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MND Action Month: Tip or pour and make time count.
Awareness, Community, Fundraising

MND Action Month: tip a bucket, pour a brew, make time count

June is MND Action Month — a time to take action, raise awareness, and make time count…

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Motor Neurone
Research, Treatments

Edaravone in Australia: what it means for New Zealanders living with MND

A treatment for motor neurone disease (MND) has been newly added to Australia’s Pharmaceutical Benefits Scheme (PBS),…

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Update on Lighthouse II trial
Living with MND, NZ MND Registry, Research

Lighthouse II trial ends, but research momentum continues

We want to share an important update with our community: the Lighthouse II clinical trial has been…

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David Seymour was a much-loved member of our Motor Neurone Disease NZ community.
Community, Living with MND

David Seymour: Advocate, mentor, and friend to our MND community

We’re deeply saddened by the recent death of David Seymour, a much-loved member of our Motor Neurone…

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MND Insight Survey 2025 webinar
Community, MND NZ, Research

Watch: MND Insight Survey 2025 webinar

The MND Insight Survey 2025 is the most comprehensive survey of the motor neurone disease (MND) community…

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Phillipa MacDonald’s incredible fundraising journey
Community, Events, Fundraising

Defying limits and inspiring change

From diagnosis to determination When Phillipa MacDonald was diagnosed with motor neurone disease (MND) on her 55th…

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Mark Leggett Chief Executive, Motor Neurone Disease NZ
Community, MND NZ

A year at MND NZ: Reflections on 40 years of strength and action

A year as Motor Neurone Disease NZ’s Chief Executive Over the past year, Motor Neurone Disease NZ…

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End-of-life doulas provide emotional, practical, and spiritual support to people with life-limiting illnesses and their families.
Education, Support

End-of-life doulas: Compassionate support when it matters most

Talking about death can be difficult, but planning for the end of life can bring comfort, clarity,…

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Mnd Insight Survey 2025
Advocacy, MND NZ, Research

MND Insight Survey 2025 – your experience matters

Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not…

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Nz’s Biggest Mnd Study—real Answers, Real Change
Advocacy, MND NZ, Research

MND research: answering your key questions and driving change

Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is…

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Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey
Advocacy, Living with MND, Research

Why the MND Insight Survey matters – Dr Natalie Gauld

Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…

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Emma Scotter Lab 2025 2
Fundraising, Research

Turning science into hope: MND research update

Motor neurone disease (MND) research is advancing at pace, with new discoveries bringing hope to those affected….

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