June 17, 2025
For Scott, in motion: Isaiah’s MND Action Month challenge
When Isaiah Masters lost his uncle Scott Bowman to motor neurone disease (MND), he didn’t want to…
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June 14, 2025
Merchandise with meaning: new ways to support MND Action Month
This MND Action Month, we’re proud to share some beautiful new additions to the MND NZ merchandise…
Community, Fundraising, Living with MND, Personal Stories
June 10, 2025
A journey of car modification, mobility, and mindset
Michael Brown—known to most as Mike or “Browno”—has always met life head-on. Sporty by nature and community-minded…
Awareness, Community, Fundraising
May 23, 2025
MND Action Month: tip a bucket, pour a brew, make time count
June is MND Action Month — a time to take action, raise awareness, and make time count…
Research, Treatments
May 9, 2025
Edaravone in Australia: what it means for New Zealanders living with MND
A treatment for motor neurone disease (MND) has been newly added to Australia’s Pharmaceutical Benefits Scheme (PBS),…
Living with MND, NZ MND Registry, Research
April 9, 2025
Lighthouse II trial ends, but research momentum continues
We want to share an important update with our community: the Lighthouse II clinical trial has been…
Community, Living with MND
April 1, 2025
David Seymour: Advocate, mentor, and friend to our MND community
We’re deeply saddened by the recent death of David Seymour, a much-loved member of our Motor Neurone…
Community, MND NZ, Research
March 18, 2025
Watch: MND Insight Survey 2025 webinar
The MND Insight Survey 2025 is the most comprehensive survey of the motor neurone disease (MND) community…
Community, Events, Fundraising
March 18, 2025
Defying limits and inspiring change
From diagnosis to determination When Phillipa MacDonald was diagnosed with motor neurone disease (MND) on her 55th…
Community, MND NZ
March 18, 2025
A year at MND NZ: Reflections on 40 years of strength and action
A year as Motor Neurone Disease NZ’s Chief Executive Over the past year, Motor Neurone Disease NZ…
Education, Support
March 18, 2025
End-of-life doulas: Compassionate support when it matters most
Talking about death can be difficult, but planning for the end of life can bring comfort, clarity,…
Advocacy, MND NZ, Research
March 11, 2025
MND Insight Survey 2025 – your experience matters
Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not…