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Awareness, Personal Stories

Finding laughter and joy in the darkest places

Sam Stuchbury Tomorrow’s a new day. There’s light at the end of the tunnel. You can’t stop…

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Awareness, Community, Fundraising

You’re invited: Help make time count this MND Action Month

MND Action Month is back for 2024! Gather your workmates, your whānau, and your friends and let’s…

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Family photo - Hayley and Kirsten
Community, Personal Stories

Mum & MND

Today, as we are celebrating mothers, we are thinking of those who lost their mums to MND, and those mothers walking the hard path of MND.

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Gerald Patterson preparing for Bike USA
Community, Fundraising

Trio riding 5,150kms for motor neurone disease

On Saturday 18 May three New Zealand riders will embark on the cycling trip of a lifetime, traversing the USA, from San Francisco to New York, to raise $51,500 for MND research and support.

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MND Support Group in Taranaki
Community, Support

New MND support group in Taranaki

After losing her mum to motor neurone disease, Jen Smart saw a need to support grieving families. 

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Neuroscientist Dr Emma Scotter
Clinical News, Research

Auckland scientists celebrate MND breakthrough: Newshub interview with Dr Scotter

In the final instalment of Newshub’s three-part series on motor neurone disease, journalist Amanda Gillies spoke with…

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Make MND a notifiable disease Barton interview
Personal Stories, Research

Call for data collection: Newshub interview with Paul

Ally Barton, once an active hiker and gym goer, was diagnosed with MND at just 34, one…

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Mnd Nz Web Banner
Personal Stories, Treatments

First New Zealander on Tofersen: Newshub interview with Jimmy

This week TV3’s Newshub shared a piece on Jimmy King, the first New Zealander with MND to…

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Two participants in Walk to Defeat MND
Community, Events

Walk to Defeat MND: A Step Forward

This year’s Walk to Defeat MND was a resounding success, bringing together communities from Wellington, Christchurch, and…

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Biogen Big
Advocacy, Clinical News

Motor Neurone Disease: investigational drug granted accelerated approval

Trapped inside a body that no longer works, unable to speak, move or, eventually, breathe. People with…

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Beth Watson
Community

Beth Watson and MND NZ

There are many people who have contributed to MND NZ over its past decades, but possibly none…

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Herogif
Fundraising

Mt Kilimanjaro Trek 2025

Embark on the momentous trek up Mt Kilimanjaro in Tanzania to help support people living with MND….

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