutek (Riluzole). Riluzole is the only drug funded for the treatment of MND in New Zealand. Recently it has come to our attention that some of our clients have been prescribed the drug Riluzole (trade name “Rilutek”) by their general practitioner. … Read more