January 30, 2026
First MND Insight Research findings: Many Kiwis missing out on life-extending treatment
Motor Neurone Disease NZ (MND NZ) is delighted to announce the publication of the first academic paper…
Advocacy Articles
1 - 12 of 49 posts
Advocacy, Research, Treatments
Advocacy, Awareness, Treatments
December 16, 2025
Government urged to fund liquid riluzole for people with MND
Motor Neurone Disease NZ is calling for the Government to urgently introduce and fund liquid riluzole for…
Advocacy, Community, Research
October 20, 2025
Turning insights into change: how the MND Insight Research study is already making a difference
Research is essential for improving the lives of people with motor neurone disease (MND) and their whānau….
Advocacy, Community, Research
September 29, 2025
Repeat session: MND Insight Research 2025 Highlights webinar
Due to the overwhelming response to our September 2025 webinar, Dr Natalie Gauld and Mark Leggett will…
Advocacy, Community, Research
August 14, 2025
MND Insight Research 2025: Highlights & What’s Next
The 2025 MND Insight Research study — formerly known as the MND Insight Survey — has reached…
Advocacy, MND NZ, Research
March 11, 2025
MND Insight Survey 2025 – your experience matters
Improving care, support, and advocacy for people with MND Motor neurone disease (MND) is life-changing, affecting not…
Advocacy, MND NZ, Research
March 11, 2025
MND research: answering your key questions and driving change
Building a clearer picture of motor neurone disease (MND) to improve care and drive change Research is…
Advocacy, Living with MND, Research
March 11, 2025
Why the MND Insight Survey matters – Dr Natalie Gauld
Dr. Natalie Gauld, who was diagnosed with MND in 2022, is leading the MND Insight Survey, the…
Advocacy, MND NZ, Research
March 5, 2025
Join the MND Insight Survey webinars
Join us for one of two MND Insight Survey webinars, where we’ll introduce the MND Insight Survey…
Advocacy, MND NZ, Support
July 8, 2024
We’re growing our support with your help
We’re growing our support! 💙 Motor Neurone Disease NZ was built on the ethos of helping people…
Advocacy, Research
June 3, 2024
Dr Emma Scotter: MNZM for services to MND
We are thrilled Dr Emma Scotter has been appointed a Member of the New Zealand Order of…
Advocacy, Clinical News
April 4, 2024
Motor Neurone Disease: investigational drug granted accelerated approval
Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with…