May 7, 2026
From the CE’s desk: Driving change with the Insight Research Study
One year on from when our community shared their experiences and stories for the Insight Research Study,…
Advocacy Articles
1 - 12 of 25 posts
Advocacy, Research
Advocacy, Community, Support
March 30, 2026
MND NZ Community Survey: tell us how we’re doing
Motor Neurone Disease NZ has launched a community survey to identify what our community wants and needs…
Advocacy, Carers, Community
February 24, 2026
MSD Carers’ Strategy Action Plan – have your say
The MND Insight Research confirms what our support advisors see throughout Aotearoa every day – unpaid family…
Advocacy, Awareness, Community, Research
February 23, 2026
MND NZ meets with Minister of Health to advocate for change
MND NZ CE Mark Leggett and MND NZ Research Advisor Dr Natalie Gauld met with the Minister…
Advocacy, Research, Treatments
January 30, 2026
First MND Insight Research findings: Many Kiwis missing out on life-extending treatment
Motor Neurone Disease NZ (MND NZ) is delighted to announce the publication of the first academic paper…
Advocacy, Awareness, Treatments
December 16, 2025
Government urged to fund liquid riluzole for people with MND
Motor Neurone Disease NZ is calling for the Government to urgently introduce and fund liquid riluzole for…
Advocacy, Community, Research
October 20, 2025
Turning insights into change: how the MND Insight Research study is already making a difference
Research is essential for improving the lives of people with motor neurone disease (MND) and their whānau….
Advocacy, Community, Research
September 29, 2025
Repeat session: MND Insight Research 2025 Highlights webinar
Due to the overwhelming response to our September 2025 webinar, Dr Natalie Gauld and Mark Leggett will…
Advocacy, Community, Research
August 14, 2025
MND Insight Research 2025: Highlights & What’s Next
The 2025 MND Insight Research study — formerly known as the MND Insight Survey — has reached…
Advocacy, MND NZ, Research
March 11, 2025
MND Insight Survey 2025 – your experience matters
Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not…
Advocacy, MND NZ, Research
March 11, 2025
MND research: answering your key questions and driving change
Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is…
Advocacy, Living with MND, Research
March 11, 2025
Why the MND Insight Survey matters – Dr Natalie Gauld
Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…