June is MND Action Month — a time to take action, raise awareness, and make time count for New Zealanders living with motor neurone disease (MND). MND is a rapidly progressing, incurable disease that robs people of their ability to move, talk, eat, and eventually breathe. On average, a person diagnosed with MND in Aotearoa … Read more
We’re deeply saddened by the recent death of David Seymour, a much-loved member of our Motor Neurone Disease NZ community. David was diagnosed with motor neurone disease in 2017. He had built a successful career in real estate, was a high achiever with a sharp wit, and wasn’t one to back away from a challenge. … Read more
The MND Insight Survey 2025 is the most comprehensive survey of the motor neurone disease (MND) community ever undertaken in New Zealand. Led by Dr Natalie Gauld, who was diagnosed with MND in 2022, this important research is supported by Motor Neurone Disease NZ and funded by the Health Research Council of New Zealand. To … Read more
From diagnosis to determination When Phillipa MacDonald was diagnosed with motor neurone disease (MND) on her 55th birthday, her world changed overnight. Once a practice nurse and competitive bodybuilder, she suddenly faced the challenges of progressive bulbar palsy (PBP), a form of MND that affects speech and mobility. Determined to raise awareness and support for … Read more
A year as Motor Neurone Disease NZ’s Chief Executive Over the past year, Motor Neurone Disease NZ has continued its mission to support, advocate for, and push for progress in research and care. As we mark our 40th year, we reflect on the challenges, achievements, and resilience of our community. Chief Executive Mark Leggett shares … Read more
Months of hard work, dedication, and planning went into making the 2025 Walk to Defeat MND a reality. But no amount of preparation could create the energy, passion, and impact that people bring to this event. The walk is nothing without the individuals, families, and teams who show up—not just to take steps, but to … Read more
For Jeremy Benton, the Walk to Defeat MND isn’t just another fundraising event—it’s a personal journey. Every year, he dedicates countless hours to ensuring the Christchurch walk is a success, helping to unite people in support of those affected by Motor Neurone Disease (MND). His motivation? Honouring the memory of his grandfather, who passed away … Read more
Across Aotearoa, communities are coming together for the Walk to Defeat MND, raising vital awareness and funds for those affected by motor neurone disease (MND). Each walk is more than just a fundraising event—it’s a personal journey, a show of solidarity, and a way to honour those we’ve lost. For Donna McKay, this walk is … Read more
We’re thrilled to announce that registrations are now open for the 2025 Walk to Defeat MND! This is always our biggest fundraising event of the year and crucial for ensuring we can continue our work. But it’s about far more than just money: it’s an opportunity for us to come together as a community of … Read more
At Motor Neurone Disease New Zealand (MND NZ), we are proud to reflect on a year marked by progress, resilience, and unwavering commitment to our community. The release of our 2023/24 Annual Impact Report offers a snapshot of the strides we’ve made, the challenges we’ve faced, and our vision for a brighter future. A New … Read more
Start off your year on a positive note by volunteering on Saturday 22 February 2025 in Auckland, Wellington, or Christchurch. Walk to Defeat MND brings communities together to walk in honour, memory, and in support of people affected by MND and raise awareness and much needed funds for research and support. Walks vary between 2-3km, … Read more
Canterbury’s Brent Thompson was diagnosed with MND in August 2013, which he describes as “a wrecking ball through our whole world!” He and his wife Jess had a nine-month old baby girl, and were in the final stages of designing their dream home in Rangiora. Brent also ran his own business, designing and manufacturing aircraft … Read more