MND News & Research

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Draft Action Plan For Unpaid Carers Sm Tiles 4
Advocacy, Carers, Community

MSD Carers’ Strategy Action Plan – have your say

The MND Insight Research confirms what our support advisors see throughout Aotearoa every day – unpaid family…

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Advocacy, Awareness, Community, Research

MND NZ meets with Minister of Health to advocate for change

MND NZ CE Mark Leggett and MND NZ Research Advisor Dr Natalie Gauld met with the Minister…

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Community, Support

Introducing Cat Taylor

MND Regional Support Advisor Waikato, Taranaki, and Whanganui (North) Cat Taylor joined the MND NZ Team in…

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Jenny Namibia 2
Community, Support

Introducing Jenny Paine

Regional Support Advisor Northland and Waitematā Jenny Paine counts herself lucky to have escaped full time retirement…

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Community, Events, Fundraising

Trek for MND – Abel Tasman 2026: A purposeful challenge for Kiwi workplaces

For many workplaces, 2026 is already shaping up to be a year where wellbeing, genuine connection, and…

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Shauntelle (l) And Silvia (r) Landscape
Awareness, Community, Fundraising

Silvia Hodel turns jewellery hobby into fundraiser to honour sister

In September 2016, Shauntelle Schreuder (L), a 40-year-old mother-of-two, was diagnosed with motor neurone disease (MND). Shauntelle’s…

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Riluzole
Advocacy, Research, Treatments

First MND Insight Research findings: Many Kiwis missing out on life-extending treatment

Motor Neurone Disease NZ (MND NZ) is delighted to announce the publication of the first academic paper…

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Blair Cox
Awareness, Living with MND, Personal Stories

Blair Cox: 14-hour extreme triathlons to MND diagnosis

Commonwealth Games silver medalist Blair Cox has sage advice for competitors in the 2026 Master’s Games. “There…

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Education, Support

Guide for Employers of People Diagnosed with MND

Supporting someone in the workplace after an MND diagnosis can feel overwhelming — but the right information…

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Clinical News, Education, Research

Health Professional Lecture: Motor Neurone Disease – End of Life Care Experiences

Dr Natalie Gauld ONZM, Research Advisor and Best Practice Advocate at MND NZ, will be presenting to…

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Robyn And Husband sitting side by side laughing
Awareness, Community, Living with MND, Personal Stories

Still Time: Reflections on love, loss and life

Robyn Pryor didn’t set out to write a book. In 2022, when motor neurone disease (MND) forced…

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At Ny Sale Banner
Community, Events, Fundraising

Ready for a Reset? Make Time Count with the Trek for MND

The New Year is here, and with it comes that familiar moment—the chance to reset, reconnect, and…

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