Last September, we held the first-ever MND Hui at Parliament. The hui offered the chance for people working in various disciplines across healthcare throughout the country to come together and discuss the clinical needs of people living with Motor Neurone Disease in New Zealand. What became apparent throughout the day was that there are regional … Read more
We’re proud to share the findings of our MND Community Survey, and appreciate the time and effort of those who participated. We know you’ll be keen to see the results, which focused on six key areas: Supporting people with MND Needs of people with MND Connecting with MND New Zealand – people with MND & … Read more
We have been closely following the Medsafe consultation on the changes to the prescribing restrictions of riluzole (trade name ‘Rilutek’). In April we raised concerns that some of our clients had been prescribed riluzole by their general practitioner. Under the Medicines Act 1981, Rilutek can only be prescribed by specialist physicians who care for patients with … Read more