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Make MND a notifiable disease Barton interview
Personal Stories, Research

Call for data collection: Newshub interview with Paul

Ally Barton, once an active hiker and gym goer, was diagnosed with MND at just 34, one…

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Personal Stories, Treatments

First New Zealander on Tofersen: Newshub interview with Jimmy

This week TV3’s Newshub shared a piece on Jimmy King, the first New Zealander with MND to…

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Two participants in Walk to Defeat MND
Community, Events

Walk to Defeat MND: A Step Forward

This year’s Walk to Defeat MND was a resounding success, bringing together communities from Wellington, Christchurch, and…

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Advocacy, Clinical News

Motor Neurone Disease: investigational drug granted accelerated approval

Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with…

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Beth Watson

Beth Watson and MND NZ

There are many people who have contributed to MND NZ over its past decades, but possibly none…

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Mt Kilimanjaro Trek 2025

Embark on the momentous trek up Mt Kilimanjaro in Tanzania to help support people living with MND….

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Education, Support

Free financial fitness online programme

Independent Living Services’ Comfortable with Money workshops are back for 2024. Join the programme and take back…

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Awareness, Personal Stories

MND on the Duncan Garner Podcast

Darren Bidois – a former New Zealand indoor cricket rep who was diagnosed with MND on his…

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Awareness, Living with MND

MND insight on the AM show

On Thursday we were privileged to have Dr Emma Scotter, head of the MND Lab at the…

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REMINDER! Auckland Walk this Sunday 25 Feb

Join us for an incredible day out at the iconic Auckland Waterfront on Sunday 25th of February…

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REMINDER! Christchurch Walk this Sunday 18 Feb

Join us for an incredible day out at Christchurch’s Hagley Park (southern end) on Sunday 18 February…

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Community, Personal Stories

Calling all artists in our MND community!

We have been so inspired by amazing stories of living well with MND, that we’d like to…

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