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Advocacy, Community, Research

MND Insight Research 2025: Highlights & What’s Next

The 2025 MND Insight Research study — formerly known as the MND Insight Survey — has reached…

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Mnd Insight Survey 2025
Advocacy, MND NZ, Research

MND Insight Survey 2025 – your experience matters

Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not…

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Nz’s Biggest Mnd Study—real Answers, Real Change
Advocacy, MND NZ, Research

MND research: answering your key questions and driving change

Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is…

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Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey
Advocacy, Living with MND, Research

Why the MND Insight Survey matters – Dr Natalie Gauld

Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…

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Mnd Insight Survey Blog Banner
Advocacy, MND NZ, Research

Join the MND Insight Survey webinars

Join us for one of two MND Insight Survey webinars, where we’ll introduce the MND Insight Survey…

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Growing support - mnd recruiting
Advocacy, MND NZ, Support

We’re growing our support with your help

We’re growing our support! 💙 Motor Neurone Disease NZ was built on the ethos of helping people…

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Mnd Nz Web Banner (1)
Advocacy, Research

Dr Emma Scotter: MNZM for services to MND

We are thrilled Dr Emma Scotter has been appointed a Member of the New Zealand Order of Merit for outstanding services to motor neurone disease (MND) research, as part of…

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Biogen Big
Advocacy, Clinical News

Motor Neurone Disease: investigational drug granted accelerated approval

Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with…

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Natalie Gauld Photo Web 2023
Advocacy, MND NZ

Dr Natalie Gauld appointed as Research Advisor and Best Practice Advocate

We are very pleased to welcome Dr Natalie Gauld to Motor Neurone Disease NZ as Research Advisor…

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Side View Of Elderly Woman Drinking Water
Advocacy, Clinical News

Pharmac committee recommends continued funding of food thickeners for people with MND

Today, Pharmac has published the minutes of the August PTAC (Pharmacology and Therapeutics Advisory Committee) meeting, where…

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Random Pill Cluster Photo
Advocacy, Clinical News

Medsafe confirms error with changes to Riluzole

Late last week we were advised Medsafe had updated the prescribing regime for Riluzole, a drug that…

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Medication For Motor Neurone Disease
Advocacy, Clinical News

Update on recent Riluzole prescribing changes

Motor Neurone Disease NZ has been made aware of a change Medsafe has recently made to the…

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